Bleeding Disorders Center - Pediatric
Bleeding Disorders Center
Yawkey Center for Outpatient Care
55 Fruit Street
Boston,
MA
02114
Email: mghhtc@mgh.harvard.edu
Explore This Program
Overview & Mission
The Mass General Bleeding Disorders Center is a federally supported and fully accredited center that offers comprehensive care for children and adults with bleeding and clotting disorders. Our center operates within the Mass General Brigham for Children and Massachusetts General Hospital. Our mission is to provide exceptional care for patients with bleeding and clotting disorders of all ages throughout their lifespan. Each patient’s care is personalized based on the most recent research and advancements in treatment options. Our pediatric and adult medical teams work cooperatively to treat patients throughout their lifespan, providing exceptional care from birth through adulthood.
Conditions We Treat
- Hemophilia A (FVIII Deficiency)
- Hemophilia B (FIX Deficiency)
- Von Willebrand Disease
- Other Rare Factor Deficiencies
- Inherited Platelet Disorders
- Inherited Thrombophilias
- Venous Thromboembolisms including deep venous thrombosis and pulmonary embolisms
Comprehensive Care
The Mass General Bleeding Disorders Center is a comprehensive pediatric and adult program that promotes caring for the whole patient, including their physical, psychosocial, and mental well-being. We use a multidisciplinary approach to care to provide necessary services during your visit. Our goal is to provide each patient and family with an individualized care plan to reduce complications and hospitalizations and improve quality of life.
Our multidisciplinary team consists of:
- Adult and Pediatric Hematologists
- Hematology Nurse Practitioner
- Hematology-trained nurses
- Physical therapists
- Physiatrist (Physical and Rehabilitative Medicine)
- Social workers
- Clinical Research Coordinator
Specialty Clinics
In addition to our center, we offer other services that may benefit our bleeding disorder patients. After being seen at our Hemophilia Clinic, we may provide referrals to one of Mass General's many specialty clinics and services:
Learn more about the Mass General Bleeding Disorders Center, which operates within Mass General Brigham for Children and Mass General Hospital.
Blood Factor Program
The Massachusetts General Hospital Blood Factor Program was established as a non-profit factor home delivery service in 2014. Revenue generated through our Blood Factor Pharmacy Program has played an important role in the growth of our clinical staff, creating more opportunities to support our patients and expand our services to our community. We have partnered with New England Life Care as our preferred Blood Factor Contract Pharmacy.
Our Blood Factor Program allows our clinical staff the ability to ship blood factor products directly to our patient’s home, conveniently and effectively. This model enables our team to more oversight into getting our patients their medication. Our team handles all eligibility determinations, prior authorizations, deliveries, blood factor management, billing, and can troubleshoot any issues patients may experience quickly.
Our Blood Factor Program is elective. Patients are free to use whichever pharmacy service they choose. Eligibility for our program is performed by our billing staff through a thorough process of determining where each patients blood factor coverage lies within their plan. All plans have both a pharmacy benefit and a medical benefit, in which we must determine where your in-home blood factor injectable coverage is found.
Services We Provide
- Home delivery
- Access to all blood factor treatments
- Expansive selection of infusion supplies
- Coverage and coordination of home infusion nursing services
- Attentive customer service
- Ongoing clarification of insurance coverage for factor waste disposal program
- Patient Education Programs
- 24 hour phone contact
Why 340B Is Important
Section 340B of the Public Health Service Act requires pharmaceutical manufacturers participating in Medicaid to sell outpatient drugs at discounted prices to health care organizations that care for many uninsured and low-income patients. One of the health care organizations or covered entities this pertains to are Hemophilia Treatment Centers. 340B generated funds allow our center to stretch limited federal resources to reduce the price of outpatient pharmaceuticals for patients and expand health services to the patients and communities we serve. These savings are passed on to the patient directly in terms of discounted prices of incredibly expensive medications passed on to their insurance company.
Manufacturing Co-Pay Assistance Programs
All manufacturers of blood factor products have co-pay assistance programs all patients can and should enroll in. The Co-Pay Assistance programs are tremendously beneficial as they can be utilized to cover premiums and deductibles on plans.
As we know, blood factor is tremendously expensive. January 1st comes, and your deductible is reset. You may have $5000 deductible. If on January 2nd you are shipped your monthly blood factor medication, your deductible will be met on that shipment. The co-pay assistance program is designed knowing the great expense of the medication, to allow you to pay your deductibles with their co-pay assistance programs.
Research and Innovation
In addition to our clinical services, we provide access to the most recent advances in education and research.
Patient Resources and Education
- Anticoagulation Forum
- Hemophilia Alliance
- Hemophilia Federation
- Hemostasis and Thrombosis Research Society
- Hole in the Wall Gang
- National Blood Clot Alliance
- National Hemophilia Foundation
- NEHA
- Platelet Disorders Support Association (PDSA)
- Playing it Safe: Sports and Exercise
- Steps for Living
- The Foundation for Women and Girls with Blood Disorders
- Travel Resources Thrombosis and Hemostasis Societies of North America (THSNA)
Travel
If you are traveling domestically or internationally, please utilize the resources below to locate nearby HTCs:
Events
Get information from the Mass General Bleeding Disorders Center about upcoming programs and lectures.
Our Care Team
Meet the dedicated and passionate members of the Mass General Bleeding Disorders Center care team.
Contact Us
The Bleeding Disorders Center offers comprehensive evaluations and individualized care to children and adults with bleedings disorders due to hemophilia A, hemophilia B, rare clotting factor deficiencies and von Willebrand disease.