Herscot Center for TSC News and Events

THRIVE Events

2018 Adult Groups for Tuberous Sclerosis Complex patients

THRIVE offers patient groups for our patients with TS. Leigh Horne Mebel, MSW, LICSW is in charge of running the groups. Ms. Mebel is one of the Thrive program founders and has extensive experience with TS and with individual and group therapies. When patients participate in structured group programs they have opportunities to increase their coping skills, learn new ways to help them navigate our complex social world, and develop their ability to self-regulate. Connecting with other patients experiencing similar emotions and sharing similar challenges can be an opportunity to normalize experiences and also learn new skills.

As part of the Patient Groups, the Thrive Program provides mentorship training for interested participants. Patients who are mentored benefit from being provided with role models, encouragement from other patients with similar backgrounds, and help building social skills and a greater connectedness to others. Training of peer mentors is designed to help patients build their communication, planning and reasoning skills and strengthen their ability to take others' perspectives.

  • Ages 18 and over
  • Dates: Monthly. The group will be held the third Thursday of each month thereafter.
  • Location: MGH Main Campus: 175 Cambridge Street
  • Time: 4-5:15 pm

If you are interested in this event, please contact the THRIVE program at 617-724-2954.

News

Currently Browsing:2016

  • More Patients, Better Medicine

    Friday, November 18, 2016  Research

    Mass General Hospital’s Herscot Center for Tuberous Sclerosis Complex is an Evolving Model of Integrated Care for a Complex Disease

Videos

  • Diagnosing TSC

    Diagnosing TSC

    Neurologist Elizabeth Thiele explains that diagnosis of TSC is based on the clinical features common in the disorder.

  • Genetics Video

    Genetics

    Neurologist Elizabeth Thiele explains that TSC is a genetic disorder than can be passed down through a family.

  • Cause of TSC

    Cause

    Neurologist Elizabeth Thiele discusses the difference between spontaneous mutations and inherited TSC.

  • About TSC Introduction

    Introduction

    Neurologist Elizabeth Thiele discusses the variability and spectrum of tuberous sclerosis complex.

  • diagnosis and treatment of TSC

    About-Today

    Neurologist Elizabeth Thiele explains how new technology and research have changed the diagnosis and treatment of TSC.

  • How TSC Affects the body - brain

    Brain

    Neurologist Elizabeth Thiele describes the three types of brain findings that are common in people with TSC.

  • Autism

    Mental Health and Behavior: Autism

    In this video, neurologist Elizabeth Thiele explains that autism spectrum disorder is often associated with TSC.

  • How TSC Affects the Body: Eyes

    Eyes

    Neurologist Elizabeth Thiele provides an overview of how TSC can affect the eye.

  • How TSC Affects the Body: Heart

    Heart

    Pediatric cardiologist Ana Maria Rosales provides an overview of how TSC can affect the heart.

  • How TSC Affects the Body: Kidneys

    Kidneys

    Nephrologist David Steele provides an overview of how TSC can affect the kidneys.

  • How TSC Affects the Body: Lung

    Lung

    Pulmonologist Jayaraj Rajagopal discusses how lymphangioleiomyomatosis (LAM) can affect the lungs in people with TSC.

  • Mental Health and Behavior - Dr. Danforth

    Mental Health and Behavior - Dr. Danforth

    In this video, psychiatrist Nicole Danforth explains that mental health concerns can change as a person with TSC ages.

  • Mental Health and Behavior-Dr. Danforth

    Mental Health and Behavior-Dr. Danforth

    Psychiatrist Nicole Danforth provides an overview of the mental health and behavioral issues that are common in TSC.

  • Mental Health and Behavior-Treatment

    Mental Health and Behavior-Treatment

    Psychiatrist Nicole Danforth gives an overview of mental health and behavioral treatment options for people with TSC.

  • How TSC Affects the Body-Other

    How TSC Affects the Body-Other

    Neurologist Elizabeth Thiele explains that other parts of the body, such as teeth and bones, can be affected by TSC.

  • Seizures

    Seizures

    Neurologist Elizabeth Thiele explains that seizure disorders are very common in people with TSC.

  • Seizures-Treatment

    Seizures-Treatment

    Neurologist Elizabeth Thiele discusses the treatment options that are available for TSC-related seizures.

  • How TSC Affects the Body: Skin

    Skin

    Dermatologist Joop Grevelink provides an overview of how TSC can affect the skin.

  • How TSC Affects the Body: Skin

    Skin

    Dermatologist Joop Grevelink provides an overview of how TSC can affect the skin.

  • Genetic Counseling: What to Expect

    Genetic Counseling

    Genetic counselor Penelope Roberts explains what families can expect to learn during a genetic counseling session.

  • Medical Care

    Medical Care

    Neurologist Elizabeth Thiele talks about the importance of integrated care throughout an individual's life.

  • Isolation support

    Isolation

    Psychiatrist Nicole Danforth explains that connecting with others can help TSC families feel less isolated.

  • Genetic Counseling

    Genetic Counseling

    Genetic counselor Penelope Roberts explains that when inherited, the severity of TSC's symptoms cannot be predicted.

  • Support: Parents

    Support: Parents

    Psychiatrist Nicole Danforth explains that it's important for parents to take time for themselves and each other.

  • Talking about TSC: Preparing

    Talking about TSC: Preparing

    Psychiatrist Nicole Danforth discusses the importance of parents preparing to talk with children about TSC.

  • Support: Siblings

    Support: Siblings

    Psychiatrist Nicole Danforth explains the importance of educating and nurturing siblings who do not have TSC.

  • /assets/images/thumb/th_audio_thumb.gif

    Support: Structure

    Psychiatrist Nicole Danforth explains that children with TSC benefit from structure and consistency at home.

  • Care: Talking

    Care: Talking

    Neuropsychologist Amy Morgan provides basic information on how parents can talk with their children about TSC.

  • Research

    Research

    Neurologist Elizabeth Thiele talks about the advances in science that have led to clinical drug trials for TSC.

  • Brad

    TSC Families: Brad

    Forty-year-old Brad's most troubling symptoms of TSC are cognitive limitations and mental health and behavior issues.

  • Jacob Video

    TSC Families: Jacob

    Jacob was diagnosed with TSC at five months old. Shortly after diagnosis he began having a serious type of seizure known as infantile spasms.

  • danica video

    TSC Families: Danica

    Thirteen year old Danica is mildly affected by TSC. Her most recognizable symptoms are her angiofibromas.

  • Michael video

    TSC Families: Michael

    Michael is severely affected by TSC. For most of his life he has had seizures that have been difficult to control.

  • steve video

    TSC Families: Steve

    The diagnosis of Steve's sister Amy led to the diagnosis of many other family members spanning three and possibly four generations.

  • Troy video

    TSC Families: Troy

    Troy is a senior in high school. His seizures have had a serious impact on his ability to learn.

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