Adult Congenital Heart Disease Program

Adult Congenital Heart Disease Program

The Adult Congenital Heart Disease Program at the Massachusetts General Hospital Corrigan Minehan Heart Center offers personalized, lifelong care for adult patients with congenital heart disease, specializing in valve problems, heart failure, multidisciplinary surgery, arrhythmia and pregnancy.
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Call to request an appointment or referral: 866-644-8910

Overview

Clinicians at the Adult Congenital Heart Disease Program provide personalized, lifelong care for adolescent and adult patients with the entire spectrum of congenital heart disease, including, but not limited to:

  • Aortic valve stenosis
  • Atrial septal defect
  • Bicuspid aortic valve
  • Coarctation of the aorta
  • Complex congenital heart disease
  • Congenital coronary anomalies
  • Dextrocardia
  • Ebstein’s Anomaly
  • Eisenmenger Syndrome
  • Fontan circulation
  • Patent ductus arteriosus
  • Pulmonic stenosis
  • Tetralogy of Fallot
  • Transposition of the great arteries
  • Ventricular septal defect

Jack's Story: Adult Congenital Heart Disease

Jack's Story: Adult Congenital Heart Disease

At age 16, Jack Cadigan appeared to be a healthy, athletic high school student. That changed during a summer volunteer trip to Haiti, when doctors identified an atrial septal defect, or a hole, in his heart. See how a Mass General team repaired Jack’s heart—and saved a young Haitian girl in the process. Watch video

A Multidisciplinary Approach to Treating Congenital Heart Disease

Patients and their families are guided through every aspect of management, from the initial encounter and review of prior history, through diagnostic and interventional procedures, while emphasizing continuity of care and long-term follow up. Our physicians are focused exclusively on treating congenital heart disease in adults and work with specialists from multiple clinical disciplines to provide care from many different perspectives, including:

  • Cardiac genetics
  • Cardiac imaging
  • Cardiac and thoracic surgery
  • Electrophysiology
  • Heart failure and transplantation
  • Hematology
  • Interventional cardiology
  • Neurology
  • Obstetrics and gynecology
  • Pulmonary care

Our specialists care for adolescents and adults with congenital heart disease and value open and ongoing communication with referring pediatricians, internists and primary cardiologists. We also emphasize patient education and self advocacy to help patients transition from pediatric, through adolescent to adult care.

We offer multidisciplinary visits with same day testing in Boston, state-of-the-art interventions, heath and wellness clinics in Waltham, and telemedicine and digital health services throughout the Northeast and internationally. The program has an active interest in transitioning adolescents and young adults to adult cardiac care and in cardiovascular disease and pregnancy.

Diagnosing Congenital Heart Disease

To diagnose congenital heart disease, it is important to have a clear image of a patient’s anatomy. The Adult Congenital Heart Disease Program includes full-time, board-certified cardiac imaging specialists who are specially trained to detect heart defects and whose practice focuses specifically on congenital heart disease.

Depending on the patient, we may use one or more of these diagnostic techniques to examine the heart’s anatomy and function:

Treating Congenital Heart Disease

Both outpatient and inpatient care are closely supervised by the same dedicated physicians in the personalized manner that has been the tradition and style of excellence that characterizes Mass General.

Helping Patients Live Full, Healthy Lives

Our goal is to repair and manage congenital heart conditions so that patients live full, healthy lives. Our specialists take a holistic approach to care and are available to:

The Mass General Adult Congenital Heart Disease Program team provides multidisciplinary care and ongoing support for individuals with congenital heart disease.
The Mass General Adult Congenital Heart Disease Program team provides multidisciplinary care and ongoing support for individuals with congenital heart disease.
  • Answer your questions: Patients with congenital heart disease often have questions relating to work, education, sports participation, marriage, pregnancy, childrearing, and whether their condition affects lifestyle decisions
  • Guide patients through lifestyle changes: Preventive care is central to the treatment process. We often guide patients through dietary changes and weight management, and may refer them to cardiac rehabilitation specialists to help manage their condition

Minimally Invasive Treatments

For some patients, we use an interventional transcatheter approach to offer minimally invasive procedures that result in small incisions in the skin, rather than open heart surgery. Our interventional cardiologists treat congenital heart conditions, including but not limited to septal defects, coarctation of aorta, pulmonary branch stenoses and perform pulmonic vein replacement.

Surgical Interventions

Our dedicated surgical team specializes in adult congenital heart surgical procedures, including primary operations and reoperations. We are experienced in both simple and complex congenital heart surgeries, including:

  • Fontan operation and revision
  • Surgical closure of atrial septal defect
  • Surgical repair of coartation of the aorta
  • Surgical repair of Ebstein’s anomaly
  • Pulmonary valve replacement
  • Surgical repair of coronary artery anomalies
  • Tetralogy of Fallot repair or reoperation
  • Valve sparing aortic root surgery
  • Conduit revision
  • Congenital valve repair or replacement (tricuspid, mitral, aortic)

Ongoing Support for Patients

Teens and young adults with congenital heart disease receive ongoing support that helps them shift from pediatric to adult-based health care. Adolescents and young adults also receive peer support from patients who have similar conditions.

Timely Appointments

We strive to see patients in a timely fashion. Our dedicated support personnel are available Monday through Friday from 8:30 am to 5:00 pm to take relevant information about your condition and symptoms and make a timely appointment with the most appropriate specialist.

To request an appointment, call 866-644-8910 or complete our online appointment form

TeleHeart

The Mass General Adult Congenital Heart Disease Program provides TeleHealth visits to new and established patients in order to support patient centered care. When possible and desired, patients are given the option to meet with their cardiologist on a secure video portal and even review their own images of their heart and discuss future plans for active surveillance or intervention. These visits are meant to supplement the patient’s care, occurring safely from their own home and allowing loved ones to participate as well. Learn more about the Mass General TeleHealth program

Health and Wellness Clinic in Waltham

The Adult Congenital Health and Wellness Program at Mass General West in Waltham was established in 2013 to address the many additional non-congenital health issues important to the care of patients with congenital heart disease. Ranging from atherosclerotic disease risk assessment to nutrition counseling, stress management techniques and exercise prescription, this clinic occurs in our convenient Waltham location. Learn more about our Waltham location

Conditions & Diseases

The care team at the Corrigan Minehan Heart Center encourages all patients and family members to learn more about conditions and diseases that affect the heart and overall cardiovascular system. The links below provide more information about heart conditions and diseases that might be treated within this program.

Cardiovascular Disease and Pregnancy

Pregnancy can expose a woman's body to dramatic changes in the cardiovascular system, especially when there is a pre-existing heart condition. Our doctors and staff provide individualized care and treatment plans for patients before, during and after pregnancy.

Learn more about our Cardiovascular Disease and Pregnancy Service in the Corrigan Women's Heart Health Program

 

  • Congenital Heart Defects

    Congenital heart defects occur when the heart or related blood vessels do not develop properly before or at birth.

Patient Education

Mass General is dedicated to ensuring that people understand their health care choices and have the necessary information to make decisions affecting their health and well being. The related support and wellness information listed below can play a role in treatment options.

  • Patient Guide to Cardiac Surgery (PDF)

    Learn what to expect before, during and after your surgery at the Massachusetts General Hospital Heart Center by downloading and printing our patient guide to cardiac surgery.

  • Understanding and Preparing for a Catheterization Procedure (PDF)

    As you prepare for your catheterization, Massachusetts General Hospital clinicians want you to feel as comfortable as possible. To help you understand what to expect during your visit, this booklet describes key steps of your catheterization procedure.

  • Frequently Asked Questions About Cardiac Anesthesia

    The Massachusetts General Hospital Heart Center offers a patient guide to cardiac anesthesia. Our dedicated clinicians believe it is important for you to know what to expect before, during and after a cardiac anesthesia.

  • Visitor's Guide to Cardiac Surgery

    Cardiac nurses at the Massachusetts General Hospital Heart Center offer support and guidance during a family member's open-heart surgery or transplantation.

News

  • Pregnancy and your heart - 2/22/2016, Mass General

    Ami Bhatt, MD, medical director of the Adult Congenital Heart Disease Program at Massachusetts General Hospital, discusses pregnancy and the impact on your heart.

  • Is stress hurting your health? - 2/18/2016, Mass General

    Ami Bhatt, MD, medical director of the Adult Congenital Heart Disease Program at Massachusetts General Hospital, weighs in on the impact of stress to your health.

  • The stethoscope revolution - 11/15/2015, Mass General

    At the 200th anniversary of the stethoscope, the tube that sends sounds to the doctor’s ears is getting a makeover. Dr. Ami Bhatt, co-director of the Adult Congenital Heart Disease Program at the Corrigan Minehan Heart Center, writes about the digital rebirth of the stethoscope.

  • Middle-aged congenital heart disease survivors may need special care - 4/20/2015, Mass General

    Ami B. Bhatt, MD, co-director of the Adult Congenital Heart Disease Program at the Massachusetts General Hospital Corrigan Minehan Heart Center, authors recommendations on treating adults with congenital heart disease.

  • Managing adult congenital heart disease - 8/8/2014, Mass General

    In order to address the value of wellness in adults patients with congenital heart disease, doctors and nurses from the Adult Congenital Heart Disease Program have launched the ACHD Health and Wellness Program at MGH West in Waltham.

  • First time’s a charm: MGH performs first heart-lung transplant - 11/15/2013, Mass General

    36-year-old Connecticut resident Benard Basant got his life back when he underwent the MGH’s first combined heart-lung transplant surgery.

  • A new study examines cancer screening rates among patients with adult congenital heart disease. - 8/28/2013, Mass General

    For the first time, researchers are beginning to document and evaluate cancer screening rates among ACHD patients. Doctors at Massachusetts General Hospital collaborated with researchers at the University of Massachusetts: School of Medicine to conduct this study.

  • February Heart Month: Advances in Treating Adult Congenital Heart Disease - 2/28/2013, Mass General

    Throughout the month of February, our doctors and specialists in the Massachusetts General Hospital Institute for Heart, Vascular and Stroke Care will be sharing their expertise on various heart conditions and offering prevention tips in recognition of American Heart Month. Roughly one in every four deaths in the U.S. each year is due to heart disease, making it the leading cause of death for Americans.

  • Adult Congenital Heart Disease & Heart Surgery - 9/18/2012, Mass General

    Over one million adults in the United States have adult congenital heart disease (ACHD), a condition that occurs when the heart or related blood vessels do not develop properly before or at birth.

  • Adult Congenital Heart Disease & Heart Surgery Recovery Process - 9/18/2012, Mass General

    For some adult congenital heart disease patients, heart surgery is needed. Patients often have questions about their condition, what the admission process is like, what to anticipate on the day of surgery and ask about expectations for their recovery process.

  • Sisters with congenital heart disease don’t miss a beat - 10/3/2011, Mass General

    As infants, Madelyn and Samantha Kanter were diagnosed with atrial septal defect. Following intervention as teens, they came to the Mass General Heart Center to keep them healthy through their adult lives.

  • Congenital heart patient champions women's heart health - 7/14/2011, Mass General

    Debby Flaherty-Kizer has been living with Ebstein’s anomaly for more than 30 years, but that hasn’t prevented her from participating in triathlons and advocating for women’s heart health across the country.

  • Heart valve surgery without opening the chest - 6/28/2008, Research

    The Heart Center has joined a clinical trial evaluating the effectiveness of a novel therapy to replace heart valves using a minimally invasive, catheter-based approach.

Video

  • An advanced cardiac CT scanner

    An advanced cardiac CT scanner

    Physicians at the Massachusetts General Hospital Heart Center use leading-edge technology to identify possible cardiac abnormalities.

  • Jack's Story: Adult Congenital Heart Disease

    Jack's Story: Adult Congenital Heart Disease

    At age 16, Jack Cadigan appeared to be a healthy, athletic high school student, playing on his school’s basketball team. That summer, Jack volunteered at a medical clinic in Haiti where they discovered he had an issue with his heart. He came to Mass General where Dr. Ami Bhatt diagnosed him with an atrial septal defect, which was repaired through surgery. Jack immediately noticed a big difference in his health, not realizing how limited he was before the surgery.

Contact

Contact Us

Adult Congenital Heart Disease Program

Yawkey 5B55 Fruit Street Boston, MA 02114
  • Near Public Transit
  • Handicapped Accessible
  • Phone: 617-726-8510
  • Fax: 617-643-6844
  • Email Us

Hours

  • 8:00 am to 5:00 pm

If you are a new patient, you may call the Corrigan Minehan Heart Center Access Office at 866-644-8910 or complete our online appointment form to request an appointment. A member of our access team will ask you more about your condition and symptoms, and match you with the best-fitting Corrigan Minehan Heart Center physician.

Follow the Adult Congenital Heart Disease Program on Twitter at @mghhearthealth.

Request an appointment Request a second opinion

Call to request an appointment or referral: 866-644-8910

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