Our patients are our heroes, our friends and our inspiration. Every day, we learn from the extraordinary people who make MassGeneral Hospital for Children their choice for family-centered care. Many patients and families come away with strong relationships forged during their time with us, and deeply touching stories of their patient-care journey.
These are their stories, in their own words.
Our patients and their families share strong bonds with their clinicians and care teams at MassGeneral Hospital for Children, and we hear every day how happy they are that they came to us for their care. We wanted to find a way to more broadly share these incredible stories of how MGHfC’s family-centered care made a difference in these children’s lives. We invite you to browse these patient stories below, and learn more about the amazing families who trusted us to truly listen to their needs while delivering the best possible pediatric care. And if you have a story of your own you’d like share, please click the "Share your story" button to let us know!
Emilio’s story: Finding hope through comprehensive, personalized care
At almost 3 years old, Emilio Such was diagnosed with craniopharyngioma and after a craniotomy, needed radiation to shrink what remained of the tumor. At the Francis H. Burr Proton Therapy Center at MGHfC, Emilio marched in with a smile his care team was determined to keep on his face whenever possible.
Dayanara’s story: A team-based approach leads to greater confidence for girl with Down syndrome
When Dayanara Benitez, 10, comes to MGHfC, the exam room becomes a dance hall when she shows off her moves. Dayanara, who has Down syndrome, and her care team discuss life at home and at school, and her confidence is proof that she is thriving.
Nicholas’s story: Food challenges take toddler from restrictive diet to food freedom
At 4 months old, Nicholas Weeks tried peanut butter and broke out in hives. Allergy tests showed he was also allergic to milk, eggs, mustard and tree nuts. After various food challenges at MGHfC's Food Allergy Center, Nicholas is no longer considered allergic to many foods and his family found food freedom.
Wes's story: A chilly start leads to a brighter outcome
At 39 weeks, Weston Joujoute's mother Kiera's placenta stopped working. He was not getting enough oxygen. Doctors delivered Wes via emergency C-section and started him on therapeutic hypothermia for three days. Now a curious, babbling toddler, Wes is meeting all his milestones.
Grayson’s story: Hurdle by hurdle, toddler reaches the finish line with family-centered care.
At her 20-week ultrasound, Ashley McAlpine and her husband, Garret, learned their son, Grayson, had a congenital diaphragmatic hernia (CDH). After surgery and a harrowing 13 days on life support, Grayson embodies what it means to reach the finish line no matter the obstacles.
Shea's story: A preemie's testament to resiliency
When Shea Tufts was born premature at 27 weeks, the Neonatal care team did CPR for 12 nerve-wracking minutes to help her heart beat on its own. Now an energetic preschooler, Shea's rocky first few months paved the way for her to thrive.
Ethan's story: A partnership in healing
When Ethan Datsis, 17, smiles, everyone else follows suit. His parents, Ellen and Kurt, knew something wasn't right when Ethan, who has autism and is non-verbal, showed that he was in pain. A partnership with his care team and surgery with an uncertain outcome helped bring back the smile Ethan is known for.
Liam's story: Turning lemons into lemonade for IBD research
On Aug. 31, 2018, 9-year-old Liam Doherty organized his second annual lemonade stand to support the research of Jess Kaplan, MD, clinical director of the MassGeneral Hospital for Children Inflammatory Bowel Disease (IBD) Center.
Paul's story: Brain tumor patient leaves a handprint on the hearts of many in Pediatric Neurosurgery
Paul Murphy is a young man of few words and tremendous actions. After receiving an unexpected diagnosis at age 18, Murphy’s gratitude for his care team in Pediatric Neurosurgery at MassGeneral Hospital for Children is now set in concrete.
Sofia's story: Small, but mighty preschooler conquers her world amid rare diagnosis
Sofia is one of an estimated 500 children in the world diagnosed with Pitt Hopkins syndrome, a genetic disorder that affects development, speech and intellect. This little girl, although tiny in size, is proving she is capable of big things despite her rare diagnosis.
Claire’s story: Overcoming Cancer
Catch up with Claire who came to the Proton Therapy Center at MassGeneral Hospital for Children for treatment at age 20 months, and is now thriving in 8th grade!