The Down Syndrome Adolescent & Young Adult Clinic serves patients from 13 to 21 years of age. Families and youth will be supported and educated about transition planning. The goal is for your child to be prepared for adulthood and as engaged in their care as possible.
Adolescent & Young Adult Clinic (ages 13-21)
In this clinic, your son or daughter will be seen by all of the following specialists at MassGeneral Hospital for Children and Massachusetts Eye and Ear Infirmary:
- Physicians who have expertise with Down syndrome (PDF)
- Program coordinator
- Social worker
- Self-advocate resource specialist
Families and youth will be supported and educated about transition planning. The goal is for your child to be prepared for adulthood and as engaged in their care as possible. If your child is already being seen by one of these specialists elsewhere, you can certainly opt out of any of the components. We are happy to work with you child's care team regardless of where they are located. Please make sure to let our Program Coordinator know this when you submit your intake form.
Request an Appointment
If this is your son's or daughter's first appointment, please complete a new pediatric intake form (pdf).
If your son or daughter has already been seen in our clinic, please complete an annual pediatric intake form (pdf).
During the visit to the Down Syndrome Program, your physician might discuss with you the need for other specialty providers to be involved in your son’s or daughter’s care. If your child is followed by a specialist elsewhere, you can certainly continue care with that provider. The following is a partial list of providers that are available at Mass General Hospital:
- Pulmonary / Sleep Medicine
If you have any questions, please contact our Program Coordinator, Tomi Toler, at DownSyndrome@partners.org.
Mass General Hospital Down Syndome Program
Yawkey Center for Outpatient Care, Suite 6C
55 Fruit Street
Boston, MA 02114
Gifts from individuals help to support the hospital's three-part mission of innovative research and education in addition to patient care that is second to none.
Learn more about research opportunities available through the Down Syndrome Program at Mass General Hospital.