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Links To Resources

· The End of Life Services Resource Guide prepared by the Massachusetts End-of-Life Commission, provides a comprehensive listing of resources for end-of-life care and bereavement in the Commonwealth. Resources can be searched by Service Provider, program or agency Name, Region, or by City.
· Growth House, a Guide to Death, Dying, Bereavement and End-of-Life care, is your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration.
· Americans for Better Care of the Dying (ABCD Caring) is dedicated to ensuring that all Americans can count on good end of life care. Our goals are to build momentum for reform, explore new methods and systems for delivering care, and shape public policy through evidence-based understanding.
· Advanced Directives Website of the American Hospital Association.
· National Consensus Project created voluntary consensus Clinical Practice Guidelines for the establishment and development of clinical palliative care programs across the United States.
· Hospice and Palliative Care Federation of Massachusetts is a non-profit organization dedicated to promoting hospice care throughout the Commonwealth through leadership, education and advocacy; to providing technical assistance, support and information to hospice providers; to increasing access to hospice services; and to acting as a resource and clearinghouse on issues relating to care of terminally ill patients. The site includes a hospice locator.
· Promoting Excellence in End-of-Life Care Dedicated to improving healthcare for dying persons and their families through innovative demonstration projects addressing particular challenges to existing models of hospice and palliative care.
· Hospice and Palliative Nurses Association has as its purpose to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research.
· National Hospice & Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. Palliative care extends the principles of hospice care to a broader population that could benefit from receiving this type of care earlier in their illness or disease process.  
· Harvard Medical School Center for Palliative Care aims to foster collaboration among HMS-affiliated institutions in education, research, and clinical activities in end-of-life care, and to be a local and national resource for the emerging field of palliative care.
· EPEC: Education for Physicians in End-of-Life Care provides teaching modules, handouts, PowerPoint slides, and facilitator's guides designed to educate all physicians on the essential clinical competencies required to provide quality end-of-life care. The EPEC Curriculum has been designed with input from nationally respected experts in the field and feedback from participants of early training conferences.
· End-of Life Physician Education Resource Center (EPERC): is a central repository for educational materials and information about end of life (EOL) issues. The purpose of EPERC is to assist physician educators and others in locating high-quality, peer-reviewed training materials.
· Center for the Advancement of Palliative Care (CAPC) is a resource to hospitals and health systems interested in developing palliative care programs.
· American Pain Society offers an online directory of pain treatment facilities where you may search for a pain specialist to consult regarding your individual situation. To further meet the information needs of the general public and especially for people in pain, APS has assisted in the launching and development of the American Pain Foundation, a nonprofit information resource and patient advocacy organization serving people with pain. The Foundation's mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment.
· MGH Cares About Pain Relief is an educational and advocacy resource for both professionals and patients.
· MGH Center for Translational Pain Research strives to improve the clinical management of patients experiencing acute, chronic, and cancer pain conditions by using a multidisciplinary and mechanism-based research approach to clinical pain management together with basic science pain research.
· The Project on Death in America, whose mission is to understand and transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities, and the arts, and to foster innovations in the provision of care, public education, professional education, and public policy.    
· American Academy of Hospice and Palliative Medicine is the only organization in the United States for physicians dedicated to the advancement of hospice/palliative medicine, its practice, research and education. The AAHPM is dedicated to excellence in palliative medicine and the prevention and relief of suffering among patients and families by providing education and clinical practice standards, fostering research, facilitating personal and professional development of its member and by public policy advocacy.

MGH Palliative Care Service, 55 Fruit Street, Founders 600, Boston, MA 02114
Telephone: (617) 724-9197 Fax: (617) 724-8693