NEALS and ALSA partner to offer clinical trial liaison service to help people with ALS navigate the world of clinical research.

ALS Clinical Trials Liaison Available to Help Connect PALS With Clinical Research Information

30/Jan/2014

The Northeast ALS Consortium (NEALS) in conjunction with The ALS Association provides a centralized resource for information about amyotrophic lateral sclerosis (ALS) clinical research.  As part of this initiative, an ALS trial liaison is available to answer questions and help people navigate through the often complex world of clinical research information. This service is offered during regular business hours (Eastern Standard Time).

A long-standing collaboration between NEALS and The ALS Association through the Translational Research Advancing Therapy for ALS (TREAT ALS) program has built a comprehensive infrastructure to improve clinical trial efficiencies. The availability and accuracy of clinical research information is crucial to the development of potential treatments for ALS.

“The ALS Association is very pleased to provide funding for this resource and to be working with NEALS and the clinical community to make information on all the important clinical trials more accessible to people with ALS,” said ALS Association Chief Scientist Lucie Bruijn, Ph.D.

With the support of The ALS Association, NEALS leads a coordinated effort to support people with ALS who wish to enroll in clinical trials. This effort includes:

  • The dissemination of comprehensive, up-to-date information about ALS trials to the ALS community
  • Coordinated, searchable online material about clinical research options
  • Frequent updates and news about research, including informational webinars
  • Access to a live contact to answer questions about clinical trials

The leadership at NEALS and The ALS Association recognize the need to provide comprehensive clinical research information to the ALS community. An ALS clinical trial liaison can be reached at (877) 458-0631 Monday through Friday between the hours of 9 a.m. and 5 p.m. EST and by e-mail at alstrials@partners.org. Additional information including current updates on clinical trials and more can be found on the NEALS website: www.alsconsortium.org.