Child holding dog

Pediatric Neurofibromatosis Surgery

The Neurofibromatosis Surgery team at MassGeneral Hospital for Children manages neurofibromatosis type I and type II as well as variants, such as schwannomatosis.

Contact the Pediatric Neurofibromatosis Surgery Team: 617-643-3399

Overview

The Neurofibromatosis Surgery team at MassGeneral Hospital for Children manages neurofibromatosis type I and type II as well as variants, such as schwannomatosis. NF I, classic or peripheral neurofibromatosis, is commonly apparent in infancy and early childhood and can include manifestations such as:

  • Facial and orbital plexiform neurofibromas
  • Spinal neurofibromas
  • Brain tumors — optic gliomas, as well as other gliomas
  • Hydrocephalus
  • Peripheral nerve tumors, including sarcomas
  • Cranial dysgenesis with pulsating exophthalmos

NF II, central neurofibromatosis, is much less common in childhood and adolescence than NF I and is usually not apparent until the teenage years. A hallmark of NF II is the presence of bilateral acoustic neuromas (now more accurately termed vestibular schwannomas). Other central nervous system tumors such as meningiomas can occur. NF I and NF II are relatively rare disorders that can cause a number of neurological and medical consequences.

At Massachusetts General Hospital, these patients are followed by a focused multidisciplinary team led by neurologists and neurosurgeons. These physicians are some of the most experienced in NF I and NF II management, for both children and adults.

Doctors

  • Barker, Frederick George, MD

    617-724-8772

    Accepting New Patients

    Clinical Interests
    • Acoustic neuroma
    • Hemifacial spasm
    • Surgical treatment of trigeminal neuralgia
    • Brain tumors
    Board Certifications
    • Neurological Surgery, American Board of Neurological Surgery
    Locations
    • Boston: Pappas Center for Neuro Oncology
  • Butler, William E., MD

    617-726-3801

    Accepting New Patients

    Clinical Interests
    • Pediatric Neurosurgery
    • Computer-assisted image-guided neurosurgery
    • Stereotactic surgery
    Locations
    • Boston: Massachusetts General Hospital
  • Curry, William T., MD

    617-726-3779

    Accepting New Patients

    Clinical Interests
    • Brain tumors
    • Cranial base surgery / Endoscopic skull base surgery
    • Immunotherapy for brain tumors
    • Spine and Spinal Cord Tumors
    • Neurofibromatosis
    Board Certifications
    • Neurological Surgery, American Board of Neurological Surgery
    Locations
    • Boston: Pappas Center for Neuro Oncology
  • Williams, Ziv, MD

    617-643-4102

    Accepting New Patients

    Clinical Interests
    • Reconstructive Peripheral Nerve Surgery
    • Functional neurosurgery
    • Spine Surgery: disc excision, laminectomy, fusions
    • Neurosurgery
    Board Certifications
    • Neurosurgery, American Board of Neurological Surgery
    Locations
    • Boston: Neurosurgical Associates

Contact

Contact Us

MGHfC Pediatric Neurofibromatosis Surgery

  • Near Public Transit
  • Accessible
  • Phone: 617-643-3399
  • Fax: 617-726-7546

To schedule an appointment with a MassGeneral for Children pediatric specialist, please call 888-644-3248 or complete our online appointment form to request an appointment.

Physicians may call 888-644-3211 or use the online referral form and the Access & New Appointment Center will call your patient within 1 business day.

Contact the Pediatric Neurofibromatosis Surgery Team: 617-643-3399

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