Healey Center for ALS
ALS Parenting At a Challenging Time (PACT) Program
The ALS PACT Program provides parent guidance to support parents in addressing the illness-related challenges faced by their children and adolescents.
The ALS PACT program has been made possible through support from the EGL Charitable Foundation.
Consistent with the family-based approach at the Healey Center for ALS, the ALS PACT Program aims to support parents and their co-parents. A child psychologist or psychiatrist meets privately with parents to understand their children’s (infants through young adults) unique strengths and needs to provide developmental guidance and support. We recognize that parents are experts on their own children and families. We work collaboratively with parents and the ALS care team to help them anticipate what to expect in terms of their children’s ongoing adjustment, how to plan communication around a parent’s medical condition, when to feel comfortable with a child’s coping, and when to consider additional resources or interventions. This service is available at no charge to patients receiving care at the Healey Center for ALS. We work with patients through in-person, phone, or virtual appointments.
The ALS PACT Program is based on the successful PACT Program at the Mass General Cancer Center.
The ALS PACT Program is based on the successful PACT Program at the Mass General Cancer Center.
Our Team
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- Associate Director, Marjorie E Korff Parenting At a Challenging Time (PACT) Program
- Psychologist, Division of Child and Adolescent Psychiatry, Department of Psychiatry
- Assistant Professor of Psychology, Harvard Medical School
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- Director, Marjorie E. Korff PACT Program (Parenting At a Challenging Time)
Patient & Family Resources
Our patient and family resources can help you understand and manage life with ALS.