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Currently Browsing:2016

  • More Patients, Better Medicine

    Friday, November 18, 2016  Research

    Mass General Hospital’s Herscot Center for Tuberous Sclerosis Complex is an Evolving Model of Integrated Care for a Complex Disease

Videos

  • Diagnosing TSC

    Diagnosing TSC

    Neurologist Elizabeth Thiele explains that diagnosis of TSC is based on the clinical features common in the disorder.

  • Genetics Video

    Genetics

    Neurologist Elizabeth Thiele explains that TSC is a genetic disorder than can be passed down through a family.

  • Cause of TSC

    Cause

    Neurologist Elizabeth Thiele discusses the difference between spontaneous mutations and inherited TSC.

  • About TSC Introduction

    Introduction

    Neurologist Elizabeth Thiele discusses the variability and spectrum of tuberous sclerosis complex.

  • diagnosis and treatment of TSC

    About-Today

    Neurologist Elizabeth Thiele explains how new technology and research have changed the diagnosis and treatment of TSC.

  • How TSC Affects the body - brain

    Brain

    Neurologist Elizabeth Thiele describes the three types of brain findings that are common in people with TSC.

  • Autism

    Mental Health and Behavior: Autism

    In this video, neurologist Elizabeth Thiele explains that autism spectrum disorder is often associated with TSC.

  • How TSC Affects the Body: Eyes

    Eyes

    Neurologist Elizabeth Thiele provides an overview of how TSC can affect the eye.

  • How TSC Affects the Body: Heart

    Heart

    Pediatric cardiologist Ana Maria Rosales provides an overview of how TSC can affect the heart.

  • How TSC Affects the Body: Kidneys

    Kidneys

    Nephrologist David Steele provides an overview of how TSC can affect the kidneys.

  • How TSC Affects the Body: Lung

    Lung

    Pulmonologist Jayaraj Rajagopal discusses how lymphangioleiomyomatosis (LAM) can affect the lungs in people with TSC.

  • Mental Health and Behavior - Dr. Danforth

    Mental Health and Behavior - Dr. Danforth

    In this video, psychiatrist Nicole Danforth explains that mental health concerns can change as a person with TSC ages.

  • Mental Health and Behavior-Dr. Danforth

    Mental Health and Behavior-Dr. Danforth

    Psychiatrist Nicole Danforth provides an overview of the mental health and behavioral issues that are common in TSC.

  • Mental Health and Behavior-Treatment

    Mental Health and Behavior-Treatment

    Psychiatrist Nicole Danforth gives an overview of mental health and behavioral treatment options for people with TSC.

  • How TSC Affects the Body-Other

    How TSC Affects the Body-Other

    Neurologist Elizabeth Thiele explains that other parts of the body, such as teeth and bones, can be affected by TSC.

  • Seizures

    Seizures

    Neurologist Elizabeth Thiele explains that seizure disorders are very common in people with TSC.

  • Seizures-Treatment

    Seizures-Treatment

    Neurologist Elizabeth Thiele discusses the treatment options that are available for TSC-related seizures.

  • How TSC Affects the Body: Skin

    Skin

    Dermatologist Joop Grevelink provides an overview of how TSC can affect the skin.

  • How TSC Affects the Body: Skin

    Skin

    Dermatologist Joop Grevelink provides an overview of how TSC can affect the skin.

  • Genetic Counseling: What to Expect

    Genetic Counseling

    Genetic counselor Penelope Roberts explains what families can expect to learn during a genetic counseling session.

  • Medical Care

    Medical Care

    Neurologist Elizabeth Thiele talks about the importance of integrated care throughout an individual's life.

  • Isolation support

    Isolation

    Psychiatrist Nicole Danforth explains that connecting with others can help TSC families feel less isolated.

  • Genetic Counseling

    Genetic Counseling

    Genetic counselor Penelope Roberts explains that when inherited, the severity of TSC's symptoms cannot be predicted.

  • Support: Parents

    Support: Parents

    Psychiatrist Nicole Danforth explains that it's important for parents to take time for themselves and each other.

  • Talking about TSC: Preparing

    Talking about TSC: Preparing

    Psychiatrist Nicole Danforth discusses the importance of parents preparing to talk with children about TSC.

  • Support: Siblings

    Support: Siblings

    Psychiatrist Nicole Danforth explains the importance of educating and nurturing siblings who do not have TSC.

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    Support: Structure

    Psychiatrist Nicole Danforth explains that children with TSC benefit from structure and consistency at home.

  • Care: Talking

    Care: Talking

    Neuropsychologist Amy Morgan provides basic information on how parents can talk with their children about TSC.

  • Research

    Research

    Neurologist Elizabeth Thiele talks about the advances in science that have led to clinical drug trials for TSC.

  • Brad

    TSC Families: Brad

    Forty-year-old Brad's most troubling symptoms of TSC are cognitive limitations and mental health and behavior issues.

  • Jacob Video

    TSC Families: Jacob

    Jacob was diagnosed with TSC at five months old. Shortly after diagnosis he began having a serious type of seizure known as infantile spasms.

  • danica video

    TSC Families: Danica

    Thirteen year old Danica is mildly affected by TSC. Her most recognizable symptoms are her angiofibromas.

  • laurie video

    TSC Families: Laurie

    Thirty-eight-year-old Laurie has cognitive limitations. Her kidneys and lungs have also been affected by TSC.

  • Michael video

    TSC Families: Michael

    Michael is severely affected by TSC. For most of his life he has had seizures that have been difficult to control.

  • steve video

    TSC Families: Steve

    The diagnosis of Steve's sister Amy led to the diagnosis of many other family members spanning three and possibly four generations.

  • Troy video

    TSC Families: Troy

    Troy is a senior in high school. His seizures have had a serious impact on his ability to learn.

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