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Department of Medicine
Cox Building, 201
55 Fruit Street
Boston,
MA
02114
Phone: 617-724-3705
The Mass General HHT Center offers diagnosis, genetic counseling, multidisciplinary evaluations, and care coordination for people with this common (1/5000) genetic condition. Our team works with our patients’ primary-care provider to identify specialty care needs to improve outcomes. We strive to create an “HHT medical home” while offering a wide range of specialists, treatments and education our patients.
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Rendu-Weber Syndrome, often results in nosebleeds and other bleeding problems throughout the body. The Mass General HHT Center emphasizes the importance of the first step of making the correct diagnosis. We provide confirmatory genetic testing, genetic counseling, obtain multidisciplinary evaluations, and coordinate specialty care. Our team works with a patient’s primary-care provider to identify specialty needs, which improve care and outcomes.
Our center includes Mass General, MassGeneral Hospital for Children, and Massachusetts Eye & Ear. This collaboration allows us to provide specialized care across the lifespan.
Dr. Josanna Rodriguez-Lopez, Director of the Mass General HHT Center, and the rest of our team provide standard-setting HHT care for patients through a family centered approach.
Diagnosis of HHT includes:
Meet some of the multidisciplinary physicians who make up our team.
