These webinars and recorded symposium presentations are designed to complement our other patient education materials.
Ongoing Updates on the CENTAUR Trial
Platform Trial Update Webinar Series
Healey Center investigators hold weekly informal Q&A sessions about the HEALEY ALS Platform Trial, as well as monthly comprehensive updates.
COVID-19 and ALS at Mass General: An Informational Webinar
After Lunch Series ALS Webinars
Demystifying Palliative Care
Mass General physician and researcher Kate Brizzi, MD, joins Hannah Zivalic, RN, and Judi Carey, RN, to discuss palliative care and its benefits for ALS patients. They also explore what happens during a palliative care visit, and explain the difference between palliative care and hospice.
Previous Webinars from the After Lunch Series
Parenting at a Challenging Time: ALS PACT
PACT supports families as their children adjust to a parent’s ALS diagnosis, and helps parents meet their children’s practical and emotional needs.
Cals for pALS
People with ALS often have a hard time getting enough calories. Learn how you can make sure your body gets the nutrients you need.
Welcome to Our House: Tips and Tricks for Navigating Your Home
Nurses from the Healey Center for ALS at Mass General present tips to help you navigate your home safely, including ways to prevent falls and tools you can use to preserve independent living.
Learn about Radicava (Edaravone) an infusion medication that can slow ALS progression, including the research behind it and how it’s administered.
The G-Tube Talk
A presentation of patient options about the use of a gastrotomy tube (G-Tube, feeding tube).
Your Day: ALS Care and Research Symposium
On Saturday, October 30th 2021, Dr. Merit Cudkowicz and Dr. James Berry hosted the annual Your Day: ALS Care and Research Symposium. The latest updates in ALS research and care were presented by Drs. Merit Cudkowicz, James Berry, Sabrina Paganoni, Suma Babu, Katie Nicholson, Sarah Luppino, NP and Jennifer Scalia, NP.
Other Videos & Webinars
Mass General also recommends videos from EverythingALS and the series of educational webinars produced by the Northeast ALS Consortium (NEALS), covering a wide variety of research and care topics.