ALS News & Events

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News

Currently Browsing:2018

  • Pinnacle Awards 2018

    Wednesday, February 14, 2018  Mass General

    Dr. Merit Cudkowicz is honored with the Greater Boston Chamber of Commerce Pinnacle Award for Achievement In The Professions.

Currently Browsing:2017

Currently Browsing:2016

  • ALS Raising Hope Golf Tournament and Auction Fundraiser

    Wednesday, September 28, 2016  Research

    I recently attended the 7th Annual ALS Raising Hope Golf Tournament and Auction Fundraiser in Port Kent, NY-this is an annual event I go to every year that raises money for MGH research in ALS. The ALS Raising Hope Foundation was started by Roger Long, who has ALS, and his wife Darlene in 2010. Since its inception it has grown to include more than 500 members. Thanks to the help of some very generous organizations and donors, the foundation has generated over $350,000 for research from fundraising events held in Upstate New York, Haymarket, Virginia, Sandia Park, New Mexico and Boston, Massachusetts.

  • A Message From Merit Cudkowicz, MD, Chief, Neurology Service, Director, ALS Clinic

    Thursday, August 18, 2016  Research

    Earlier this month, the ALS team met with the ALS One and the MDA here at Mass General. ALS ONE was initiated in January of this year by Kevin Gosnell, an ALS patient with an aggressive form of ALS.

Currently Browsing:2015

Currently Browsing:2014

Currently Browsing:2013

  • Strides in Understanding and Treating ALS

    Sunday, December 1, 2013  Mass General

    The Northeast ALS Consortium, co-founded by Massachusetts General Hospital researcher Merit Cudkowicz, MD, has spurred basic and translational research that has led to investigational therapies and improved patient outcomes.

Events

Currently Browsing:2018

Currently Browsing:2017

Currently Browsing:2015

  • MGH ALS Symposium

    Saturday, May 9, 2015

    Please join us for an open exchange of data and ideas to help us succeed in our mission to find cures for ALS and provide excellence in care for people and their families with ALS.

Currently Browsing:2012

Webinars

View NEALS ALS Webinars

Archived Webinars

  • September 27, 2018 NEALS Webinar: The Merging of Science and Technology in ALS Research
  • September 5, 2018 NEALS Webinar: The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS.
  • August 23, 2018 ALS Webinar: Radicava (after insurance approval)
  • July 10, 2018 Treating Respiratory Dysfunction in ALS
  • June 5, 2018 Nutrition in ALS: How to EAT MORE!
  • May 28, 2018 ALS Webinar - G-tube talk for patients and families
  • May 18, 2018 NEALS Webinar: Proactive and Collaborative Consideration of Augmentative Communication Tools and Strategies
  • May 7, 2018 The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS
  • April 12, 2018 NEALS Webinar: ALS Clinical Trial Pipeline Series – Spring 2018
  • April 3, 2018 NEALS Webinar: A Randomized Controlled Trial of Resistance and Endurance Exercise in Amyotrophic Lateral Sclerosis
  • March 15, 2018 Radicava: A Review of Clinical Trial Data and Drug Considerations
  • February 8, 2018 Fortitude ALS: A Phase 2 study of CK107 to treat respiratory and motor function in ALS
  • January 30, 2018 NEALS Webinar: Fortitude ALS - A Phase 2 study of CK107 to treat respiratory and motor function in ALS
  • January 24, 2018 NEALS Webinar: Building future success through biomarkers
  • January 10, 2018NEALS Webinar: The Centaur trial - a phase 2 trial of AMX0035 for the treatment of ALS
  • December 1, 2017NEALS Webinar: Actemra Clinical Trial Update
  • November 27, 2017 NEALS Webinar Reminder: Lazarus by Lunasin? Untangling an ALS X-File
  • November 2, 2017 NEALS Webinar - Environmental Risk Factors for Amyotrophic Lateral Sclerosis
  • October 19, 2017 NEALS Webinar: Power Wheelchairs - The Basics and Beyond
  • August 23, 2017 ALS Webinar - Radicava updates for patients and families
  • August 17, 2017 NEALS Webinar: Advanced Imaging Tools for Accelerating Drug Development in ALS Neurons, featuring Nazem Atassi, MD
  •  August 10, 2017 NEALS Webinar: A Phase II Study in ALS of the Effects of Mexiletine on Hyperexcitability of Motor Neurons
  • August 4, 2017 The ALS Association/Northeast ALS Consortium PALS Webinar: Retigabine Clinical Trial Update & Discussion with ALS Patient and Advocate Stephen Winthrop
  • July 13, 2017 Exercise and ALS: A Discussion of Research and Practical Recommendations
  • June 28, 2017 The ALS Association/Northeast ALS Consortium PALS Webinar: Results from the Immunosuppression in ALS Trial
  • May 22, 2017 Neals ALS Clinical Trial Pipeline Series Webinar Spring 2017
  • May 5, 2017 MGH ALS Clinic Webinar on Radicava
    The webinar features a presentation from senior leaders at MT Pharma America on RADICAVA's final label as approved by the FDA, as well as the patient access program we will be launching closer to product availability.
  • April 6, 2017: Answer ALS Webinar
    Directors, Jeff Rothstein, Merit Cudkowicz and Clive Svendsen present highlights from the Answer ALS's annual meeting. In order to view this webinar you must register first. Register here.

Videos

  • ALS slideshow

    ALS slideshow

    ALS slideshow

  • Ceftriaxone in ALS Webinar

    The Clinical Trial of Ceftriaxone in ALS

    A webinar recording explaining the design and scientific rationale behind the Clinical Trial of Ceftriaxone in Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease.

  • Ceftriaxone in ALS Video

    Ceftriaxone Trial Video

    A video explaining the design and scientific rationale behind the Clinical Trial of Ceftriaxone in Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease.

  • Neurology bicentennial logo

    Neurology Bicentennial Celebration, 2011 Part I

    Neurology Bicentennial Celebration, October 13, 2011. Past History of MGH Neurology; Overview of MGH Neurology; Telestroke and Acute Stroke Service; Neurodegenerative Disorders; Pediatric Neurology.

  • Neurology bicentennial logo

    Neurology Bicentennial Celebration, 2011 Part II

    Neurology Bicentennial Celebration, October 13, 2011. Clinical and research presentations on ALS, Stroke, Alzheimer’s Disease, and Parkinson’s Disease

  • respiratory assistance video

    Respiratory Assistance Video

    A video for ALS patients discussing and demonstrating uses of bipap and cough assist machines.

  • Welcome for Patients

    ALS Patient Video

    Nicole from Boston, shares her story about her battle with ALS and her strong desire to help others with the disease in the future. Mass General's ALS Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Amyotrophic Lateral Sclerosis.

  • Dr. Cudkowicz

    Patient Welcome from Dr. Cudkowicz

    Dr. Merit Cudkowicz, Neurology's Chief of Service, shares what makes the Mass General ALS Multidisciplinary Clinic so special.

  • Dr. Merit Cudkowicz, recipient of MDA LOU GEHRIG HUMANITARIAN AWARD

    Congratulations to Dr. Merit Cudkowicz for receiving the MDA LOU GEHRIG HUMANITARIAN AWARD

    Congratulations to Dr. Merit Cudkowicz, MGH Neurology Department Chairperson and Director, MGH ALS Clinic, for receiving the MDA LOU GEHRIG HUMANITARIAN AWARD. This award is given to a researcher, physician, or clinician who supports MDA/ALS research initiatives and clinical services and continues to fight the battle against ALS. View her acceptance speech where she discusses reasons for hope in the future of ALS treatments.

  • ALS Walk of Hope

    ALS Walk of Hope

    Learn how the Walk of Hope, sponsored by the ALS Raising Hope Foundation (www.alsraisinghope.org) raises funds for neurodegenerative disease research at MIND-and how researchers are using it to find cures.

  • ALS research

    Help us find a cure for ALS

    Learn why MGH ALS researchers have hope for a cure and the research they are undertaking to find it.

  • ALS Webinar

    MGH ALS Clinic Webinar on Radicava

    The webinar features a presentation from senior leaders at MT Pharma America on RADICAVA's final label as approved by the FDA, as well as the patient access program we will be launching closer to product availability.

  • Radicava video

    Radicava updates for patients and families

    August 23, 2017 ALS Webinar

  • ALS House Call Launch Event

    ALS House Call Launch Event

    Watch MGH physicians Tim Ferris, MD, Merit Cudkowicz, MD, and James Berry, MD speak at the ALS House Call program launch event.

  • ALS Nurses

    After Lunch Series Webinar: G-Tube Talk

    The “After Lunch Series” of webinars are a new initiative, led by the MGH-ALS Nurses, to provide a forum for discussion about common interventions and treatments for people living with ALS. The first webinar titled “G-Tube Talk” was held on Friday, May 18th from 1:30-2:30 pm. This webinar, and future ones, will be available on our website to be used as a resource and teaching tool by anyone living with ALS or helping someone who is living with ALS.

  • August 23, 2018 ALS Webinar

    Radicava updates for patients and families

    August 23, 2018 ALS Webinar

  • 4th Annual ALS Care and Research Symposium

    Your Day: 4th Annual ALS Care and Research Symposium

    Watch presentations on the newest updates in ALS patient and caregiver clinical care and research.

YouTube

Innovations in ALS Clinical Trials at Mass General

Dr. Merit Cudkowicz, Chief of Neurology at Mass General Hospital discusses innovations in ALS clinical trials since she started in the field in 1994.

Biomarkers to Accelerate ALS Therapy Development

Dr. Merit Cudkowicz, Chief of Neurology, discusses biomarkers that can help to diagnose patients quicker and target individualized treatments to patients.

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