Wednesday, September 28, 2016

ALS Raising Hope Golf Tournament and Auction Fundraiser

A Message From Merit Cudkowicz, MD, Chief, Neurology Service, Director, ALS Clinic

group photo at Hope fundraiser

I recently attended the 7th Annual ALS Raising Hope Golf Tournament and Auction Fundraiser in Port Kent, NY-this is an annual event I go to every year that raises money for MGH research in ALS.  The ALS Raising Hope Foundation was started by Roger Long, who has ALS, and his wife Darlene in 2010.  Since its inception it has grown to include more than 500 members. Thanks to the help of some very generous organizations and donors, the foundation has generated over $350,000 for research from fundraising events held in Upstate New York, Haymarket, Virginia, Sandia Park, New Mexico and Boston, Massachusetts.

The golf tournament and auction is always such a great event, and this year was no exception.  I got in a bidding war over a David Ortiz signed bat –I didn’t win, but helped drive the price up!  Overall, the event attracted 160 golfers and close to 200 participants, and raised approximately $35,000.  They have such an incredible community in NY – so many people coming together to stamp out ALS. It was inspiring to see Roger participating in the event and looking so great.  I feel so close to this community who loves Roger, and the many other people who have had ALS in their area.

We are so grateful for the support from ALS Hope – with it we can continue to find new treatments and cures for ALS.  Learn more about how we have used past funds and the progress being made in the fight against ALS. To learn more about how you can support ALS research, please visit


Back to Top