News & Events at the Sean M. Healey & AMG Center for ALS at Mass General

Massachusetts General Hospital reports on news from the the Sean M. Healey & AMG Center for ALS at Mass General on clinical trials, progress in research, and recognition for clinical excellence.

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News Spotlights

Eggan and Lagier-Tourrenne

Harvard Research Reveals Potential Therapeutic Target for ALS

Congratulations to Healey Center for ALS Science Advisory Council Member and Professor of Stem Cell and Regenerative Biology at Harvard University Kevin Eggan, whose latest research suggests a new approach for developing a potential therapy for ALS. Clotilde Lagier-Tourenne MD, PhD, Assistant Professor of Neurology, also reveals related results in her paper, 'Premature polyadenylation-mediated loss of stathmin-2 is a hallmark of TDP-43-dependent neurodegeneration' recently published in Nature Neuroscience.

Clotilde Lagier-Tourenne MD, PhD

A Novel Therapeutic Target in Neurodegeneration

ClotildeLagier-Tourenne MD, PhD, Assistant Professor of Neurology, discusses the findings in her paper, 'Premature polyadenylation-mediated loss of stathmin-2 is a hallmark of TDP-43-dependent neurodegeneration' recently published in Nature Neuroscience. Learn More.

ALS Clinical Trial

FDA Awards Fast Track Status to Revalesio’s RNS60

ALS News Today covers the MGH phase 2 clinical trial for people diagnosed with ALS.
Learn more.

Scientific Advisory council

Leading Global ALS Scientists Meet to Defeat ALS

The scientific advisory council (SAC) at the new Sean M. Healey & AMG Center for ALS at Mass General held their first meeting to discuss ALS treatments.
Learn more.

ALS clinical trial

Ezogabine Treatment Shown to Reduce Motor Neuron Excitability in ALS Patients

Brian Wainger, MD, PhD presented initial clinical trial results at the Motor Neurone Disease Association meeting.
Learn More.

Healey Center for ALS at NASDAQ

Healey Center for ALS at NASDAQ

On December 21st Team Frate Train rang the NASDAQ opening bell for ALS Awareness. Ghazaleh Sadri-Vakili, PhD, director of our NeuroEpigenetics laboratory at MIND, joined them to represent our new Healey Center for ALS at Mass General.

Cudkowicz podcast

ALS research on the Charged Podcast

Dr. Cudkowicz shares her lifelong passion for ALS research on the Charged Podcast.
Learn more.

Charlie Baker

Gov. Charlie Baker endorses the Healey Center for ALS

Massachusetts Governor, Charlie Baker, addresses Sean Healey and Mass General, and welcomes the Healey Center to Massachusetts.
Learn more.

ALS

Former NFL Player Tim Green Has A New Opponent — ALS

NPR covers Tim Green's story and his fundraising campaign, Tackle ALS to help find a cure.
Learn more.

ALS

Tackle ALS

We are honored to team up with Tim Green to #TackleALS.
Learn more.

Healey Center for ALS

Sean M. Healey and AMG Center for ALS at Mass General

We are excited to announce the launch of the Healey Center for ALS - dedicated to discovering life-saving therapies for over 500,000 people worldwide who are affected by ALS.
Read the Boston Globe story.

ALS

Your Day: 4th Annual ALS Care and Research Symposium

View presentations on the newest updates in ALS patient and caregiver clinical care and research.
Watch the video.

ALS

ALS Integrated Magnetic Resonance Imaging

New Imaging Protocol Could Vastly Accelerate Clinical Trials for New ALS Treatments - Imaging research study features MGH investigator Nazem Atassi, MD. Read the article.

research

NIH renews NeuroNEXT for neurological clinical research

We are proud to be the Clinical Coordination Center for NeuroNext, under the leadership of our Neurology Department Chief Dr. Merit Cudkowicz and Marianne Chase. Learn more.

ALS

ALS House Call Program

Dr. Cudkowicz and Ron Hoffman of Compassionate Care ALS pictured at ALS House Call launch event. Mass General ALS experts believe the new program will help to improve outcomes for people with amyotrophic lateral sclerosis. Learn More.

ALS

After Lunch Series Webinar: G-Tube Talk

The “After Lunch Series” of webinars are a new initiative, led by the MGH-ALS Nurses, to provide a forum for discussion about common interventions and treatments for people living with ALS. The first webinar titled “G-Tube Talk” was held on Friday, May 18th from 1:30-2:30 pm. This webinar, and future ones, will be available on our website to be used as a resource and teaching tool by anyone living with ALS or helping someone who is living with ALS.
Watch the webinar

ALS

Salsa for a Cure

Thanks to our friends at Mastercard for nominating the MGH ALS Clinic to SalsaForACure. We’re dancing in honor and in memory of all our patients and our tireless fight to find the best innovative therapies and treatment for ALS globally. We nominate ALS ONE; the ALS Teams at Biogen, Biohaven, @Cytokinetics; @Holy Cross Hospital and all NEALS sites to Dance. Nominate. Share and Donate. Learn more about SalsaForACure, how to participate and its mission at salsaforacure.org.
Watch the video

ALS

Pinnacle Awards 2018

Dr. Merit Cudkowicz is honored with the Greater Boston Chamber of Commerce Pinnacle Award for Achievement In The Professions. Watch the Video

ALS

A Family Takes on ALS

A husband-wife team fights back against ALS with an impassioned commitment to activism, research and each other.
Learn More

ALS

Help us find a cure for ALS

Learn why MGH ALS researchers have hope for a cure and the research they are undertaking to find it.
Watch the video

ALS

Innovations in Care for Patients with ALS

Dr. Merit Cudkowicz, Chief of Neurology, discusses innovations in care for patients with ALS, such as the House Call program and TeleNeurology, at Mass General. Learn more.

ALS

Biomarkers to Accelerate ALS Therapy Development

Dr. Merit Cudkowicz, Chief of Neurology, discusses biomarkers that can help to diagnose patients quicker and target individualized treatments to patients. Learn more.

ALS

Innovations in ALS Clinical Trials at Mass General

Dr. Merit Cudkowicz, Chief of Neurology at Mass General Hospital discusses innovations in ALS clinical trials since she started in the field in 1994. Learn more.

Mass General Articles

Currently Browsing:2019

  • Researchers Identify a New Therapeutic Target for Neurodegenerative Diseases

    Wednesday, April 3, 2019  Research

    A research team at Massachusetts General Hospital wanted to determine how TDP-43 reduction or dysfunction affects the expression of its RNA targets.

  • Targeting Inflammation in Both ALS and Alzheimer's Disease

    Wednesday, April 3, 2019  Research

    Mark Albers, MD, PhD, from Massachusetts General Hospital, discovered a new mechanism that damages nerve cells and triggers an inflammatory response in people with ALS and those with Alzheimer’s disease (AD).

  • The Healey Center for ALS at Mass General Unites the World's Leading Experts to Bring Innovative Trial Approaches to the Field of ALS

    Wednesday, March 13, 2019  Mass General

  • Healey Center: The Bridge to a Cure for ALS

    Thursday, February 28, 2019  Mass General

    “Advances in the laboratory have created a pipeline of promising therapeutics,” Dr. Cudkowicz said. “The Healey Center is allowing us to, fast-track the most promising therapies and reduce the length of trials from years to months.”

  • Worthington Fore ALS

    Friday, February 8, 2019  Mass General

    A tight knit community from Bonita Springs, Florida is raising awareness and funds for Amyotrophic Lateral Sclerosis. Madeline and Brian Kennedy joined a group of friends and neighbors from Troy, New York; setting up homes in the golf community of Worthington Country Club in Bonita Springs, Florida. The community supports ALS research in friendship and solidarity with Madeline, who has ALS.

  • Leading Global ALS Scientists Meet to Defeat ALS

    Monday, January 7, 2019  Mass General

    Led by Merit Cudkowicz, MD, MSc, Director of the Healey Center for ALS and Chief of Neurology at Mass General, the SAC of 10 scientists from leading global institutions reviewed top ALS targets for treatments and approaches to accelerate therapy development and broaden access to treatments for people with ALS.

Currently Browsing:2018

  • New ALS center aims to change the field

    Friday, December 14, 2018  Mass General

    The MGH is spearheading a revolutionary new approach to amyotrophic lateral sclerosis (ALS) research and care with the opening of a new center, thanks to a $40 million donation – the third largest gift in the hospital’s history.

  • Mass General and former NFL player team up to take ALS out

    Sunday, November 18, 2018  Mass General

    Massachusetts General Hospital (MGH) is teaming up with former NFL football player, children's book author and sports TV commentator, Tim Green, in an exciting new social media campaign aimed at knocking down barriers in amyotrophic lateral sclerosis (ALS) and bringing research to the next level. Green was diagnosed with ALS in 2016 and since has dedicated his time and efforts to raising awareness about this devastating disease.

  • Pinnacle Awards 2018

    Wednesday, February 14, 2018  Mass General

    Dr. Merit Cudkowicz is honored with the Greater Boston Chamber of Commerce Pinnacle Award for Achievement In The Professions.

Currently Browsing:2017

Currently Browsing:2016

  • ALS Raising Hope Golf Tournament and Auction Fundraiser

    Wednesday, September 28, 2016  Research

    I recently attended the 7th Annual ALS Raising Hope Golf Tournament and Auction Fundraiser in Port Kent, NY-this is an annual event I go to every year that raises money for MGH research in ALS. The ALS Raising Hope Foundation was started by Roger Long, who has ALS, and his wife Darlene in 2010. Since its inception it has grown to include more than 500 members. Thanks to the help of some very generous organizations and donors, the foundation has generated over $350,000 for research from fundraising events held in Upstate New York, Haymarket, Virginia, Sandia Park, New Mexico and Boston, Massachusetts.

  • A Message From Merit Cudkowicz, MD, Chief, Neurology Service, Director, ALS Clinic

    Thursday, August 18, 2016  Research

    Earlier this month, the ALS team met with the ALS One and the MDA here at Mass General. ALS ONE was initiated in January of this year by Kevin Gosnell, an ALS patient with an aggressive form of ALS.

Currently Browsing:2015

Currently Browsing:2014

Currently Browsing:2013

  • Strides in Understanding and Treating ALS

    Sunday, December 1, 2013  Mass General

    The Northeast ALS Consortium, co-founded by Massachusetts General Hospital researcher Merit Cudkowicz, MD, has spurred basic and translational research that has led to investigational therapies and improved patient outcomes.

Events

Currently Browsing:2019

  • After Lunch Series

    Thursday, March 28, 2019

    Serving Up Cals for pALS with Mass General Dietitian Jamie Garry

  • After Lunch Series

    Thursday, March 28, 2019

    Serving Up Cals for pALS with Mass General Dietitian Jamie Garry

  • After Lunch Series

    Friday, February 15, 2019

    Welcome to Our House: Tips & Tricks for Navigating Your Home

  • Inaugural Neuroscience Symposium

    Friday, February 1, 2019

    Holy Cross Hospital Phil Smith Neuroscience Institute, together with Massachusetts General Hospital Neuroscience, present the Inaugural Neuroscience Symposium

Currently Browsing:2018

Currently Browsing:2017

Currently Browsing:2015

  • MGH ALS Symposium

    Saturday, May 9, 2015

    Please join us for an open exchange of data and ideas to help us succeed in our mission to find cures for ALS and provide excellence in care for people and their families with ALS.

Currently Browsing:2012

Webinars

View NEALS ALS Webinars

Archived Webinars

  • March 28, 2019 After Lunch Series: Serving Up Cals for pALS
  • February 15, 2019 After Lunch Series: Welcome to Our House - Tips & Tricks for Navigating Your Home
  • January 23, 2019 NEALS Webinar: The REFALS Trial: A Phase 3 Trial of Oral Levosimendan on Respiratory Function in pALS
  • January 17, 2019 NEALS Webinar: The VA and ALS: An overview for veterans with ALS and clinicians.
  • January 10, 2019 NEALS Webinar: The Trach Decision from an ALS Patient's Perspective
  • December 3, 2018 NEALS Webinar: Update on Stem Cell Trials in ALS.
  • September 27, 2018 NEALS Webinar: The Merging of Science and Technology in ALS Research
  • September 5, 2018 NEALS Webinar: The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS.
  • August 23, 2018 ALS Webinar: Radicava (after insurance approval)
  • July 10, 2018 Treating Respiratory Dysfunction in ALS
  • June 5, 2018 Nutrition in ALS: How to EAT MORE!
  • May 28, 2018 ALS Webinar - G-tube talk for patients and families
  • May 18, 2018 NEALS Webinar: Proactive and Collaborative Consideration of Augmentative Communication Tools and Strategies
  • May 7, 2018 The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS
  • April 12, 2018 NEALS Webinar: ALS Clinical Trial Pipeline Series – Spring 2018
  • April 3, 2018 NEALS Webinar: A Randomized Controlled Trial of Resistance and Endurance Exercise in Amyotrophic Lateral Sclerosis
  • March 15, 2018 Radicava: A Review of Clinical Trial Data and Drug Considerations
  • February 8, 2018 Fortitude ALS: A Phase 2 study of CK107 to treat respiratory and motor function in ALS
  • January 30, 2018 NEALS Webinar: Fortitude ALS - A Phase 2 study of CK107 to treat respiratory and motor function in ALS
  • January 24, 2018 NEALS Webinar: Building future success through biomarkers
  • January 10, 2018NEALS Webinar: The Centaur trial - a phase 2 trial of AMX0035 for the treatment of ALS
  • December 1, 2017NEALS Webinar: Actemra Clinical Trial Update
  • November 27, 2017 NEALS Webinar Reminder: Lazarus by Lunasin? Untangling an ALS X-File
  • November 2, 2017 NEALS Webinar - Environmental Risk Factors for Amyotrophic Lateral Sclerosis
  • October 19, 2017 NEALS Webinar: Power Wheelchairs - The Basics and Beyond
  • August 23, 2017 ALS Webinar - Radicava updates for patients and families
  • August 17, 2017 NEALS Webinar: Advanced Imaging Tools for Accelerating Drug Development in ALS Neurons, featuring Nazem Atassi, MD
  •  August 10, 2017 NEALS Webinar: A Phase II Study in ALS of the Effects of Mexiletine on Hyperexcitability of Motor Neurons
  • August 4, 2017 The ALS Association/Northeast ALS Consortium PALS Webinar: Retigabine Clinical Trial Update & Discussion with ALS Patient and Advocate Stephen Winthrop
  • July 13, 2017 Exercise and ALS: A Discussion of Research and Practical Recommendations
  • June 28, 2017 The ALS Association/Northeast ALS Consortium PALS Webinar: Results from the Immunosuppression in ALS Trial
  • May 22, 2017 Neals ALS Clinical Trial Pipeline Series Webinar Spring 2017
  • May 5, 2017 MGH ALS Clinic Webinar on Radicava
    The webinar features a presentation from senior leaders at MT Pharma America on RADICAVA's final label as approved by the FDA, as well as the patient access program we will be launching closer to product availability.
  • April 6, 2017: Answer ALS Webinar
    Directors, Jeff Rothstein, Merit Cudkowicz and Clive Svendsen present highlights from the Answer ALS's annual meeting. In order to view this webinar you must register first. Register here.

Videos

  • ALS slideshow

    ALS slideshow

    ALS slideshow

  • Ceftriaxone in ALS Webinar

    The Clinical Trial of Ceftriaxone in ALS

    A webinar recording explaining the design and scientific rationale behind the Clinical Trial of Ceftriaxone in Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease.

  • Ceftriaxone in ALS Video

    Ceftriaxone Trial Video

    A video explaining the design and scientific rationale behind the Clinical Trial of Ceftriaxone in Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig's disease.

  • Neurology bicentennial logo

    Neurology Bicentennial Celebration, 2011 Part I

    Neurology Bicentennial Celebration, October 13, 2011. Past History of MGH Neurology; Overview of MGH Neurology; Telestroke and Acute Stroke Service; Neurodegenerative Disorders; Pediatric Neurology.

  • Neurology bicentennial logo

    Neurology Bicentennial Celebration, 2011 Part II

    Neurology Bicentennial Celebration, October 13, 2011. Clinical and research presentations on ALS, Stroke, Alzheimer’s Disease, and Parkinson’s Disease

  • respiratory assistance video

    Respiratory Assistance Video

    A video for ALS patients discussing and demonstrating uses of bipap and cough assist machines.

  • Welcome for Patients

    ALS Patient Video

    Nicole from Boston, shares her story about her battle with ALS and her strong desire to help others with the disease in the future. Mass General's ALS Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Amyotrophic Lateral Sclerosis.

  • Dr. Cudkowicz

    Patient Welcome from Dr. Cudkowicz

    Dr. Merit Cudkowicz, Neurology's Chief of Service, shares what makes the Mass General ALS Multidisciplinary Clinic so special.

  • Dr. Merit Cudkowicz, recipient of MDA LOU GEHRIG HUMANITARIAN AWARD

    Congratulations to Dr. Merit Cudkowicz for receiving the MDA LOU GEHRIG HUMANITARIAN AWARD

    Congratulations to Dr. Merit Cudkowicz, MGH Neurology Department Chairperson and Director, MGH ALS Clinic, for receiving the MDA LOU GEHRIG HUMANITARIAN AWARD. This award is given to a researcher, physician, or clinician who supports MDA/ALS research initiatives and clinical services and continues to fight the battle against ALS. View her acceptance speech where she discusses reasons for hope in the future of ALS treatments.

  • ALS Walk of Hope

    ALS Walk of Hope

    Learn how the Walk of Hope, sponsored by the ALS Raising Hope Foundation (www.alsraisinghope.org) raises funds for neurodegenerative disease research at MIND-and how researchers are using it to find cures.

  • ALS research

    Help us find a cure for ALS

    Learn why MGH ALS researchers have hope for a cure and the research they are undertaking to find it.

  • ALS Webinar

    MGH ALS Clinic Webinar on Radicava

    The webinar features a presentation from senior leaders at MT Pharma America on RADICAVA's final label as approved by the FDA, as well as the patient access program we will be launching closer to product availability.

  • Radicava video

    Radicava updates for patients and families

    August 23, 2017 ALS Webinar

  • ALS House Call Launch Event

    ALS House Call Launch Event

    Watch MGH physicians Tim Ferris, MD, Merit Cudkowicz, MD, and James Berry, MD speak at the ALS House Call program launch event.

  • ALS Nurses

    After Lunch Series Webinar: G-Tube Talk

    The “After Lunch Series” of webinars are a new initiative, led by the MGH-ALS Nurses, to provide a forum for discussion about common interventions and treatments for people living with ALS. The first webinar titled “G-Tube Talk” was held on Friday, May 18th from 1:30-2:30 pm. This webinar, and future ones, will be available on our website to be used as a resource and teaching tool by anyone living with ALS or helping someone who is living with ALS.

  • August 23, 2018 ALS Webinar

    Radicava updates for patients and families

    August 23, 2018 ALS Webinar

  • 4th Annual ALS Care and Research Symposium

    Your Day: 4th Annual ALS Care and Research Symposium

    Watch presentations on the newest updates in ALS patient and caregiver clinical care and research.

  • After Lunch Series video

    After Lunch Series: Welcome to Our House - Tips & Tricks for Navigating Your Home

    The “After Lunch Series” of webinars are a new initiative, led by the MGH-ALS Nurses, to provide a forum for discussion about common interventions and treatments for people living with ALS.

  • Serving Up Cals for pALS

    Serving Up Cals for pALS – a webinar from the After Lunch Series with MGH ALS nurses for ALS patients. The “After Lunch Series” of webinars are a new initiative, led by the MGH-ALS Nurses, to provide a forum for discussion about common interventions and treatments for people living with ALS.

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