These families have generously chosen to share their personal stories with the hope that doing so might help other families address similar issues. That is our hope as well. To see a video profile and essay about a particular family, select one of the stories below.
"He just shows us every day that he's willing to put up the fight to learn. How could we not be just so proud of that?"
Maureen, Michael's mom
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"I think epilepsy affects our whole family because we have feelings that most people don't have about seizures and stuff."
Abigail, Caroline's 11-year-old sister
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"You have to look not just at the seizures, but how the child is learning, interacting, and behaving in their world."
Elizabeth Thiele, MD, PhD
"If the neurologist suggests an EEG, that's the first thing you have to do. The test is very important, and it's a very reliable diagnostic tool."
Jay, Maya's dad
"The special diet keeps me healthy, and I don't have seizures anymore."
Evan, 9 years old
"I wanted to start karate class since Dr. Thiele mentioned it, and now I'm very happy because I'm with friends that have the same problem I do."
Cherinee, 11 years old
"Counting carbs is hard, but what's really good about the diet is it really takes care of your seizures."
Rose, 14 years old
"I feel a little bit nervous, but I really want the surgery. The rest of my life, I might not have seizures anymore. That would be really exciting for me."
Jeanny, 18 years old
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