Bibliography -> Selected Papers and Books

The following papers were produced by staff, fellows and Advisory Committee members of the Stoeckle Center.

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Original Articles
Reviews, Chapters and Editorials
Books, Monographs and Textbooks



Original Articles

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Barry MJ, Mulley AG, Fowler FJ, Wennberg JE. Watchful waiting versus immediate transurethral resection for symptomatic prostatism: the importance of patients' preferences. JAMA 1988;259:3010-17.

Fowler FJ, Wennberg JE, Timothy RP, Barry MJ, Mulley AG Jr, Hanley D. Symptom status and quality of life following prostatectomy. JAMA 1988;259:3018-22.

Barry MJ, Cherkin DC, Chang Y, Fowler FJ, Skates S. A randomized trial of a multimedia shared decision-making program for men facing a treatment decision for benign prostatic hyperplasia. Disease Management and Clinical Outcomes 1997;1:5-14.

Barry MJ, Fowler FJ, Mulley AG, Henderson JV, Wennberg JE. Patient reactions to a program designed to facilitate patient participation in treatment decisions for benign prostatic hyperplasia. Med Care 1995;33:771-82.

Wagner EH, Barry MJ, Barrett P, Barlow W, Fowler FJ. The effect of a shared decision-making program on rates of surgery for benign prostatic hyperplasia. Med Care 1995;33:765-70.

Collins MM, Fowler FJ, Roberts RG, Oesterling JE, Annas GJ, Barry MJ. Medical malpractice implications of PSA testing for early detection of prostate cancer. J Law Med Ethics 1997;25(4):234-242,230.

Barry MJ. Involving patients in medical decisions: how can physicians do better? JAMA 1999;282(24):2356-7.

Boumbulian PJ, Day MW, Delbanco TL, Edgman-Levitan S, Smith DR, Anderson RJ. Patient-centered patient-valued care. J Health Care Poor Underserved 1991;2(3):338-46.

Cleary PD, Edgman-Levitan S, Roberts M, Moloney TW, McMullen W, Walker JD, Delbanco TL. Patients evaluate their hospital care: A national survey. Health Aff (Millwood) 1991;10(4):254-67.

Cleary PD, Edgman-Levitan S, McMullen W, Delbanco TL. The relationship between reported problems and patient summary evaluations of hospital care. QRB Qual Rev Bull 1992;18(2):53-9.

Cleary PD, Edgman-Levitan S, Walker JD, Gerteis M, Delbanco TL. Using patient reports to improve medical care: a preliminary report from 10 hospitals. Qual Manag Health Care 1993;2(1):31-8.

Gerteis M, Edgman-Levitan S, Walker JD, Stokes DM, Cleary PD, Delbanco TL. What patients really want. Health Manage Q 1993 3rd Quarter;15(3):2-6.

Delbanco TL, Stokes DM, Cleary PD, Edgman-Levitan S, Walker JD, Gerteis M, Daley J. Medical patients' assessments of their care during hospitalization: Insights for internists. J Gen Intern Med 1995;10(12):679-85.

Edgman-Levitan S, Cleary PD. What information do consumers want and need? Health Aff (Millwood) 1996;15(4):42-56.

Edgman-Levitan S. Through the patient's eyes. J Healthc Des 1997;9:27-30.

Cleary PD, Edgman-Levitan S. Healthcare quality: Incorporating consumer perspectives. JAMA 1997;278(19):1608-12.

Cleary PD, Lubalin J, Hays RD, Short PF, Edgman-Levitan S, Sheridan S. Debating survey approaches. Health Aff (Millwood) 1998;17(1):265-8.

Edgman-Levitan S, Gerteis, M. Measures of quality: What can public reporting accomplish? Healthc Forum J 1998;41(1):27,36-7,61.

Edgman-Levitan S, Gerteis M. Patient confidence in the health care system. Qual Connect 1998;7(1):1-2.

Edgman-Levitan S, Hill M, Sprenger G, Rosenthal G, Rowe R. Building trust: Health care leaders speak out-discussion. Qual Connect 1998;7(1):6-8.

Veroff DR, Gallagher PM, Wilson V, Uyeda M, Merselis J, Guadagnoli E, Edgman-Levitan S, Zaslavsky A, Kleimann S, Cleary P. Effective reports for health care quality data: lessons from a CAHPS demonstration in Washington State. Int J Qual Health Care 1998;10(6):555-60.

vom Eigen K, Walker J, Edgman-Levitan S, Cleary P, Delbanco T. Carepartner experiences with hospital care. Med Care 1999;37(1):33-8.

Fowler E, MacRae S, Stern A, Harrison T, Gerteis M, Walker J, Edgman-Levitan S, Ruga W. The built environment as a component of quality care: Understanding and including the patient's perspective. Jt Comm J Qual Improv 1999;25(7):352-62.

vom Eigen K, Walker JD, Edgman-Levitan S, Cleary, PD, Delbanco, TL. A comparison of carepartner and patient experiences with hospital care. Families, Systems & Health 2000;18(2):191-202.

Smith F, Gerteis M, Downey N, Lewy J, Edgman-Levitan S. The effects of disseminating performance data to health plans: Results of qualitative research with the Medicare Managed Care. Health Serv Res 2001;36(3):643-63.

Delbanco T, Berwick D, Boufford JI, Edgman-Levitan S, Ollenschlager G, Plamping D, Rockefeller RG. Healthcare in a land called PeoplePower: Nothing about me without me. Health Expect 2001;4(3):144-50.

Teno JM, Casey VA, Welch LC, Edgman-Levitan S. Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. J Pain Symptom Manage 2001;22(3):738-51.

Teno JM, Clarridge B, Casey V, Edgman-Levitan S, Fowler J. Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage 2001;22(3):752-8.

Co JP, Ferris TG, Marino BL, Homer CJ, Perrin JM. Are hospital characteristics associated with parental views of pediatric inpatient care quality? Pediatrics 2003;111(2):308-14.

Rider EA, Longmaid HE. Giving constructive feedback. JAMA 1995;274:867.

Rider EA, Longmaid HE. Feedback in clinical medical education: Guidelines for learners on receiving feedback. JAMA 1995;274:938.

Rider EA, Longmaid HE. Guidelines for clinical teachers receiving feedback from learners. JAMA 1995;274:996.

Longmaid HE, Rider EA. Feedback and performance improvement in clinical medical education. JAMA 1995;274:1092.

Rider EA. Children aren't supposed to die. Medical Encounter 2000;15:7-8.

Rider EA, Federman DD, Hafler JP. Residents as teachers: a faculty development approach to program development. Med Educ 2000;34:955-6.

The Bayer-Fetzer Conference on Physician-Patient Communication in Medical Education (Makoul G, Rider EA, et al). Essential elements of communication in medical encounters: The Kalamazoo consensus statement. Academic Medicine 2001;76:390-3.

Rider EA, Perrin JM. Performance profiles: The influence of patient satisfaction data on physicians' practice. Pediatrics 2002;109:752-7.

Rider EA. It's because they didn't know our names. (A narrative on communication with children and families in the time of terrorism). Arch Pediatr Adolesc Med 2002;156:531.

Rider EA. Twelve strategies for effective communication and collaboration in medical teams. BMJ 2002;325:S45.

Hafler JP, Rider EA. Teaching materials for pediatric residents: Three modules - the student-teacher relationship, teaching in small groups, and giving and receiving feedback. In: Edwards JC, Friedland JA, Bing-You RG. Residents' Teaching Skills. New York: Springer Publishing Company; 2002: 187-245.

Rider EA. Danny's mother: a lesson in humility. (A narrative on helping parents with the loss of a child). Arch Pediatr Adolesc Med 2003;157:228.

Rider EA, Longmaid HE. A model for merging residency programs during health care consolidations: a course for success (a humanistic approach emphasizing communication). Med Educ 2003;37:794-801.

Rider EA, Lown BA, Hinrichs MM. Teaching communication skills. Med Educ 2004;38:558-9.

Rider EA. Teaching medicine through student self-reflection. Focus: Harvard Medical, Dental, and Public Health Schools 2004; February 20, 2004.

Rider EA. Does your heart go on vacation? (A narrative on communicating with pediatric patients). BMJ 2004;328:890.

Hatem D, Rider EA. Sharing stories: Narrative medicine in an evidence-based world. Patient Education and Counseling 2004; 54:251-3.

Rider EA. The examination (a teaching narrative on communicating with and examining young children). Arch Pediatr Adolesc Med. In press.

Rider EA. Nemo on vacation (a teaching narrative on communicating with children about unexpected circumstances). Arch Pediatr Adolesc Med. In press.


Reviews, Chapters and Editorials

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Edgman-Levitan S. Providing effective emotional support. In: Gerteis M, Edgman-Levitan A, Daley J, Delbanco TL, Eds. Through the Patient's Eyes, pp. 227-259. San Francisco: Jossey-Bass, Inc. Publishers; 1993.

Delbanco TL, Gerteis M, Edgman-Levitan S, Walker JD. Measuring and improving quality of care by collecting patients' reports. In: Evaluation of Quality Assurance in Medicine. Germany: Robert Bosch Foundation; 1995. 30:231-238.

Edgman-Levitan S. Personal and professional reflections on the value of patient centered care. Editorial: J Amer Assoc of Physician Assistants 1997;10(3): 9-21.

Gerteis M, Edgman-Levitan S, Walker JD, Stokes, DM, Cleary PD, Delbanco TL. What patients really want. Health Management Quarterly 1993;15:2-6.

Edgman-Levitan S. Healing Partnerships: The importance of including family and friends. In: Frampton S, Gilpin, L, Charmel L, Eds. Putting Patients First: Designing and Practicing Patient-Centered Care. San Francisco: Jossey-Bass, Inc. Publishers; 2003.

Edgman-Levitan S. Measuring and improving patient experiences of care. In: Ransom S, Joshi M, Nash D, Eds. The Healthcare Quality Book. Chicago, IL: Health Administration Press; 2004.

Edgman-Levitan S. Involving the patient in safety efforts. In: Leonard M, Frankel A, Simmonds T, Eds. Improving Patient Safety. Chicago, Il: Health Administration Press; 2004.


Books, Monographs and Textbooks

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Crapo J, Edgman-Levitan S, Hamilton M. Medicine and Pediatrics in One Book. Philadelphia: Hanley & Belfus; 1987.

Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL, Eds. Through the Patient's Eyes. San Francisco: Jossey-Bass Publishers, Inc.; 1993.

LeRoy L, Edgman-Levitan S, Gerteis M, Eds. Supportive Cancer Care: The Patient's Perspective. The Picker Institute, Boston, MA; 1996.

Edgman-Levitan S, Shaller D, McInnes K, Joyce R, Coltin K, Cleary P. The CAHPS Improvement Guide: Practical strategies for improving the patient care experience. CMS, Baltimore, MD; 2003

Today, primary care practitioners are providing more complex care in an increasingly busy environment. This severely limits their time and opportunity to educate patients about their health and chronic illnesses, as well as discuss other issues like prevention and wellness measures - a situation that is frustrating to both practitioners and patients alike.