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See the full collection of patient resources from the Lurie Center for Autism.
Our mission is to treat individuals and support their families across the lifespan.
A family's journey through the world of autism spectrum disorder (ASD) can be daunting. It is often a struggle to sort the overload of information. It is difficult to know what theories to question and which sources to trust. It is also challenging to decide what applies to each situation, how to prioritize and take action.
The Lurie Center for Autism website aims to address common questions and concerns about ASD with evidence-based answers that have been reviewed by credentialed professionals on our staff. Our goal is to continually update this resource as new information is discovered, evidence develops and new research is published.
Coffee Convo Series, 2019-2020
Our commitment is to provide ongoing evidence-based learning and training opportunities for families and professionals. One of the ways we do this is with our popular Coffee Convo series, which runs monthly from September to May.Beyond the Brain: A Multi-System Inflammatory Subtype of ASD: How Does this Translate to Intervention?Wednesday, October 23rd 6:30 - 7:30pm Do you get overwhelmed by all the different theories of the cause of autism and all the different approaches to treatment? Join the Director of the Lurie Center for Autism, Chris McDougle, MD, to learn about new hypotheses about the causes of autism, and treatments that might begin to be helpful in subtypes of autism. The multidisciplinary team approach and the commitment to providing care across the lifespan for individuals with autism position the clinicians and researchers at the Lurie Center to better understand the causes of autism and develop new treatments.
Monthly Caregiver Workshops (download PDF here)
NEWLY DIAGNOSED - Monthly, 1st and 3rd Tuesdays, 12:00-1:00 pm, Free
Receiving a new diagnosis can be a life changing experience for caregivers. This interactive workshop is geared toward caregivers of young children. It provides support and general education about autism spectrum disorder, the treatments available, and community services available to families.
BEHAVIOR BASICS - Monthly, 4th Tuesday, 11:30-1:00 pm, $20/Family
Knowing how to help your child stay in control can be hard. This interactive workshop helps caregivers understand the basic principles of behavior in order to better manage challenging behaviors at home. Discussion will focus on evidence-based applied behavior analysis (ABA) and applying this methodology to daily life.
GUARDIANSHIP 101 -Monthly, 1st and 3rd Thursdays, 1:00-2:00 pm, $20/Family
The process of pursuing guardianship of children can be confusing. This workshop is designed for parents of children ages 14 years and older. It teaches the basics of the guardianship process, including types of guardianship, how to determine if your child needs a guardian, and how to prepare your child for turning 18.
GUARDIANSHIP 102 - Monthly, 2nd and 4th Thursdays, 11:00-12:30 pm, $50/Family
Completing all of the court-required paperwork can be overwhelming. This workshop is a hands-on group tutorial that includes the review of checklists for each attendee and required documentation. It also provides guidance with probate court processes and referrals to legal resources. This workshop can also be provided as a private individual family meeting, by appointment only, at a cost of $100/family.
GUARDIANSHIP 103 - Monthly, 4th Wednesday, 2:00-3:00 pm, $20/Family
Once you have successfully completed your guardianship appointment, one of the important duties for legal guardians in Massachusetts is reporting to the probate court. The initial Guardian Care Plan/Report is required within 60 days of the appointment, and then annually on the anniversary of the guardianship appointment. This workshop is a hands–on group tutorial that walks you through the questions to help you prepare the Guardian Care Plan/Report. (MPC 821)
TRANSITIONS - Monthly, 1st Wednesday, 2:00-3:00 pm, $20/Family
This workshop provides a thorough overview and discussion about transition to adult planning. Transitions is specifically designed for parents or caregivers of an adolescent who has autism spectrum disorder or a related developmental disability who would like to learn about important information, such as timelines, steps/tasks, services and resources.
Click the links below to view and download:
Autism Care Questionnaire (ACQ)
The Massachusetts General Hospital for Children's ACQ addresses non-medical needs of an individual with autism when in the hospital setting. Parents/guardians are encouraged to fill out the ACQ.
Topics Related to ASD - Find reliable information on topics often linked with ASD.
A Parent Mentoring Program - Connecting seasoned parents with parents seeking guidance.
Autism Spectrum Disorder Through the Lifespan
Click on the links to learn more:
Meet our MGH Patient Navigator for Autism
Karen A. Turner, MS, OTR/L, is our Patient Navigator for Autism. Click here to learn more about her and how she can help.
Social narratives, or "social stories" are tools that can help individuals with ASD better understand various environments. Click here to see our list of social narratives for medical appointments or procedures.
Video Tutorials: What to expect with Diagnostic Imaging
Having an MRI can sometimes cause anxiety, especially for patients that have never had one. Is an MRI loud? What are the benefits? What happens after the MRI? Click here to watch a few short videos created to help patients prepare for their diagnostic imaging appointment.
Additional Helpful Websites
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