Our clinic for adults with Down syndrome (ages 21 and older) is now at full capacity.  In order to continue serving our established patients, we are no longer able to accept new adult patients until additional resources can be identified for clinic expansion.

When will you expand your adult clinic?

We definitely want to see more adults with Down syndrome! However, medical insurance reimbursement only covers about 30% of our clinical expenses. As such, our program is dependent on philanthropy in order to sustain our existing clinics and expand to additional ones. Once additional sources of giving are identified, we look forward to expanding our clinical services for adults with Down syndrome. If you would like to help make a difference toward this goal, please contact director Brian Skotko, MD.

Do you have a waiting list?

At this time, we are not establishing a waiting list. We will update our website, Facebook, and Twitter pages when our Adult clinic re-opens.

Who can see my adult with Down syndrome in the interim?

Regrettably, at this time, there are no other Down syndrome multidisciplinary specialty clinics in the Northeast that see adults with Down syndrome on an annual basis. Dr. Florence Lai is based at McLean Hospital and sees aging adults with Alzheimer’s disease. Dr. Julie Moran is affiliated with the Department of Developmental Services and sees aging adults with developmental disabilities. At this time, we encourage caregivers to work closely with the patient’s primary care physician. Excellent medical advice can be found in the book The Guide to Good Health for Teens and Adults with Down Syndrome, available in English and Spanish, at www.woodbinehouse.com. If the adult with Down syndrome is experiencing a medical emergency, we recommend that you call 9-1-1 or go to your closest emergency room.

My son or daughter is already an established patient. Can they continue to be seen?

Yes. All patients with Down syndrome who have had an appointment with one of our providers within the past 3 years can continue to be seen within our program. If the patient with Down syndrome is younger than 21, they will be offered a clinical spot in our adult clinic when they reach that age.

My adult son or daughter has been seen before by the Adult clinic. Can they continue to be seen?

Yes, provided they have had an appointment with one of our providers within the past 3 years. If it has been longer than three years, they are considered a new patient and will have to wait until our adult clinic is able to accept more patients.

Does this change anything about the younger clinics?

No. Our program will continue to see new and established patients in our Prenatal ClinicInfant & Toddler ClinicChild Clinic, and Adolescent & Young Adult Clinic.