What are the symptoms of Sotos syndrome?

The symptoms of Sotos syndrome can affect your child’s development and body. Symptoms can be different for every person.

Developmental symptoms

  • Developmental delays, especially motor skills such as crawling and walking
  • Poor coordination, which can improve
  • Poor feeding in infancy, which can improve
  • Problems with speech and language, including delays, stuttering and a monotone (flat) voice
  • Behavioral issues
  • Delays in cognitive development (how your child thinks, solves problems and makes decisions) that can improve

Physical symptoms

  • Larger-than-average size at birth, especially larger head size.
  • Usually taller than siblings and peers during childhood, but adult height is usually normal.
  • Distinctive facial appearance, including a large head; long, narrow face; high forehead; and small chin. The outside corners of the eyes point downward. The facial appearance changes over time.
  • Weak muscle tone (hypotonia)
  • Flexible joints
  • Flat feet
  • Curving of the spine (scoliosis)
Rev. 6/2018. This handout is intended to provide health information so that you can be better informed. It is not a substitute for medical advice and should not be used to treatment of any medical conditions.