Child blowing bubbles

Pediatric Epilepsy Program

The Pediatric Epilepsy Program at MassGeneral Hospital for Children serves patients with seizures and related disorders.

To schedule an appointment, please call: 617-726-6540

Growing Up with Epilepsy

Overview

The Epilepsy Program at MassGeneral Hospital for Children serves patients with seizures and related disorders. The service sees patients in all phases of their illness, from assessment after an initial event in our First Seizure Unit through evaluation of refractory seizure disorders in patients who have not been easily controlled.

A comprehensive epilepsy surgery program complements the latest medical therapy, including investigational new drugs, as required. Additional services include second opinions, review of neuropathological and radiographic materials, neurogenetic assessment, ketogenic diet program and psychiatric evaluation.

State-of-the-Art Facilities and Cutting-Edge Treatment

State-of-the-art neurophysiology and neuroradiological diagnostic facilities supplement expert consultation. To assist in accurate diagnosis and treatment, inpatient and ambulatory long-term video-EEG monitoring using digital technology with computer assisted event detection, sophisticated MRI imaging and spectroscopy, functional imaging using MRI and PET scanning, and detailed neuropsychological testing are available.

A Tradition of Caring

At MassGeneral Hospital for Children, we know that the time of your child’s diagnosis and treatment is a very stressful one and we strive to provide an open, welcoming environment. We believe that no one knows a child as well as the parent does: parents, along with primary care providers, become our partners in a child's care and have an active voice in all treatment plans.

Meet the Team

Thrive

Overview

thrive icon

The Thrive component of the MGH Pediatric Epilepsy Program has been developed to provide opportunities for children with epilepsy to have programs designed to:

  1. promote cognitive efficiency and behavioral regulation (including attention and executive functioning) through targeted activities and therapies that will be designed to enhance learning, self efficacy, social competence, mood/emotional regulation, motor control, and quality of life
  2. conduct research to better understand the behavioral and cognitive comorbidities as well as the associated neurological processes related to epilepsy and the developing brain and
  3. reduce the number of hospital / doctor visits and the associated health care costs. The primary goal for all efforts will be to increase the understanding of and quality of health care for children with epilepsy.

Groups

Adolescent Epilepsy Group

  • Ages 14-18
  • Dates: Weekly, starting 2/8/17 for 6 weeks skipping February 15 and March 15
  • Location: The Lurie Center
  • Time: 4-5:30 pm

Patient and Sibling Groups

Thrive has after school groups for our patients with epilepsy and for the siblings of our patients children. Leigh Horne Mebel, MSW, LICSW is in charge of running the groups. Ms. Mebel is one of the Thrive program founders and has extensive experience with pediatric epilepsy and with individual and group therapies.

When children participate in structured group programs they have opportunities to increase their coping skills, learn new ways to help them navigate our complex social world, and develop their ability to self-regulate. Connecting with other children experiencing similar emotions and sharing similar challenges can be an opportunity to normalize experiences and also learn new skills.

The following weekly groups for our patients with epilepsy will begin:

  • Ages 9-13: Coming Soon

Rock Climbing Group

Rock Climbing can be a fun group activity that helps children increase muscle control, coordination and balance. Rock climbing can also increase self-confidence and enhance goal-setting as children can set goals for their climb each time they reach a new height. The next Rocking Group held, at a local gym by , will be for all children including patients, their siblings and their friends.

  • Dates: Monthly, beginning Sunday 1/22/17 – 4th Sunday of the month
  • Location: in Dedham at Rock Spot Climbing
  • Time: To Be Determined

Parent Group

Parent groups offer parents the opportunity to share their experiences as well as to develop strategies to help their child manage difficulties with attention and emotional behavioral dysregulation. Monthly, beginning Thursday 12/1/16 – This group, led by the Pediatric Epilepsy Social Worker, will be held the first Thursday of every month.

  • Dates: Monthlly, beginning Thursday 12/1/16
  • Location: Newton Wellesley Bowles 3 Conference Room
  • Time: 7-8:15 pm

Transition to Adulthood Group

The transition to adulthood is difficult for all children, and particularly so for young adults with medical issues. Our group focuses on the important aspects of planning for the transition into adulthood. This includes the legal, educational, and psychosocial aspects of this significant period of development.

  • The next Transition to Adulthood Group: Coming Soon

To enroll and for more information on all these opportunities please contact the THRIVE program at 617-726-6540.

Webinars

Thrive is continually creating webinars to provide information about epilepsy, the cognitive, learning and psychosocial issues often associated with the disorder, educational challenges and solutions. All webinars are available for viewing on our Thrive website. Current and planned webinars include the following:

  • August 2016 Understanding epilepsy and associated cognitive and psychosocial challenges
  • January 2017 Executive Functions/Self-Regulation
  • February 2017 Managing Problem Behaviors
  • April 2017 Autism
  • June 2017 Psychological Issues
  • August 2017 Transition to Adulthood

August 2016 Webinar: Understanding epilepsy and associated cognitive and psychosocial challenges

Support Us

To ensure your donation supports Pediatric Epilepsy, select donor designation and type in “Thrive”.

Support Us

Conditions & Diseases

  • Epilepsy and Seizures

    Epilepsy is a neurological condition involving the brain that makes people more susceptible to having seizures.

Clinical Trials

News

  • Dietary Therapy for Pediatric Epilepsy - 12/10/2013, Mass General

    Dietary therapy is prescribed most often for patients with refractory epilepsy, whose seizures have not been controlled despite trying multiple antiepileptic drugs.

Contact

Contact Us

MGHfC Pediatric Epilepsy Program

Yawkey Center for Outpatient Care

Suite 6B55 Fruit Street Boston, MA 02114
  • Near Public Transit
  • Accessible
  • Phone: 617-726-6540
  • Fax: 617-726-0230

To schedule an appointment with a MassGeneral for Children pediatric specialist, please call 888-644-3248 or complete our online appointment form to request an appointment.

Physicians may call 888-644-3211 or use the online referral form and the Access & New Appointment Center will call your patient within 1 business day.

To schedule an appointment, please call: 617-726-6540

Growing Up with Epilepsy

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