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Pediatric Epilepsy Program

The Pediatric Epilepsy Program at MassGeneral Hospital for Children serves patients with seizures and related disorders.

To schedule an appointment, please call: 617-726-6540

Growing Up with Epilepsy Patient and Parent Reading

Overview

The Epilepsy Program at MassGeneral Hospital for Children serves patients with seizures and related disorders. The service sees patients in all phases of their illness, from assessment after an initial event in our First Seizure Unit through evaluation of refractory seizure disorders in patients who have not been easily controlled.

A comprehensive epilepsy surgery program complements the latest medical therapy, including investigational new drugs, as required. Additional services include second opinions, review of neuropathological and radiographic materials, neurogenetic assessment, ketogenic diet program and psychiatric evaluation.

State-of-the-Art Facilities and Cutting-Edge Treatment

State-of-the-art neurophysiology and neuroradiological diagnostic facilities supplement expert consultation. To assist in accurate diagnosis and treatment, inpatient and ambulatory long-term video-EEG monitoring using digital technology with computer assisted event detection, sophisticated MRI imaging and spectroscopy, functional imaging using MRI and PET scanning, and detailed neuropsychological testing are available.

A Tradition of Caring

At MassGeneral Hospital for Children, we know that the time of your child’s diagnosis and treatment is a very stressful one and we strive to provide an open, welcoming environment. We believe that no one knows a child as well as the parent does: parents, along with primary care providers, become our partners in a child's care and have an active voice in all treatment plans.

Doctors

  • Catherine J. Chu, MD

    617-726-6540

    Accepting New Patients

    Clinical Interests
    • Pediatric epilepsy
    • Neurophysiology
    • EEG
    • Epilepsy surgery
    • Epileptic encephalopathies
    • Neurocognitive aspects of epilepsy
    • Residency training and education
    Board Certifications
    • Neurology with Special Qualifications in Child Neurology, American Board of Psychiatry and Neurology
    • Clinical Neurophysiology, American Board of Psychiatry and Neurology
    Locations
    • Boston: Neurology Associates
  • Emad Nader Eskandar, MD

    617-724-6590

    Accepting New Patients

    Clinical Interests
    • Epilepsy
    • Trigeminal neuralgia
    • Brain and spinal cord tumors
    • Movement disorders
    • Parkinson's disease
    Board Certifications
    • Neurological Surgery, American Board of Neurological Surgery
    Locations
    • Boston: Neurosurgery, MGH
  • Amy Kathryn Morgan, PhD

    617-724-9615

    Accepting New Patients

    Clinical Interests
    • Pediatric stroke
    • Pediatric Leukodystrophies
    • Pediatric Metabolic/Genetic Disorders
    • Learning disabilities
    • Neurodevelopmental disorders
    • Pediatric epilepsy
    Locations
    • Boston: Psychology Assessment Center
  • Kenneth Clayton Sassower, MD

    617-724-7426

    Accepting New Patients

    Clinical Interests
    • Epilepsy
    • Pediatric Neurology
    • Sleep Disorders Medicine
    Board Certifications
    • Neurology with Special Qualifications in Child Neurology, American Board of Psychiatry and Neurology
    • Sleep Medicine, American Board of Psychiatry and Neurology
    • Epilepsy, American Board of Psychiatry and Neurology
    Locations
    • Boston: Neurology Associates
    • Boston: Pediatric Sleep Lab
  • Ronald L. Thibert, DO

    617-726-6540

    Accepting New Patients

    Clinical Interests
    • Epilepsy
    • Angelman syndrome
    • Chromosome 15 duplications
    • Autism spectrum disorders
    • Pitt Hopkins syndrome
    Board Certifications
    • Neurology with Special Qualifications in Child Neurology, American Board of Psychiatry and Neurology
    • Clinical Neurophysiology, American Board of Psychiatry and Neurology
    Locations
    • Boston: Pediatric Epilepsy Program
    • Lexington: Lurie Center for Autism
  • Elizabeth Anne Thiele, MD, PhD

    617-726-6540

    Accepting New Patients

    Clinical Interests
    • Ketogenic diet
    • Tuberous sclerosis complex
    • Pediatric epilepsy
    Board Certifications
    • Clinical Neurophysiology, American Board of Psychiatry and Neurology
    • Neurology with Special Qualifications in Child Neurology, American Board of Psychiatry and Neurology
    Locations
    • Boston: Pediatric Epilepsy Program

Other Providers

Thrive

Overview

thrive icon

The Thrive component of the MGH Pediatric Epilepsy Program has been developed to provide opportunities for children with epilepsy to have programs designed to:

  1. promote cognitive efficiency and behavioral regulation (including attention and executive functioning) through targeted activities and therapies that will be designed to enhance learning, self efficacy, social competence, mood/emotional regulation, motor control, and quality of life
  2. conduct research to better understand the behavioral and cognitive comorbidities as well as the associated neurological processes related to epilepsy and the developing brain and
  3. reduce the number of hospital / doctor visits and the associated health care costs. The primary goal for all efforts will be to increase the understanding of and quality of health care for children with epilepsy.

Groups

 

Patient and Sibling Groups

Thrive has after school groups for our patients with epilepsy and for the siblings of our patients children. Leigh Horne Mebel, MSW, LICSW is in charge of running the groups. Ms. Mebel is one of the Thrive program founders and has extensive experience with pediatric epilepsy and with individual and group therapies. When children participate in structured group programs they have opportunities to increase their coping skills, learn new ways to help them navigate our complex social world, and develop their ability to self-regulate. Connecting with other children experiencing similar emotions and sharing similar challenges can be an opportunity to normalize experiences and also learn new skills.

As part of the adolescent patient and sibling groups, the Thrive Program provides mentorship training for interested participants. Children who are mentored benefit from being provided with role models, encouragement from older children with similar backgrounds, and help building social skills and a greater connectedness to others. Training of peer mentors is designed to help children build their communication, planning and reasoning skills and strengthen their ability to take others' perspectives.

The following weekly groups for our patients with epilepsy will begin:

Adolescent Epilepsy Group

  • Ages 14-18
  • Dates: Weekly, 3/1/17 for 6 weeks skipping March 15
  • Location: The Lurie Center
  • Time: 4-5:30 pm

Rock Climbing Group

Rock Climbing can be a fun group activity that helps children increase muscle control, coordination and balance. Rock climbing can also increase self-confidence and enhance goal-setting as children can set goals for their climb each time they reach a new height. The next Rocking Group held, at a local gym by , will be for all children including patients, their siblings and their friends.

  • Dates: Monthly, beginning Sunday 1/22/17 – 4th Sunday of the month
  • Location: in Dedham at Rock Spot Climbing
  • Time: 1-4 pm

Parent Group

Parent groups offer parents the opportunity to share their experiences as well as to develop strategies to help their child manage difficulties with attention and emotional behavioral dysregulation. Monthly, beginning Thursday 12/1/16 – This group, led by the Pediatric Epilepsy Social Worker, will be held the first Thursday of every month.

  • Dates: Monthly, beginning Thursday 12/1/16
  • Location: Newton Wellesley Bowles 3 Conference Room
  • Time: 7-8:15 pm

February’s parent group will take place on February 9th (not on February 2nd).

Transition to Adulthood Group

The transition to adulthood is difficult for all children, and particularly so for young adults with medical issues. Our group focuses on the important aspects of planning for the transition into adulthood. This includes the legal, educational, and psychosocial aspects of this significant period of development.

  • The next Transition to Adulthood Group: Coming Soon

To enroll and for more information on all these opportunities please contact the THRIVE program at 617-726-6540.

Events

Save the Date

Teachers, Parents, Therapists, Nurses, Social Workers, and Psychologists: save the date on Saturday November 4, 2017 for a day long educational conference featuring expert MGH and Guest speakers on the topics below. More information will be posted shortly. Please share this event with anyone you believe may be interested.

Conference Themes:

  • Epilepsy Overview
  • Executive Function
  • Behavior Regulation
  • Mind Body Connection

Download Event Flyer

Our THRIVE in College event, geared towards patients, and families, who will be heading to college next year will be held in May 2017. The exact date and time will be announced shortly.

Webinars

Thrive is continually creating webinars to provide information about epilepsy, the cognitive, learning and psychosocial issues often associated with the disorder, educational challenges and solutions. All webinars are available for viewing on our Thrive website. Current and planned webinars include the following:

  • August 2016 Understanding epilepsy and associated cognitive and psychosocial challenges
  • January 2017 Executive Functions/Self-Regulation
  • February 2017 Managing Problem Behaviors
  • April 2017 Autism
  • June 2017 Psychological Issues
  • August 2017 Transition to Adulthood

August 2016 Webinar: Understanding epilepsy and associated cognitive and psychosocial challenges

Support Us

To ensure your donation supports Pediatric Epilepsy, select donor designation and type in “Thrive”.

Support Us

Conditions & Diseases

  • Epilepsy and Seizures

    Epilepsy is a neurological condition involving the brain that makes people more susceptible to having seizures.

Clinical Trials

News

  • Dietary Therapy for Pediatric Epilepsy - 12/10/2013, Mass General

    Dietary therapy is prescribed most often for patients with refractory epilepsy, whose seizures have not been controlled despite trying multiple antiepileptic drugs.

Contact

Contact Us

MGHfC Pediatric Epilepsy Program

Yawkey Center for Outpatient Care

Suite 6B55 Fruit Street Boston, MA 02114
  • Near Public Transit
  • Accessible
  • Phone: 617-726-6540
  • Fax: 617-726-0230

To schedule an appointment with a MassGeneral for Children pediatric specialist, please call 888-644-3248 or complete our online appointment form to request an appointment.

Physicians may call 888-644-3211 or use the online referral form and the Access & New Appointment Center will call your patient within 1 business day.

To schedule an appointment, please call: 617-726-6540

Growing Up with Epilepsy Patient and Parent Reading

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