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For information about the
MGH Caregiver
Support Program outlined in the NECN story above, contact:
at: 617-726-4612
or email: bmoscowitz@partners.org
A diagnosis of Alzheimer's disease
is often a frightening and disorienting moment in the life of a family.
The emotional news that a parent or spouse is changing and will not
be there in the same way is difficult to accept. Family Matters is divided
into four sections to introduce newly diagnosed and early stage patients
and families to the world of Alzheimer's.
• A Matter of Time
• Getting Into Their World
• Coming Together for Alzheimer's
• You Are Not Alone
An Alzheimer diagnosis also asks
each family member to rethink his/her own life in order to provide support
and assistance for the individual with Alzheimer's. The film is framed
to help viewers understand their own feelings as they hear others share
personal insights, ideas and strategies for care. Family Matters suggests
that there is a path to take to help families cope, and that Alzheimer's
need not be a paralyzing experience. Viewers hear from four families
who share their experiences and reactions that helped them adapt to
the changes in their lives.
TRT: 28 Minutes
Produced by: Image Studios Films
www.imagestudiosfilms.com
Full Screen, Color
Stereo
NTSC, Region Free
(photo's
by Wendy McGrane Strang)
As
public awareness of Alzheimer’s grows, and the capacity for early diagnosis
increases, more older adults and families receive the difficult news
while life is still somewhat ‘normal’. It is an understatement to suggest
that both patient and family are stunned, often devastated, and afraid.
They need time, professional guidance, repetition, and quality information
to begin their new journey. It is a journey that requires patience,
enormous energy, restructuring of lives, goals and plans; and ultimately
an understanding that the diagnosis of an individual (mother, father,
spouse) is a diagnosis that will belong to the entire family.
Family
Matters: Coming Together for Alzheimer’s and the accompanying
Resource Journal are intended to introduce
newly diagnosed families to the world of the Alzheimer’s patient. The
illness doesn’t manifest as a limp or swollen limb, but rather a mysterious
and unpredictable array of actions, limitations, memory lapses, mistakes
and sometimes, bizarre behaviors that bear no resemblance to the person
everyone knows. Patients and family need to learn about the illness
and treatments, plan for all levels of challenges that await them, restructure
their family system to adapt to ever changing needs of the patient;
and finally, they will need to learn the language and behavior of being
an Alzheimer caregiver. It is a remarkably stressful, challenging and
awesome time in life: one that is barely appreciated by anyone who is
not inside of the drama.
Alzheimer’s
can indeed be a family tragedy. However, good medical care, legal planning,
family work, support groups and education can provide a path for surviving
and coping.
In my years as a clinician, as witness to remarkable patients and families
who struggle with the challenge of the Alzheimer diagnosis, I have wished
there were tools to match the experience. Very little exists for those
who are beginning the journey. It is my hope, that as an adjunct to
the clinical support from caregivers, the Family Matters film and Journal
will provide an extra dose of support and confidence in the middle of
the night, or whenever you might find yourself sorting through this
new life challenge.
Barbara E. Moscowitz,
MSW LICSW
Geriatric Medicine Unit, MGH
Executive Producer, Family Matters: Coming Together
for Alzheimers
Dedicated to Jim Brown:

This film was made possible by the
Jim Brown Foundation for Alzheimer's Research and Education
Produced for Geriatric
Medicine Unit
Massachusetts General Hospital
A Harvard Medical School teaching affiliate and a founding member of
Partners HealthCare
We gratefully acknowledge the families
of Sam, Rita, Ed and Jim who gave
generously of their time and openly with their hearts
Barbara E. Moscowitz
Geriatric Social Work
Geriatric Medicine Unit
Massachsetts General Hospital
Boston, Massachusetts
Joanne Koenig Coste, M.Ed
President
Alzheimer's Consulting Associates
Framingham, Massachusetts
Sue Grott
Adult Child Alzheimer's Support group
Central Maryland Alzheimers Assoc
Kate Salmon, MHSA
Director of Marketing/Communications
Whitney Place Assisted Living Residencies and
The Salmon Family of Services
Lois Pecora, Director of Tapestry
Program
Whitney Place, Natick, MA
Mike Splaine
Public Policy Division
Alzheimer's Assocation, Washington, DC
IONA Senior Services
Washington, DC
Executive Producer
Barbara Moscowitz, MSW LICSW
Image Studios Productions
www.imagestudiosfilms.com
Writer
Wendy McGrane Strang, MPH
Director
Garrett Strang
Cinematographers
Richard Chisolm
Garrett Strang
Ken Willinger
Sound Recording
Michael Boyle
Don Grissom
John Cameron
Editors
Wendy McGrane Strang, MPH
Tom Rhoads
Garrett Strang
Alzheimer's Consultant
Joanne Koenig Coste, M. Ed
Family Matters
MGH Senior Health
165 Cambridge St
Boston Ma 02114
617-726-4612
bmoscowitz@partners.org
View Clip
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