Bibliography -> Patient and Family-Centered Care

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Greenfield S, Kaplan S, Ware JE, Jr. Expanding patient involvement in care. Effects on patient outcomes. Ann Intern Med 1985;102(4):520-8.

Fremont AM, Hargraves JL, Rowe RM, Jacobson NB, Ayanian JZ. Patient-centered processes of care and longterm outcomes of myocardial infarction. J Gen Intern Med 2001;16:800-8.

Robinson A, Thomson R. Variability in patient preferences for participating in medical decision making: Implication for the use of decision support tools. Qual Health Care 2001;10 Suppl 1:34-8

Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: Translating evidence into action. Health Aff (Millwood) 2001 Nov-Dec;20(6):64-78.

Coulter A, Cleary PD. Patients' experiences with hospital care in five countries. Health Aff (Millwood) 2001;20(3):244-52.

Frampton S, Charmel P, Gilpin L. Putting patients first. San Francisco: Jossey-Bass Publishers; 2002.

Cleary PD. A hospitalization from hell: A patient's perspective on quality. Ann Intern Med 2003;138(1):33-9.

Price R. A Whole New Life. New York: Plume Press; 1994.

Winawer S. Healing Lessons. Boston: Little Brown; 1998.

Bauby J-D. The Diving Bell and the Butterfly. New York: Alfred Knopf; 1997.

Fowles JB, Kind AC, Craft C, Kind EA, Mandel JL, Adlis S. Patients' interest in reading their medical record: Relation with clinical and sociodemographic characteristics and patients' approach to health care. Arch Intern Med 2004;164(7):793-800.

Ferguson T, Frydman G. The first generation of e-patients. BMJ 2004;328:1148-9.

Lester J, Prady S, Finegan Y, Hoch D. Learning from e-patients at Massachusetts General Hospital. BMJ 2004;328:1188-90.

Webster, PD, Johnson, B. Developing and sustaining a patient and family advisory council. Institute for Family-Centered Care, 2000.

Gilmore JH, Pine BJ 2nd. The four faces of mass customization. Harv Bus Rev 1997;75(1):91-101.

Houck S, Kilo C, Scott JC. Improving patient care. Group visits 101. Fam Pract Manag 2003;10(5):66-8.

Coulter A, Cleary PD. Measuring and improving patients' experiences: How can we make health care systems work for patients? In: Measuring Up: Improving Health System Performance in OECD Countries. Paris, France. OECD. 2002, Chapter 10, 211-224.

Wagner EH, Austin BT, Von Korff M. Improving outcomes in chronic illness. Manag Care Q 1996;4(2):12-25.

Leebov W, Scott G. Service and quality improvement: The customer satisfaction strategy for health care. Jossey-Bass; 1993.

Larson CO, Nelson EC, Gustafson D, Batalden PB. The relationship between meeting patients' information needs and their satisfaction with hospital care and general health status outcomes. Int J Qual Health Care 1996;8(5):447-56.

Leebov W, Scott G, Olson L. Achieving impressive customer service: 7 strategies for healthcare managers. Jossey-Bass; 2000.

Goodman J. Basic facts on customer complaint behavior and the impact of service on the bottom line. Competitive Advantage: ASQ Newsletter, Vol. 8:1, June 1999.

Krupat E, Fancey M, Cleary PD. Information and its impact on satisfaction among surgical patients. Soc Sci Med 2000;51(12):1817-25.

Charles C, Gauld M, Chambers L, O'Brien B, Haynes RB, Labelle R. How was your hospital stay? Patients' reports about their care in Canadian hospitals. CMAJ 1994;150(11):1813-22.

Seybold PB. Get inside the lives of your customers. Harv Bus Rev 2001;79(5):80-9,164.

Seelos L, Adamson C. Redefining NHS complaint handling--the real challenge. Int J Health Care Qual Assur 1994;7(6):26-31.

Von Korff M, Gruman J, Schaefer J, Curry SJ, Wagner EH. Collaborative management of chronic illness. Ann Intern Med 1997;127(12):1097-102.

Leebov W, Afriat S, Presha J. Service savvy healthcare: One goal at a time. Jossey-Bass / AHA Press; 1998.

Roth MS, Amoroso WP. Linking core competencies to customer needs: Strategic marketing of health care services. J Health Care Mark 1993;13(2):49-54.

Today, primary care practitioners are providing more complex care in an increasingly busy environment. This severely limits their time and opportunity to educate patients about their health and chronic illnesses, as well as discuss other issues like prevention and wellness measures - a situation that is frustrating to both practitioners and patients alike.