A guide to cancer genetic counseling resources at Mass General and beyond.
Resources at Mass General Cancer Center
- The Maxwell V. Blum Cancer Resource Room
- The Maxwell V. Blum Cancer Resource Room at the Massachusetts General Hospital Cancer Center provides cancer patients and their families with information and resources for living with cancer.
- The Marjorie E. Korff Parenting At a Challenging Time (PACT) Program
The Marjorie E. Korff PACT program at the Massachusetts General Hospital Cancer Center provides psycho-educational support for parents who are patients.
Outside Support Groups
FORCE is the only national nonprofit organization devoted to hereditary breast and ovarian cancer. Their mission includes support, education, advocacy, awareness, and research specific to hereditary breast and ovarian cancer.
Bright Pink is a national non-profit organization that provides education and support to young women who are at high risk for breast and ovarian cancer. They arm young women with knowledge, options and a great attitude, and offer companionship and empathy during their journey.
The VHL Family Alliance provides information for families and physicians about this disorder and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on six continents.
No Stomach For Cancer is a non-profit organization, established to provide Hereditary Diffuse Gastric Cancer families with education and support, while helping to advance research into HDGC diagnosis, screening, treatment, and prevention.
Lynch Syndrome International (LSI) provides information and assistance to individuals with Hereditary Non-Polyposis Colorectal Cancer, also known as HNPCC or Lynch syndrome. LSI works to promote education regarding cancer surveillance and screening, while also providing patients with local resources.
Read about the goal of genetic counseling and find a genetic counselor in your area.
Information page on cancer genetics.
Patient-friendly information on hereditary cancer and genetics.
Consumer-friendly information on genetic syndromes.
Information on the Genetic Information Nondiscrimination Act of 2008, a federal law that protects individuals from genetic discrimination in health insurance and employment.