ALS Multidisciplinary Clinic

One way people with ALS can help move ALS research forward is by choosing to donate their bodies at the time of death to ALS research.

Advancing ALS Research Through Organ Donation Many people with ALS and their family members are deeply committed to helping move ALS research forward to find new therapies and a cure. Often, people with ALS are eager to do whatever they can to help others who are also living with the disease or will be diagnosed in the future. One way that people with ALS can choose to help is by donating their bodies at the time of death to ALS research.

The principal nerves that are affected by ALS are in the spinal cord and brain – areas that are hard to study in a living individual. When a person with ALS donates his or her body to ALS research, these organs are removed and preserved for scientific study. This tremendous act of generosity becomes part of the individual’s legacy and often serves to comfort surviving family members who know that their loved one’s spirit of caring lives on even after death.

Organ donation is often a difficult subject to talk about and you may wish to discuss it with your physician, who can answer your questions and help you decide if organ donation for ALS research is something that you would like to do. Darlene Sawicki, NP, is also good resource for you and your family.

For more information on organ donation and to receive written information, please contact Darlene Sawicki, NP, by email at dsawicki1@partners.org or by phone at (617) 726-6190.

For a list of all facilities in the US accepting brain and spinal cord tissue for ALS research, go here.  Thank you to the ALS Association for this list.