How Do Doctors Treat Congenital Central Hypoventilation Syndrome?

It is important to diagnose and treat CCHS as early as possible. Starting treatment early can help your baby’s brain and body develop properly. The care team will talk with you about which treatments are right for your baby.

The most common treatment for CCHS is a ventilator (breathing machine). Some babies need a ventilator only while sleeping. Others need it more often. Other treatments for CCHS can include:

  • Not taking part in activities that require long periods of holding your breath. This can include swimming, breath-holding contests or other activities.
  • Staying away from drugs or alcohol when your baby is older.
  • Appointments with specialists (doctors who treat specific conditions or parts of the body)
  • In rare cases, a pacemaker (device inside the body that helps the heart pump properly) to keep blood flowing well throughout the body

Will My Baby's CCHS Be Cured?

There is no cure for CCHS. It is a lifelong condition. With early diagnosis and treatment, the care team can help your baby will grow and develop normally.

Learn more