Trial Sites for the HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Sites marked "Recruiting" are currently enrolling participants. Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.

Site	State	Enrollment Status	Trial Contact Information
University of Arkansas	AR	Active, Not Recruiting	Shellah Rogers or 501-398-8622
Barrow Neurological Institute	AZ	Active, Not Recruiting	Whitney Dailey
Mayo Clinic Scottsdale	AZ	Active, Not Recruiting	Alissa Bojko Ph. 480-301-4902
Cedars-Sinai Medical Center	CA	Active, Not Recruiting	Sophia Mostowy
Forbes Norris MDA/ALS Research Center, California Pacific Medical Center	CA	Active, Not Recruiting	Daniela Sanchez
Kaiser Permanente, Los Angeles Medical Center	CA	Active, Not Recruiting	Mary H. Berganza
Loma Linda University Health	CA	Active, Not Recruiting	David Borg
University of California, Irvine	CA	Active, Not Recruiting	Pola Gaid
University of California, San Francisco	CA	Active, Not Recruiting	Zane Ashkar (415-501-0671)
University of Southern California	CA	Active, Not Recruiting	Salma Akhter (323-442-6221)
University of Colorado Anschutz	CO	Active, Not Recruiting	Recruitment Coordinator
Hospital for Special Care	CT	Active, Not Recruiting	Honora Dalamagas (860-612-6356)
Yale University	CT	Active, Not Recruiting	Erika Renkl (475-254-9169)
Georgetown University Pasquerilla Health Center	DC	Active, Not Recruiting	Gabby Law (202-417-8678)
George Washington University	DC	Active, Not Recruiting	Aspen Nelson
Mayo Clinic Florida	FL	Active, Not Recruiting	Jany Paulett
Nova Southeastern University	FL	Active, Not Recruiting	Donovan Mott
University of Florida Gainesville	FL	Active, Not Recruiting	Jessica Spana
University of Miami	FL	Active, Not Recruiting	Jessica Hernandez
University of South Florida College of Medicine	FL	Active, Not Recruiting	Jessica Shaw Sruthi Kommi Reddy
Augusta University	GA	Active, Not Recruiting	Brandy Quarles (706-721-0390)
Northwestern University	IL	Active, Not Recruiting	Emma Schmidt (312-503-4362)
University of Chicago	IL	Active, Not Recruiting	Deekshitha Turaka (773-702-4392)
Saint Alphonsus Regional Medical Center	ID	Active, Not Recruiting	Research Coordinator
Indiana University	IN	Active, Not Recruiting	Sandy Guingrich (317-963-7382)
University of Iowa Hospitals and Clinics	IA	Active, Not Recruiting	Emily Anderson
University of Kansas Medical Center	KS	Active, Not Recruiting	Katheryn Jennens Nick Staudenmier
University of Kentucky	KY	Active, Not Recruiting	Sura Al Hilfi
Ochsner Health Systems	LA	Active, Not Recruiting	Lisa Edmond (985-989-7182)
Johns Hopkins University	MD	Active, Not Recruiting	Kristen Riley
University of Maryland	MD	Active, Not Recruiting	N/A
Beth Israel Deaconess Medical Center	MA	Active, Not Recruiting	Teresa Capella 617-667-3098
Massachusetts General Hospital	MA	Active, Not Recruiting	Grace Laber or Gabriella Casagrande 617-643-3902
University of Massachusetts Medical School, Worcester	MA	Active, Not Recruiting	Catherine Douthwright Reylyn Tanchiatco
Henry Ford Health System	MI	Active, Not Recruiting	Anne Vallis (313-916-1364)
University of Michigan	MI	Active, Not Recruiting	Jayna Duell
Spectrum Health/ Corewell Health	MI	Active, Not Recruiting	Kate Shaneyfelt
Essentia Health	MN	Active, Not Recruiting	Brent Gavin (218-786-1220)
Mayo Clinic Rochester	MN	Active, Not Recruiting	Brenda Nelson
University of Minnesota Twin Cities ALS Research Consortium	MN	Active, Not Recruiting	Valerie Ferment
University of Missouri Health Care	MO	Active, Not Recruiting	N/A
Saint Louis University	MO	Active, Not Recruiting	Elizabeth 'Bitsy' Egan
Washington University School of Medicine	MO	Active, Not Recruiting	Rebecca Livigni
Neurology Associates, P.C. Somnos Clinical Research	NE	Active, Not Recruiting	Desirae Eschiti
University of Nebraska Medical Center	NE	Active, Not Recruiting	Katelyn Hilz
Dartmouth-Hitchcock Medical Center	NH	Active, Not Recruiting	Gina Kersey
Hackensack University Medical Center	NJ	Active, Not Recruiting	Michelle Williams Rebecca Phillip
Columbia University	NY	Active, Not Recruiting	Oneika Blackman
Dent Neurologic Institute	NY	Active, Not Recruiting	Anna Mattle 716-961-9217
Stony Brook University	NY	Active, Not Recruiting	Christine Pol
SUNY Upstate	NY	Active, Not Recruiting	Lena Deb
Atrium Health	NC	Active, Not Recruiting	Cynthia Lary or Meha Patel
Duke University	NC	Active, Not Recruiting	Michelle Ward
University of North Carolina	NC	Active, Not Recruiting	Said Alhassan
Wake Forest University Health Sciences	NC	Active, Not Recruiting	Mozhdeh Marandi Lauren Prince Richmond
Las Vegas Clinic	NV	Active, Not Recruiting	Kevin Daniels
Cleveland Clinic	OH	Active, Not Recruiting	Irys Caristo
Ohio State University	OH	Active, Not Recruiting	Ikram Hassan
University of Cincinnati	OH	Active, Not Recruiting	Kelli Godbey 513-558-4497
Providence Brain and Spine Institute ALS Center	OR	Active, Not Recruiting	Ashley Adamo
Jefferson Weinberg ALS Center, Thomas Jefferson University	PA	Active, Not Recruiting	Gemma Krautzel (267-582-6061)
Lehigh Valley Health Network	PA	Active, Not Recruiting	Kevin Stanley (610-402-9379)
Lewis Katz School of Medicine, Temple University	PA	Active, Not Recruiting	Kathleen Hatala
Penn State Hershey	PA	Active, Not Recruiting	Michele Hare
University of Pennsylvania	PA	Active, Not Recruiting	Matthew Burst
University of Pittsburgh Medical Center	PA	Active, Not Recruiting	Research Coordinator
Vanderbilt University Medical Center	TN	Active, Not Recruiting	Diana Davis
Houston Methodist	TX	Active, Not Recruiting	Aramide Balogun
Texas Neurology	TX	Active, Not Recruiting	Mohamad Asaad Nasri
University of Texas Health Science Center at San Antonio (UTHSCSA)	TX	Active, Not Recruiting	Randee Kent-Baron (210-450-0524)
University of Utah	UT	Active, Not Recruiting	Crystal Neate
University of Virginia	VA	Active, Not Recruiting	Mary Wagoner
Virginia Commonwealth University	VA	Active, Not Recruiting	Demetrius Carter
Swedish Medical Center	WA	Active, Not Recruiting	Will Rowles
University of Washington	WA	Active, Not Recruiting	Kisney Chapman (206-543-0454)
Medical College of Wisconsin	WI	Active, Not Recruiting	Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.

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If you're a researcher looking to collaborate with the Healey Center or a patient interested in participating in the Platform Trial, we want to hear from you!

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