Movement disorder and dystonia related organizations for patients & families. Includes belpharospasm, deep brain stimulation, Spasmodic Dysphonia, Spasmodic Torticollis, Dopa-Responsive Dystonia, Bachmann-Strauss Dystonia and Parkinson's disease.

Movement disorder & dystonia related organizations for patients & families

General Dystonia/Movement Disorders

Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2810
Chicago, Illinois 60601-1905
Tel: (800) 377-3978
Fax: (312) 803-0138
E-mail: dystonia@dystonia-foundation.org
Website: http://www.dystonia-foundation.org/

The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.
Fred French Building
551 Fifth Ave (at 45th St.), Suite 520
New York, NY 10176
Tel: (212) 682-9900
Email: Bachmann.Strauss@mssm.edu
Website: http://www.dystonia-parkinsons.org

Worldwide Education and Awareness for Movement Disorders (WE MOVE)
204 West 84th Street
New York, NY 10024
Tel: (800) 437-MOV2
Fax: (212) 875-8389
Email: wemove@wemove.org
Website: www.wemove.org

Care4Dystonia, Inc.
Care for Dystonia
Contact: Beka Serdans, RN, NP
440 East 78th Street
New York, NY 10021
Tel: (212) 249-2808
Email: bekadys@aol.com
Website: http://www.care4dystonia.org/

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Website: www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm

Blepharospasm

Benign Essential Blepharospasm Research Foundation, Inc.
PO Box 12468
Beaumont, Texas 77726-2468
Tel: (409) 832-0788
Fax: (409) 832-0890
Email: bebrf@belpharospasm.org
Website: http://www.blepharospasm.org/

Spasmodic Dysphonia/Laryngeal Dystonia

National Spasmodic Dysphonia Association
300 Park Boulevard, Suite 415
Itasca, IL 60143
Tel: (800) 795-6732
Fax: (630) 250-4505
Email: NSDA@dysphonia.org
Web Site: http://www.dysphonia.org

American Speech Language and Hearing Association (ASHA)
2200 Research Boulevard
Rockville, MD 20850-3289
Tel: (800) 638-8255
Fax: (301) 296-8580
Email: actioncenter@asha.org
Website: http://www.asha.org

Spasmodic Torticollis/Cervical Dystonia

National Spasmodic Torticollis Association
9920 Talbert Avenue #233
Fountain Valley, CA 92708
Tel: 800-487-8385
Email: nstamail@aol.com
Website: http://www.torticollis.org

Spasmodic Torticollis/Dystonia, Inc.
P.O. Box 28
Mukwonago, WI 53149
Tel: (888) 445-4598
Fax: (262) 560-9535
Email: info@spasmodictorticollis.org
Website: http://www.spasmodictorticollis.org

Dopa-Responsive Dystonia

Pediatric Neurotransmitter Disease Association
Email: pnd@pndassoc.org
Website: http://www.pndassoc.org

Dopa-Responsive Dystonia Central
Website: http://www.drdcentral.com

Information on Botox Injections

Allergan Pharmaceuticals
Botox® A manufacturer
Website: www.botoxmedical.com

Solstice Neurosciences, Inc.
Myobloc® B manufacturer
Website: www.myobloc.com/

Information on Deep Brain Stimulation

Medtronic Medical Technology
Activa DBS manufacturer
Website: www.medtronic.com/your-health/dystonia/index.htm