Treatment Programs

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Pediatric Cystic Fibrosis Center

The Joey O'Donnell Cystic Fibrosis Center at MassGeneral Hospital for Children is committed to providing first-class, individualized care for each patient with cystic fibrosis.

  • 617-726-8707 (CF clinic main number)
  • 617-643-2223 (CF nurse line)

Cystic fibrosis (CF) is a complex, inherited disease that affects many of the body’s mucus glands, leading to problems in the lungs and gastrointestinal tract including failure to absorb nutrients. The disease affects about 30,000 people in the United States. Although there is no cure, comprehensive care has led to improved prognoses for many people and research is providing new insights and new therapies.

The Joey O'Donnell Cystic Fibrosis Center at MassGeneral Hospital for Children is committed to providing first-class, individualized care for each patient. We have an established multidisciplinary team to provide preventive care, active management of lung health, nutrition support and psychological support. Successful treatment is accomplished through frequent outpatient visits with the CF team, direct communication with families and educational programs.

Comprehensive Services and a Multidisciplinary Team

The Cystic Fibrosis Center is staffed with a dedicated multidisciplinary team of cystic fibrosis specialists including:

  • Physicians certified in pediatric pulmonology
  • Nurses
  • Nutritionists
  • Respiratory therapists
  • Social workers
  • Pulmonary function specialists

For families coping with a positive result from a CF newborn screening test, we offer a state-of-the-art system for CF diagnostic testing (sweat chloride testing), and our CF specialists will meet with you the same day to discuss the test results.

The CF team is available to our patients at each visit. The other medical needs of our patients are assessed by a comprehensive group of pediatric specialists at MassGeneral Hospital for Children, including pediatric surgeons, endocrinologists and hepatologists. Ear, nose and throat specialists are available from the adjoining Massachusetts Eye and Ear Infirmary. In addition, MassGeneral Hospital for Children has active organ transplant programs.

Transition Program

As children with cystic fibrosis get older, they have different needs. We encourage self-care and responsibility for health care and we partner with families to facilitate teenagers’ transition to self-care, which includes gradual transition to the adult Cystic Fibrosis Program. Massachusetts General Hospital is in the unique position to follow patients into adulthood and offer smooth continuity of care as they transition from a pediatric to an adult provider.

Young Adult Support Group

We offer the Young Adult Support Group in conjunction with our Transition Program. Members are 16 – 22 year olds who collaborate with members of the CF team to decide on the content of monthly meetings. The CF nurse coordinator and CF social workers organize and coach the support group; they can be contacted for more information.

Infection Prevention

An important issue related to patient care involves preventing the spread of harmful bacteria. We have prevention protocols in place to protect our patients with cystic fibrosis.

Cutting-Edge Clinical and Basic Research

The Cystic Fibrosis Foundation has designated MassGeneral Hospital for Children a Cystic Fibrosis Therapeutic Development Center. Critical cutting-edge clinical research forms the basis of therapeutic advances, and our program is involved in most major clinical trials. In addition, several basic research groups at MGH focus on lung regeneration (Jay Rajagopal Laboratory) and bacterial pathogens (Sam Moskowitz Laboratory, Laurence Rahme Laboratory, Fred Ausubel Laboratory) related to cystic fibrosis.

Pediatric Pulmonary Function Testing Laboratory

The Pulmonary Function Testing Laboratory at MassGeneral Hospital for Children has comprehensive state-of-the-art facilities for performing and interpreting pulmonary function testing in children. The lab is registered with the American Thoracic Society and serves the Cystic Fibrosis Foundation Accredited Care Center.

A Tradition of Caring

At MassGeneral Hospital for Children, we know that the time of your child’s diagnosis and treatment is a very stressful one and we strive to provide an open, welcoming environment. We believe that no one knows a child as well as the parent does: parents, along with primary care providers, become our partners in a child's care and have an active voice in all treatment plans.

Cystic Fibrosis

Cystic fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system. CF causes the body to produce thick, sticky mucus that leads to progressive lung infection and difficulty gaining weight.

Mass General Researchers Take Major Step Toward a Treatment for Cystic Fibrosis

Researchers in the Center for Regenerative Medicine at Massachusetts General Hospital and the Harvard Stem Cell Institute have taken a critical step toward a treatment for Cystic fibrosis and other fatal lung diseases.

Going the distance

Crossing the finish line of a marathon is a feat in itself, but completing the race and supporting a good cause is a triumph times two.

Breakthrough cystic fibrosis drug gives hope, transforms lives

Praised by experts as a breakthrough for patients with a particular form of cystic fibrosis, ivacaftor was approved by the United States Food and Drug Administration (FDA) in January 2012 and is the first of its kind to treat the underlying defects of the disease, rather than manage its symptoms.

Lacing up for kids’ care

For marathoners Jeanne MacDonald, MD, of the MGH Neonatal Intensive Care Unit, Catherine Chapin, MD, a pediatric resident, and Kevin Timulty, a Braintree police officer, giving back is part of their everyday jobs.

Success for Mass General Marathon Teams

The 2014 Boston Marathon marked a triumphant return for the Mass General Marathon teams.

MGHfC Pediatric Cystic Fibrosis Center

MGH Professional Office Building
275 Cambridge Street, Suite 530
Boston, MA 02114

Phone: 617-726-8707
Hours: 8 am – 5 pm, Monday – Friday

Public Transportation Access: yes
Disabled Access: yes

Appointment Line: 617-726-8707
MGH New Patient Registration: 866-211-6588
MGHfC New Patient Appointments (Access Center): 888-644-3248
Nurse Line: 617-643-2223
Fax: 617-724-2803

Pulmonary Function and Sweat Chloride Testing Laboratory

For testing appointments please call: 617-724-0703 or 617-724-2992
Orders can be faxed: 617-724-2803 (ATTN: Pulmonary Function Laboratory)

Next Steps:

  • 617-726-8707 (CF clinic main number)
  • 617-643-2223 (CF nurse line)
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Make an appointment

Contact MassGeneral Hospital for Children to schedule an appointment with one of our specialists.

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Partners HealthCare Patient Gateway

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Connect with the Cystic Fibrosis Program

Connect with the Cystic Fibrosis Program via Facebook for updates on new programs, events, and more.