Resources to Learn About Klinefelter Syndrome

Below is a list of patient education resources where you can learn more about Klinefelter syndrome. If you have questions or concerns, ask your care team.

Organizations

• The Association for X and Y Chromosome Variations (AXYS)
  An advocacy, education and support organization for people with X and Y chromosome variations and their families. You will also find information about regional support groups, including the New England XXY Support Group (NEXXYS).
• The Hormone Health Network
  An online resource to help you and your providers have more informed discussions about hormone health. Has both general information and information specific to Klinefelter syndrome.
• Genetic and Rare Diseases Information Center (GARD)
  GARD is a government-funded program that provides public access to current, reliable and easy-to-understand information about rare or genetic diseases. Get information specific to Klinefelter syndrome.

Websites and Blogs

• Living with XXY
  Blogger and Klinefelter syndrome advocate Ryan Bregante shares his story and tips for living with the condition.

Rev. 12/2018. MassGeneral Hospital for Children and Massachusetts General Hospital do not endorse any of the brands listed on this handout. This handout is intended to provide health information so that you can be better informed. It is not a substitute for medical advice and should not be used to treatment of any medical conditions.