Sotos Syndrome: What You Need to Know

What are the symptoms of Sotos syndrome?

The symptoms of Sotos syndrome can affect your child’s development and body. Symptoms can be different for every person.

Developmental symptoms

• Developmental delays, especially motor skills such as crawling and walking
• Poor coordination, which can improve
• Poor feeding in infancy, which can improve
• Problems with speech and language, including delays, stuttering and a monotone (flat) voice
• Behavioral issues
• Delays in cognitive development (how your child thinks, solves problems and makes decisions) that can improve

Physical symptoms

• Larger-than-average size at birth, especially larger head size.
• Usually taller than siblings and peers during childhood, but adult height is usually normal.
• Distinctive facial appearance, including a large head; long, narrow face; high forehead; and small chin. The outside corners of the eyes point downward. The facial appearance changes over time.
• Weak muscle tone (hypotonia)
• Flexible joints
• Flat feet
• Curving of the spine (scoliosis)

Rev. 6/2018. This handout is intended to provide health information so that you can be better informed. It is not a substitute for medical advice and should not be used to treatment of any medical conditions.