Our patients are our heroes, our friends and our inspiration. Every day, we learn from the extraordinary people who make MassGeneral Hospital for Children their choice for family-centered care. Many patients and families come away with strong relationships forged during their time with us, and deeply touching stories of their patient-care journey.
These are their stories, in their own words.
Our patients and their families share strong bonds with their clinicians and care teams at MassGeneral Hospital for Children, and we hear every day how happy they are that they came to us for their care. We wanted to find a way to more broadly share these incredible stories of how MGHfC’s family-centered care made a difference in these children’s lives. We invite you to browse these patient stories below, and learn more about the amazing families who trusted us to truly listen to their needs while delivering the best possible pediatric care. And if you have a story of your own you’d like share, please click the button above to let us know!
A preemie's testament to resiliency: Shea's story
When Shea Tufts was born premature at 27 weeks, the Neonatal care team did CPR for 12 nerve-wracking minutes to help her heart beat on its own. Now an energetic preschooler, Shea's rocky first few months paved the way for her to thrive.
A partnership in healing: Ethan's story
When Ethan Datsis, 17, smiles, everyone else follows suit. His parents, Ellen and Kurt, knew something wasn't right when Ethan, who has autism and is non-verbal, showed that he was in pain. A partnership with his care team and surgery with an uncertain outcome helped bring back the smile Ethan is known for.
Turning lemons into lemonade
On Aug. 31, 9-year-old Liam Doherty organized his second annual lemonade stand to support the research of Jess Kaplan, MD, clinical director of the MassGeneral Hospital for Children Inflammatory Bowel Disease (IBD) Center.
Brain tumor patient leaves a handprint on the hearts of many in Pediatric Neurosurgery
Paul Murphy is a young man of few words and tremendous actions. After receiving an unexpected diagnosis at age 18, Murphy’s gratitude for his care team in Pediatric Neurosurgery at MassGeneral Hospital for Children is now set in concrete.
Small, but mighty: Sofia conquers her world amid rare diagnosis
Sofia is one of an estimated 500 children in the world diagnosed with Pitt Hopkins syndrome, a genetic disorder that affects development, speech and intellect. This little girl, although tiny in size, is proving she is capable of big things despite her rare diagnosis.