Mass General Hospital

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Name of Treatment Program: Proton Therapy for Children

Short description: Mass General and the Department of Radiation Oncology have played a critical role in the development and refinement of proton radiotherapy. We have one of the largest pediatric programs in the world and have treated well over 1,600 children. We are the only proton center in New England, and an international referral center for pediatric radiation oncology.

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Call To Action 1: phone*Contact the Department of Radiation Oncology at:|617-724-1836

Call To Action 2: button*Support Our Research|https://giving.massgeneral.org/children/donate/radiation-oncology/

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Our approach:

MassGeneral Hospital for Children’s Department of Radiation Oncology provides radiation therapy to treat a variety of tumors in children using the most current techniques available. The Mass General Department of Radiation Oncology was the first proton center in the United States to pioneer proton radiotherapy in the pediatric population and has been treating children with fractionated proton radiotherapy since 1974.

The goal of radiation therapy is to destroy or shrink tumor cells without damaging surrounding healthy tissue, often together with surgery and/or chemotherapy depending on the tumor that we are treating.

Radiation plans are custom designed for each patient in order to target the tumor with maximum sparing of healthy tissue. At Mass General we have access to many types of radiation including photons, electrons, and protons. Proton therapy is the most common form of radiation used to treat pediatric patients at Mass General.

An integral part of one of the world’s most distinguished medical centers, Mass General’s Francis H. Burr Proton Therapy Center represents the forefront of technological advances in radiation therapy coupled with expert, comprehensive, and compassionate family-centered care. We employ image guidance with all of our proton treatments and use both passively scattered 3D conformal proton radiotherapy as well as pencil beam scanning. Proton radiosurgery is also readily available. Proton radiation therapy is unique, because more than any other type of radiation, protons allow radiation to be directed to a very limited area, which reduces potential damage to nearby healthy tissues. This is particularly useful for certain tumor types in children where long-term effects on growth and development are very important. Children’s bodies are more vulnerable to the effects of radiation, so any healthy tissue that can be spared becomes vital.

In addition to proton therapy, MassGeneral Hospital for Children also provides state-of-the-art stereotactic radiosurgery (SRS), stereotactic radiation therapy (SRT), and intensity modulated radiation therapy (IMRT). In all types of radiation, our radiation oncologists work with clinical physicists to bring the latest technological developments to our patients, from respiratory or cardiac gating, to cone-beam CT, and adaptive radiotherapeutic planning. Treatment plans are created using the most advanced computing and imaging techniques. Our radiation oncologists and physicists have access to a complete array of devices to carefully administer radiation to target tissues while minimizing radiation exposure to uninvolved tissue.

Multidisciplinary Treatment for Complex Diagnoses

We understand that having a sick child is stressful for the child, parents, siblings and other family members. It is our goal to provide the highest quality care, while considering the unique needs of children with cancer and their families. For this reason, we have a multidisciplinary team approach. Our experienced and dynamic team includes specialists in pediatric oncology, pediatric radiation oncology, pediatric surgery, pediatric neurosurgery, pediatric neuroradiology, pediatric neurology, pediatric anesthesia, pediatric rehabilitation, pediatric nursing, social work, child life, and other support staff. Massachusetts General Hospital is home to the Katherine Gallagher Integrative Therapies Program which offers wellness services, free of charge, including music, art, massage, and acupuncture. These wonderful activities are open to patients and their families.

Pediatric Oncology: The doctors in the Division of Pediatric Hematology and Oncology at MassGeneral Hospital for Children are our close partners in caring for our pediatric patients who come for proton radiotherapy, since many require chemotherapy during radiation treatment. Our pediatric colleagues provide personalized multidisciplinary, state-of-the-art care to children of all ages.

Spaulding Rehabilitation Hospital has a 12-bed private room pediatric unit which regularly treats our children who are in need of intensive inpatient rehabilitation. Commonly, children will be getting intensive rehabilitation while still getting their daily radiation treatments. The clinicians at Spaulding are experts in Posterior Fossa Syndrome as well as other neurological effects that can track with brain and spinal cord tumors. One parent at a time may stay overnight for as long as needed, and we have a welcoming visitation policy for family members, siblings and peers.

MassGeneral Hospital for Children Inpatient Facilities: Children admitted to the hospital for an overnight visit will stay in the Ellison Building at MassGeneral Hospital for Children. General medical and surgical-care patients stay on the 17th or 18th floor, complete with child- and adolescent-friendly rooms, playrooms and lounges. Each room also is equipped with a bathroom, shower and television. Laptop computers and game consoles also are available on inpatient floors. Each floor has a kitchen and laundry services for extended stays. Parents may stay overnight with their child in the room. See a video introduction to Ellison 17or Ellison 18, including who’s who on staff and accommodations for parents and guardians staying overnight with children.

State-of-the-Art Facilities in a World-Renowned Academic Medical Center

The Francis H. Burr Proton Therapy Center at Massachusetts General Hospital is the original proton therapy center in the United States. The proton radiation program builds on more than forty years of pioneering work and experience gained by physicians, physicists, researchers and clinical support staff at Harvard University’s Cyclotron Laboratory. In the 1960’s, the Harvard Cyclotron Laboratory was one of the world’s first facilities to explore the use of protons in the treatment of patients with cancer. More than 9,000 patients were treated from 1961 to its closing in 2002. Fully operational in 2001, the new proton facility, the Francis H. Burr Proton Therapy Center, was made possible by funding from Massachusetts General Hospital and the National Cancer Institute. Additionally, due to the success of the proton radiotherapy program, we will be opening a fourth proton treatment room in 2017.

Conditions Treated

Treatment is available for pediatric brain tumors including:

As well as other pediatric tumors outside of the central nervous system including:

Please visit the National Cancer Institute for more information about cancer in children and adolescents.

Compassionate, Family-Centered Care

At MassGeneral Hospital for Children, we know that the time of your child’s diagnosis and treatment is a very stressful one, and we strive to provide an open, welcoming environment. We believe that no one knows a child as well as the parent does: parents, along with primary care providers, become our partners in a child’s care and have an active voice in all treatment plans.

We believe it is important to have a comfortable place to for families to call home if they need to temporarily relocate for the duration of treatment. We understand what a stressful and overwhelming time this often is. Our team can help you find a place to stay, set up a tutor, and learn your way around Boston.

About this treatment:

Related conditions intro:

Information from the National Cancer Institute at the National Institutes of Health

Central Nervous System Tumors

Non-Central Nervous System Tumors

Support & Wellness:

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Spotlights: Donate - 1494

Contact: MGHfC Radiation Oncology - 1684

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tab2_content: <p>MGHfC Radiation Oncology</p> <p>Yawkey Center for Outpatient Care<br /> Francis H. Burr Proton Therapy Center<br /> 30 Fruit Street<br /> Boston, MA, 02114</p> <ul class="font-size-14 list-icons margin-top-2 margin-bottom-2"> <li><span class="icon-bus -boxed" aria-hidden="true"></span>Near Public Transit</li> <li><span class="icon-handicap -boxed" aria-hidden="true"></span>Accessible</li> </ul> <ul class="margin-top-2 margin-bottom-2"> <li><strong>Phone: </strong><span itemprop="telephone">617-724-1836</span></li> <li><strong>Fax: </strong><span itemprop="faxNumber">617-724-4808</span></li> </ul> <h3><strong>For prospective new patients:</strong></h3> <p><strong>If you're sending clinical information, please Fedex to:</strong><br />Pediatric Radiation Oncology<br />Yawkey Center for Outpatient Care<br />Francis H. Burr Proton Therapy Center<br />30 Fruit Street, Room 107<br />Boston, MA 02114</p> <h3 class="heading-3"><strong>For patients who will be starting treatment at MGH or are currently under treatment:</strong></h3> <h3 class="heading-4 heading-3"><strong>I need to speak with someone about&hellip;.</strong></h3> <p><strong>Urgent medical issues:</strong></p> <ul> <li>Weekdays (7:00 am&ndash;5:30 pm): Call the Proton Center at 617-726-0923 and ask to speak with a nurse.</li> <li>Weekends/After Hours: Call Pediatric Oncology at 617-726-2737 and ask to have the on-call physician paged.</li> <li>For patients who have not yet started radiation therapy, please call your child&rsquo;s local treating team.</li> </ul> <p>&nbsp;</p> <p><strong>My child&rsquo;s new patient appointment schedule:</strong><br /> Please call the pediatric radiation oncology intake team at 617-724-1836.</p> <p><strong>Accommodations and transportation:</strong><br /> Please call American Cancer Society Patient Navigator Greta Gaeta at 617-643-1742. Also please refer to the<strong> Housing and Transportation</strong> tab for more information.</p> <p><strong>How my child is coping (and concerns about other life stressors my child may be facing):</strong><br /> Please call Clinical Social Worker Laura Dickman, LICSW at 617-726-8187 and Child Life Specialist Kaitlyn Wallace, CCLS at 617-643-9233.</p> <p><strong>How I (the caregiver) am coping (and concerns about other life stressors I am facing as a caregiver):</strong><br /> Please call Clinical Social Worker Laura Dickman, LICSW at 617-726-8187.</p>

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tab3_label: Meet the Team

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tab3_content: <!--<iframe width="315" height="560" src="https://app.vidscrip.com/vidscrip/597b5cc6f22eca0007a52e30" frameborder="0" style="float: right;"></iframe>--> <p>&nbsp;</p> <!--<figure class="floating-image--right--large"><img src="/children/assets/images/polar_express.jpg" alt="Polar_Express photo " /></figure>--><iframe width="400" height="500" align="right" src="https://app.vidscrip.com/vidscrip/597b5cc6f22eca0007a52e30?autoplay=0" frameborder="0" style="float: right;"></iframe> <p>Faculty</p> <ul style="max-width: 500px;"> <li><a href="/children/doctors/doctor.aspx?id=17295">Torunn I. Yock, MD</a></li> <li><a href="/children/doctors/doctor.aspx?id=17152">Nancy J. Tarbell, MD</a></li> <li><a href="/children/doctors/doctor.aspx?id=17590">Shannon M. MacDonald, MD</a></li> <li><a href="/children/doctors/doctor.aspx?id=16431">Norbert Johannes Liebsch, MD, PhD</a></li> </ul> <p>&nbsp;</p> <p>Fellow</p> <ul style="max-width: 500px;"> <li><a href="/children/staff/staff.aspx?id=1237">Clayton Hess, MD</a></li> </ul> <p>&nbsp;</p> <p>Other Providers</p> <ul style="max-width: 500px;"> <li><a href="/children/staff/staff.aspx?id=1226">Kristen Ambrose, BSN, RN</a></li> <li><a href="/children/staff/staff.aspx?id=1228">Caroline Botelho, BSN, RN</a></li> <li><a href="/children/staff/staff.aspx?id=1071">Rachel Bolton, RN</a></li> <li><a href="/children/staff/staff.aspx?id=1229">Laura Dickman, LICSW</a></li> <li><a href="/children/staff/staff.aspx?id=1227">Ashley Draviam, MS, RD, LDN</a></li> <li><a href="/children/staff/staff.aspx?id=1283">Greta Gaeta, LSW</a></li> <!--<li><a href="/children/staff/staff.aspx?id=1249">Delimar Gordian</a></li>--> <li><a href="/children/staff/staff.aspx?id=1125">Beverly LaVally, RN, MS</a></li> <li><a href="/children/staff/staff.aspx?id=1294"> Elizabeth Mullin</a></li> <li><a href="/children/staff/staff.aspx?id=1295">Ruth Slattery</a></li> <li><a href="/children/staff/staff.aspx?id=1230">Kaitlyn Wallace, MS, CCLS</a></li> <!--<li><a href="/children/staff/staff.aspx?id=1253">Brittany Wynne</a></li>--></ul> <!--<iframe width="600" height="500" align="middle" src="https://app.vidscrip.com/vidscrip/597b5cc6f22eca0007a52e30?autoplay=0" frameborder="0" style="float: none;"></iframe>-->

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tab4_label: Conditions & Diseases

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tab5_label: What We Treat

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tab5_content: <h2>Information from the National Cancer Institute at the National Institutes of Health</h2> <h3>Central Nervous System Tumors</h3> <ul> <li><a class="externallink" href="http://www.cancer.gov/types/brain">Brain and Spinal Cord Tumor Overview</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/brain/patient/child-cns-embryonal-treatment-pdq">Medulloblastoma or Primitive Neuroectodermal Tumors (PNETs)</a>are also known as embryonal tumors.</li> <li><a class="externallink" href="http://www.cancer.gov/types/brain/patient/child-ependymoma-treatment-pdq">Ependymoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/brain/patient/child-astrocytoma-treament-pdq">Astrocytoma or Glial Tumors including Juvenile Pilocytic Astrocytoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/brain/patient/child-cranio-treatment-pdq">Craniopharyngioma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/brain/patient/child-cns-germ-cell-treatment-pdq">Central Nervous System (CNS) Germ Cell Tumors</a></li> </ul> <h3>Non-Central Nervous System Tumors</h3> <ul> <li><a class="externallink" href="http://www.cancer.gov/types/soft-tissue-sarcoma/patient/rhabdomyosarcoma-treatment-pdq">Rhabdomyosarcoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/soft-tissue-sarcoma/patient/child-soft-tissue-treatment-pdq">Other Soft tissue sarcoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/neuroblastoma">Neuroblastoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/bone">Bone cancer overview</a> <ul> <li><a class="externallink" href="http://www.cancer.gov/types/bone/patient/ewing-treatment-pdq">Ewing&rsquo;s Sarcoma</a></li> <li><a class="externallink" href="http://www.cancer.gov/types/bone/patient/osteosarcoma-treatment-pdq">Osteosarcoma</a></li> </ul> </li> <li><a class="externallink" href="http://www.cancer.gov/types/retinoblastoma">Retinoblastoma</a></li> </ul>

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tab6_content: <h2>Preparing for the New Patient Visit</h2> <h3>What is Proton Radiation ?</h3> <p>Proton radiation is a type of radiation that is unique in that it can be customized to maximize the dose to the tumor while minimizing the dose to normal structures. For that reason, it is especially advantageous for treating pediatric patients by targeting the tumor while minimizing radiation to nearby growing healthy tissue. Read more about the science of proton radiation therapy <a href="https://www.massgeneral.org/radiationoncology/BurrProtonCenter.aspx">here</a>. In certain cases, your child&rsquo;s pediatric radiation oncologist may decide that <a href="https://www.cancer.gov/publications/dictionaries/cancer-terms/def/photon-beam-radiation-therapy"> photon</a> radiation is more advantageous for your child&rsquo;s treatment.</p> <h3>Where will we stay when we come to MGH for our initial new patient visits?</h3> <p>For short term accommodation information (1 week or less), please visit our <a href="http://www.mghsocialwork.org/accommodations-list.pdf"> overnight accommodations list</a>. Some common short term housing options include MGH Beacon House &amp; Annex, <a href="http://hosp.org/">Hospitality Homes</a>, and nearby hotels, all of which are listed on the <a href="http://www.mghsocialwork.org/accommodations-list.pdf">overnight accommodations list</a>.</p> <p>For further housing assistance, please feel free to contact our American Cancer Society Patient Navigator, Greta Gaeta, at 617-643-1742.</p> <h3>What should we expect to happen on our first visit to the MGH Proton Therapy Center?</h3> <p>When you visit MGH&rsquo;s Proton Therapy Center, you and your child will meet your child&rsquo;s pediatric radiation oncologist, as well as other members of the treating team, such as our radiation oncology fellow/resident, one of our pediatric oncologists, our pediatric neurologist, one of our pediatric nurses, and our social worker and child life specialist. Your child will also have a CT simulation for radiation planning to design accurate radiation treatments, and other appointments for laboratory, radiology, or supportive services to help us comprehensively care for your child.</p> <p>Here is a <em><strong>sample</strong></em> new patient schedule:</p> <p><strong>Monday:</strong></p> <p>12 pm: &nbsp;&nbsp;&nbsp;MRI brain with (or without) anesthesia</p> <p><strong>Tuesday:</strong></p> <p>1:00 pm:&nbsp;&nbsp;&nbsp;Consult with the radiation oncologist and resident/fellow Meet one of our pediatric nurses</p> <p>2:30 pm:&nbsp;&nbsp;&nbsp;Meet with the social worker and child life specialist</p> <p>3:30 pm:&nbsp;&nbsp;&nbsp;Consult with the pediatric oncologist</p> <p><strong>Wednesday:</strong></p> <p>10:00 am:&nbsp;&nbsp;&nbsp; Fitting for mask; CT simulation for radiation planning with (or without) anesthesia</p> <p><strong>7-10 Days Later:</strong>&nbsp;&nbsp;&nbsp;Start proton radiation treatments</p> <p>Prior to coming to MGH, you will receive a schedule of appointments from the Pediatric Proton Coordinator with details of all new patient appointments, as well as instructions and your team's contact information. If you have any questions upon receiving the schedule, please call 617-724-1836.</p> <h3>What should we bring on our first visit to MGH?</h3> <p>Please bring the following to your new patient consultations:</p> <ul> <li>CDs of any new scans/imaging performed outside MGH</li> <li>Central line documentation (i.e.: port-a-cath card)</li> <li>List of current medications/allergies</li> <li>Recommended: additional caregiver to supervise patient/siblings during consult</li> </ul> <h3>What is a CT Simulation?</h3> <p>To develop the treatment plan for radiation therapy, the medical team will schedule your child for a CT simulation. The CT simulation is a &ldquo;rehearsal&rdquo; for radiation treatment that is completed with a CT scan. Some scans require contrast material during the scan to make certain organs more visible on the imaging.</p> <p>During the CT simulation, the patient will be asked to lay down on the treatment table. The radiation therapists will make small adjustments to straighten your child&rsquo;s body. Depending upon the location of the treatment, a mask or mold may be made during the CT simulation. This exact position will be reproduced daily during radiation treatment to ensure accurate and precise delivery of Proton therapy.</p> <p>After the simulation, your radiation therapists may mark your child&rsquo;s skin. These marks, or tattoos, are small ink dots placed superficially under the skin. These marks are used to allow the radiation therapists to position your child the same way for each treatment.</p> <p>Following the CT simulation, the radiation therapists will work with the physicists and engineers to develop the treatment plan and individual equipment for the radiation treatment to begin.</p> <h3>How can I talk with my child about their tumor and/or Proton Radiation?</h3> <p>Many families have questions about how to talk about radiation treatment with their child receiving treatment, as well as with siblings. The most important things are to be honest and to talk with children in a way that is appropriate for their age and developmental stage. In doing this, children can lead the conversation and ask questions they feel they need answered. If you do not know the answer to a question, that is okay. You can offer to make a list of questions with your child that you can ask the care team together.</p> <p>The social worker and child life specialist will meet with your family throughout treatment. Together with you, they can provide tips on language to use when talking with your children about diagnosis and treatment.</p> <p>Additionally, we have a book written by a former social worker in the Proton Center that is available to families. This book uses both pictures and text to tell the story of Proton Radiation.</p> <h2>Preparing for the radiation treatment period</h2> <h3>How can I arrange for tutoring services for my child to receive while on treatment?</h3> <p><strong>Eligibility</strong></p> <p>Students from anywhere in the United States who are unable to attend school for medical reasons are eligible for Home and Hospital Tutoring services. At the MGH Francis H. Burr Proton Therapy Center, we refer families to a community agency called Signet Education, LLC for academic support while a child is undergoing radiation treatment.</p> <p><strong>Contact information:</strong></p> <p><em>Signet Education, LLC</em><br /> Contact name: Rachel<br /> Email:<span style="text-decoration: underline;">tutor@signeteducation.com</span><br /> Phone: 617-714-5262<br /> Address: 1132 Massachusetts Avenue, Cambridge, MA 02138</p> <p><strong>Getting Started:</strong></p> <p>Families are asked to contact Signet Education, LLC directly to initiate services. We also ask a legal guardian to sign a written consent form for the MGH medical team to be able to provide necessary medical/treatment information to Signet Education, LLC to facilitate access to their services.</p> <p>Families can access information about Signet Education, LLC&rsquo;s medical tutoring services at the following site: https://signeteducation.com/medical Parents/caregivers will be asked to complete both online forms: (1) General Information Form; and (2) Release Waiver.</p> <h3>What should we bring to Boston with us when we relocate for our child&rsquo;s radiation treatments?</h3> <p>Please bring the following supplies:</p> <ul> <li>Extended supply of medications</li> <li>Feeding tube supplies (including extra tube)</li> </ul>

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tab8_content: <h2 class="heading-2">Pediatric Housing Options</h2> <p>At MassGeneral Hospital for Children, we understand that many families require relocation during Proton Therapy. We have a variety of options when it comes to housing in the Boston area. Listed below are some options that have worked well for many of the families previously treated at MGHfC. We have included some general information and requirements for each location to help you to identify the best option for your family. We strongly recommend you begin the process of confirming housing as soon as you know your family will be coming to Boston for treatment.</p> <h3 class="heading-2 heading-3">American Cancer Society</h3> <p>Proton Center American Cancer Society Patient Navigator Greta Gaeta, LSW helps Proton Therapy Center patients and families with information regarding transportation options and support groups. If you are traveling to MGHfC from afar, Greta can assist your family with information about places to stay while your child is undergoing treatment.</p> <p>Greta can also help you find resources available from The American Cancer Society such as caregiver supports, free cancer information center, and the Cancer Survivor Network, which is an online community for people with cancer and their families. The American Cancer Society can be contacted at <a href="https://www.cancer.org/treatment/support-programs-and-services/patient-lodging.html">https://www.cancer.org/treatment/support-programs-and-services/patient-lodging.html</a> or by calling (800) 227-2345.</p> <p>You can contact Greta Gaeta, LSW directly at 617.643.1742 or ask any of your team members for a referral.</p> <h3 class="heading-3"><a href="https://www.rmhbostonharbor.org/">Ronald McDonald House at Boston Harbor</a></h3> <p>Address: 250 First Ave #318, Charlestown, MA (2.1 miles from MGH)<br /> Phone Number: (617) 398-6458<br /> Price: No Fee<br /> Accommodations: Fully-furnished and equipped private apartments with two or more beds for families of pediatric patients with a shared space for communal gatherings, programming and fun<br /> Parking: One free on-site parking spot and free shuttle to the hospital<br /> Requirements:</p> <ul> <li>Patient must be 21 years old or younger</li> <li>Patient must live greater than 40 miles from the Ronald McDonald House</li> <li>Patient must be receiving treatment 2-3 times per week</li> <li>Family must complete a Request to Stay form, available online at <a href="http://www.rmhbostonharbor.org/">rmhbostonharbor.org/</a></li> </ul> <h3 class="heading-3"><a href="http://christophershaven.org/">Christopher's Haven</a></h3> <p>Address: One Emerson Place, Boston, MA (Adjacent to MGH)<br /> Phone Number: (857) 233-4178<br /> Price: $30 per night<br /> Accommodations: Fully-furnished and equipped private apartments with two or more beds for families of pediatric patients with &ldquo;The Loft&rdquo; as a space for communal gatherings, programming and fun<br /> Parking: Free parking available upon request from Christopher&rsquo;s Haven; once requested, parking is in the Government Center Garage<strong><br /> </strong>Requirements:</p> <ul> <li>Patient must be receiving a minimum of four weeks&rsquo; outpatient pediatric cancer treatment</li> <li>Primary caregiver must be at least 18 years of age and able to communicate in English</li> <li>Family must contact Catie Botting, Family Services Manager, at <a href="mailto:catiebotting@christophershaven.org">catiebotting@christophershaven.org</a> or by calling (857)233-4178</li> </ul> <h3 class="heading-3">MGH at the Beacon House</h3> <p>Address: 19 Myrtle Street, Boston MA (5 blocks from MGH)<br /> Phone Number: (617) 726-7679<br /> Price: $69-$118 per night<br /> Accommodations: Small studio with private bathroom and kitchen; MGH affiliated facility<br /> Parking: No on-site parking, parking discount available at MGH parking garages<br /> Requirements:</p> <ul> <li>Call at (617)726-7679 <!--or email <a href="mailto:slscott@partners.org">slscott@partners.org</a>--> to check availability</li> </ul> <h3 class="heading-3">MGH at the Beacon House Annex</h3> <p>Address: 19 Myrtle Street, Boston MA (5 blocks from MGH)<br /> Phone Number: (617) 726-7679<br /> Price: $40-$50 per night<br /> Accommodations: Private bedroom with a shared bathroom and kitchen; MGH affiliated facility<br /> Parking: No on-site parking, parking discount available at MGH Parking garages<br /> Requirements:</p> <ul> <li>Call <!--Sharon Scott-->at (617)726-7679 <!--or email <a href="mailto:slscott@partners.org">slscott@partners.org</a> --> to check availability</li> </ul> <p><a href="http://www.hosp.org/">Hospitality Homes</a></p> <p>Address: Location varies by placement<br /> Phone Number: (888)595-4678<br /> Price: $25 per night (suggested donation)<br /> Accommodations: Families are placed with host families who volunteer their home as a residence; amenities vary by location<br /> Parking: Varies by location<br /> Requirements:</p> <ul> <li>Families must live a minimum of 50 miles from Boston</li> <li>Hospitality Homes matches patients with host families</li> <li>Application available online at <a href="http://www.hosp.org">hosp.org</a> or by calling (888)595-4678</li> </ul> <!-- <h2 class="heading-2">School &amp; Radiation</h2> <h3 class="heading-3">Eligibility</h3> <p>Students from anywhere in the United States who are unable to attend school for medical reasons are eligible for Home and Hospital Tutoring services. At the MGH Francis H. Burr Proton Therapy Center, we refer families to a community agency called Signet Education, LLC for academic support while a child is undergoing radiation treatment.</p> <h3 class="heading-3">Contact information:</h3> <p><em>Signet Education, LLC<br /> </em>Contact name: Rachel<br /> Email: <a href="mailto:tutor@signeteducation.com">tutor@signeteducation.com</a> <br /> Phone: 617-714-5262<br /> Address: 1132 Massachusetts Avenue<br /> Cambridge, MA 02138</p> <h3 class="heading-3">Getting Started:</h3> <p>Families are asked to contact Signet Education, LLC directly to initiate services. We also ask a legal guardian to sign a written consent form for the MGH medical team to be able to provide necessary medical/treatment information to Signet Education, LLC to facilitate access to their services.</p> <p>Families can access information about Signet Education, LLC&rsquo;s medical tutoring services at the following site: <a href="https://signeteducation.com/medical">https://signeteducation.com/medical</a></p> <p>Parents/caregivers will be asked to complete both online forms (1) General Information Form, and (2). Release Waiver.</p>--> <p>&nbsp;</p> <!--<p><a href="https://www.cancer.org/treatment/support-programs-and-services/patient-lodging.html"><strong>American Cancer Society</strong></a> offers additional options for patients with cancer and their families, subject to conditions and availability; American Cancer Society can be contacted at <a href="https://www.cancer.org/treatment/support-programs-and-services/patient-lodging.html">https://www.cancer.org/treatment/support-programs-and-services/patient-lodging.html</a> or by calling (800) 227-2345</p>-->

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tab9_label: Clinical Trials

tab9_name: clinical-trials

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tab10_content: <p>The Francis H. Burr Proton Therapy center is actively conducting MGH lead clinical trials for pediatric cancer patients treated with Proton Therapy here at Massachusetts General Hospital. While all of these trials are led by doctors at Massachusetts General Hospital, a number of these studies enroll patients from numerous hospitals across the country adding to the cooperative nature of our research.&nbsp;<a href="/children/research/researchlab.aspx?id=1641">Learn more.</a></p> <p>Currently accruing trials:</p> <ul> <li><a href="https://clinicaltrials.gov/ct2/show/NCT01696721?term=PPCR&amp;rank=1">PPCR - A Multi Center Registry of Pediatric Patients treated with Proton Radiation Therapy</a> <br />DFCI# <strong>12-103</strong><br /> Principal Investigator: <a href="/children/doctors/doctor.aspx?id=17295">Dr. Torunn Yock</a><br /> Research Team (contact for questions): Sara Gallotto, Dillon Gaudet</li> <li><a href="https://clinicaltrials.gov/ct2/show/NCT01288235?term=10-206&amp;rank=2">A Phase II Study &ndash; of Proton Radiation Therapy for Pediatric Brain Tumors</a> <br />DFCI# <strong>10-206 </strong><br /> Principal Investigator: <a href="/children/doctors/doctor.aspx?id=17295">Dr. Torunn Yock</a><br /> Research Coordinator: Megan Giblin</li> <li><a href="https://clinicaltrials.gov/ct2/show/NCT00592293?term=05-326&amp;rank=1">A Phase II Study &ndash;of Proton Radiation Therapy for Pediatric Bone &amp; Non-Rhabdomyosarcoma Tumors&nbsp;</a> <br />DFCI # <strong>05-326 </strong><br /> Principal Investigator: <a href="/children/doctors/doctor.aspx?id=17295">Dr. Torunn Yock</a><br /> Research Coordinator (contact for questions): Jessica Nartowicz</li> <li><a href="https://clinicaltrials.gov/ct2/show/NCT00592592?term=04-188&amp;rank=1">A Phase II Study of Proton Radiation Therapy for &nbsp;Pediatric Rhabdomyosarcoma Tumors</a> <br />DFCI# <strong>04-188 </strong><br /> Principal Investigator: <a href="/children/doctors/doctor.aspx?id=17295">Dr. Torunn Yock</a><br /> Research Coordinator: Megan Giblin</li> <li><a href="https://clinicaltrials.gov/ct2/show/NCT02112617?term=13-443&amp;rank=1">A Phase II Study of Protons for Pediatric Neuroblastoma</a> <br />DFCI# <strong>13-443</strong><br /> Principal Investigator: <a href="/children/doctors/doctor.aspx?id=17590">Dr. Shannon MacDonald</a><br /> Research Coordinator (contact for questions): Jessica Nartowicz</li> </ul>

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tab11_label: Patient Stories

tab11_name: patient-stories

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tab11_content: <ul> <li> <h3 class="bold font-size-15"><a href="/children/news/newsarticle.aspx?id=5578">Olivia Finds Inner Strength, Grace Through a Complex Diagnosis</a></h3> <p>Perseverance and grace are qualities that people often learn through life&rsquo;s experiences. For 17-year-old Olivia Renzi, those qualities are personal keystones that allow her to transform stumbling blocks into stepping stones. <a href="/children/news/newsarticle.aspx?id=6132"> Read More. </a></p> </li> <li> <h3 class="bold font-size-15"><a href="/children/news/newsarticle.aspx?id=6132">Charlie's Story: Instilling Confidence Through a High Standard of Care</a></h3> <p>Charlie Beecher's family described the first two years of his life as joyously normal until Charlie developed belly pain. <a href="/children/news/newsarticle.aspx?id=5578"> Read More. </a></p> </li> <li> <h3 class="bold font-size-15"><a href="/children/news/newsarticle.aspx?id=5482">Ryan's Story: Inspired by Compassionate Care to Achieve His Dreams</a></h3> <p>When Ryan Schlosser received his master's degree this year, he thought of everyone who supported him along the way. <a href="/children/news/newsarticle.aspx?id=5482"> Read More. </a></p> </li> <li> <h3 class="bold font-size-15"><a href="/children/news/newsarticle.aspx?id=5458">Alex's Story: Family-Centered Care Helps Kids Be Kids Throughout Challenging Treatments</a></h3> <p>When Alex Sheehan was diagnosed with a brain tumor at age 10, staff at the Francis H. Burr Proton Therapy Center helped him simply be a kid during a challenging time. <a href="/children/news/newsarticle.aspx?id=5458"> Read More. </a></p> </li> </ul>

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