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The Annual Conference for Patients and Families is organized by the Cancer Center’s Network for Patients & Families and the Maxwell V. Blum Cancer Resource Program and is made possible by a grant from the Conquer Cancer Coalition of Massachusetts.
Blum Cancer Resource Program
June 16, 2018 |Boston
Learning that you or your loved one has cancer is life-changing. The emotional challenges at the time of diagnosis, during treatment, and months or even years after treatment has ended may compel you to search for deeper meaning and purpose. You may have examined your life, questioned what really matters most to you, or taken steps to try to live fully in the moment.
How do you create meaning within your cancer experience? Many of us find value by telling our personal narratives, whether it be through art therapy, music therapy, or talk therapy; journaling; turning to faith and spirituality; or by giving back to others. We all have diverse ways of making our experiences meaningful. What else have others done to find a sense of meaning from their cancer experience? Learn from patients, caregivers, and care providers and connect with others as we discover new goals and possibilities together.
Mara Bloom, JD
Executive Director Mass General Cancer Center
Executive Director Mara Bloom opens the day by discussing the wide array of supportive care tools at the Cancer Center. She acknowledges those who helped to make this event possible.
Matthew Frigault, MD
Administrative Director of Cellular Therapy ServiceBMT/Cellular Therapy AttendingMass General Cancer Center
Dr. Frigault gives an overview of CAR T-Cell Therapy and its impact on patients while also sharing Mass General Cancer Center initiatives that strive to advance and better understand this exciting treatment.
David Ryan, MD
Chief, Division of Hematology Oncology, and Clinical DirectorMass General Cancer Center
Dr. Ryan highlights two concepts from his book, co-authored with Dr. Vicki Jackson, titled "Living with Cancer: A Step by Step Guide for Coping Medically and Emotionally with a Serious Illness." (1) prognostic awareness and (2) how your idea of time after you were diagnosed with cancer.
Megan Carleton, ATR, LMHC
Art TherapistMass General Cancer Center
Emily Doerr, MSW, LICSW
Oncology Social WorkerMass General Cancer Center
Lorrie Kubicek, MT-BC
Music TherapistMass General Cancer Center
Katrina Scott, MDiv, BCC
Oncology ChaplainMass General Cancer Center
Counselors across different disciplines come together to describe their work with patients, dispel misconceptions, and reflect the importance of making a connection with patients.
Mass General Cancer Center patients, who have worked with counselors on our provider panel, start off by introducing themselves.
Members of our panel share how they’ve found a sense of meaning in their cancer journeys. They talk about what matters most to them, how they have changed, and finish with advice they would give to someone newly diagnosed.
The panel answers questions from the audience.
Fill your heart with compassion, love, and wellness as Katrina Scott leads us in a guided meditation.
Radio Play-by-Play Voice of the New England Patriots
October 22, 2016 | Boston
The ways in which each of us cope with a cancer diagnosis can vary greatly. How do we get to and maintain a healthy frame of mind in the midst of change and in the face of the unknown? Do we tend to manage our emotions and stress differently at different points in our cancer journey?
Innovations, like immunotherapy, accelerate the development of cancer treatments and revolutionize patient care. While such innovations continue to offer hope to patients and families, many of us struggle with the challenge of changes in treatment and modalities. How do our expectations of innovations, treatment goals and reality impact our emotional well-being?
This conference will explore the impact of innovations on the patient experience as well as strategies for maintaining emotional balance through the ups and downs of treatment. Join us as we learn from each other the different ways we can be resilient by incorporating new hopes and expectations.
Our emcee and panel moderator is Candy O'Terry, Co-Founder & President, Boston Women in Media & Entertainment and Massachusetts Broadcasters Association 2015 Broadcaster of the Year.
Executive Director Mara Bloom welcomes everyone, discusses the wide array of supportive care tools at the Cancer Center and acknowledges those who helped to make this event possible.
Immunotherapy as Innovation
Krista Rubin, NP
Nurse Educator Mass General Cancer Center
Emcee Candy O’Terry introduces the day’s theme - advanced progress in how we treat cancer can not only provide us with hope it can also lead to uncertainty. How do we deal with these emotional ups and downs? Candy welcomes our first speaker, Krista Rubin. Krista gives an overview of what immunotherapy is and how it is changing the face of cancer care while also acknowledging the challenges that both patients and providers face in the realm of immune therapy.
View slide presentation
Joseph Greer, PhD
Program Director, Center for Psychiatric Oncology & Behavioral SciencesMass General Cancer Center
Dr. Greer explores the physical, emotional, social, functional, and existential conflicts that may come with a cancer diagnosis and what we can do to respond to them in a healthy way.
Coping Styles and StrategiesView slide presentation
Lauren DeMarco, MSW, LICSW
Whether you are the patient, caregiver, or family member, there are many sources of stress that require a response on a regular basis. The constant demand can be exhausting. Lauren DeMarco addresses the many ways we cope and how we can adapt our coping styles to different situations and transitions when your life is affected by cancer.
Co-Founder & President, Boston Women in Media & EntertainmentMassachusetts Broadcasters Association 2015 Broadcaster of the Year
2015 2014 2013
Overview: Like our understanding of cancer and the care required to treat cancer in its many forms, the concept of ‘survivorship’ or ‘living with cancer’ is in a state of redefinition. Each patient’s experience, even if they have the same diagnosis or are on the same treatment, can be vastly different from one another. How then do you define what living with cancer means? And, importantly, how do we honor each other’s individual experience and still find areas of common experience that can form the basis for community-building?
The conference is an opportunity to come together with other patients and families to talk about experiences and identify how, together, we can sustain an ongoing and supportive community. We hope to learn from each other so that all of us can learn to thrive, here at Mass General and beyond.
How are Advances in Cancer Medicine Individualizing the Cancer Experience?
Jeffrey M. Peppercorn, MD, MPH Director of the Mass General Cancer Center Survivorship Program
Shared Concerns, Shared Objectives: Towards the Concept of Community after the Cancer Experience
Don S. Dizon, MD Director of the Mass General Oncology Sexual Health Clinic
How Can Lifestyle Medicine Help With Quality of Life?
Betsy K. O'Donnell, MD Director of Lifestyle Medicine and Associate Director of the Mass General Cancer Center Survivorship Program
How Can We Move From Living With Cancer to Thriving?
Panel Discussion and Q&A
Overview: Being diagnosed with cancer changes one’s life forever. How we think, feel and cope is unique to each of us. By looking though each other’s eyes, we can see the ways others have made sense of living with cancer, helping us in turn to better understand our own experience. Listening can inspire us to reconsider our past, take action in the present, or prepare for challenges in the future.
Agenda: A Survivor’s Perspective Felicia Knaul, PhD, cancer survivor, health economist
Panel Discussion Patients, family members and Mass General staff who have lived with cancer share their experiences
An Oncologist’s Perspective: Don S. Dizon, MD, Director of The Oncology Sexual Health Clinic at Mass General Cancer Center gave a keynote lecture at the 2014 Survivorship Conference. His talk was entitled "After Cancer: Or, on being an oncologist".
Overview: Advances in understanding cancer and its treatment are in the news almost every day. Cancer research is being translated into new treatments more rapidly than ever before. People are living with cancer longer, but this positive change comes with new challenges. The conference explored the promise and possible challenges of these advances, discussed experience of living with cancer as a chronic illness and considered strategies for living well with cancer.
Agenda: Dr. Lecia Sequist, Mass General Cancer Center oncologist in the Center for Thoracic Cancers, gave a keynote lecture at the 2013 Survivorship Conference. Her talk was entitled "The Changing Landscape of Cancer Care".
Let’s Talk: A Panel of Clinicians and Patients Share their Perspectives Followed by Audience Discussion
Integrating Wellness Services into Cancer CareTerry McDonnell, ACNP-BC
Gentle Chair Yoga: An Experiential Introduction to Yoga and the Relaxation Response Jay Gupta, RPh, RYT, MTM specialist
Self-Compassion and Mindfulness for Patients and Family Members Susan Pollak, EdD
For further information, or if you have questions, please call (617) 724-1822, or email: email@example.com
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