Trial Sites for the HEALEY ALS Platform Trial
Sites Now Enrolling for HEALEY ALS Platform Trial
The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.
The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.
Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).
Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.
Map of Participating Sites
List of Participating Sites
Sites marked "Recruiting" are currently enrolling participants. Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.
|
Site |
State |
Enrollment |
Trial Contact Information |
|
Barrow Neurological Institute |
AZ |
Recruiting |
Whitney Dailey |
|
Cedars-Sinai Medical Center |
CA |
Recruiting | Sophia Mostowy |
|
Forbes Norris MDA/ALS Research Center, |
CA |
Recruiting |
|
|
Kaiser Permanente, Los Angeles Medical Center |
CA |
Recruiting |
Mary H. Berganza |
|
Loma Linda University Health |
CA |
Recruiting |
David Borg |
|
University of California, Irvine |
CA |
Recruiting | Pola Gaid |
|
University of California, San Francisco |
CA |
Recruiting |
|
|
University of Southern California |
CA |
Recruiting |
Salma Akhter (323-442-6221) |
|
University of Colorado Anschutz |
CO |
Recruiting |
Recruitment Coordinator |
|
Hospital for Special Care |
CT | Recruiting | Natalie Cartwright |
|
Georgetown University Pasquerilla Health Center |
DC | Recruiting | |
|
George Washington University |
DC | Recruiting | |
|
Mayo Clinic Florida |
FL |
Active, |
Jany Paulett |
|
Nova Southeastern University |
FL | Recruiting | Donovan Mott |
|
Phil Smith Neuroscience Institute, |
FL | Recruiting | Ashley Stepler |
|
University of Florida Gainesville |
FL | Recruiting | Jennifer Steshyn |
|
University of Miami |
FL | Recruiting | Jessica Hernandez |
|
University of South Florida College of Medicine |
FL |
Recruiting |
Jessica Shaw Sruthi Kommi Reddy |
|
Augusta University |
GA |
Recruiting |
Brandy Quarles (706-721-0390) |
|
Emory University |
GA | Active, Not recruiting |
N/A |
|
Northwestern University |
IL |
Recruiting |
Emma Schmidt (312-503-4362) |
|
University of Chicago |
IL |
Recruiting |
Deekshitha Turaka (773-702-4392) |
|
Saint Alphonsus Regional Medical Center |
ID |
Recruiting |
Research Coordinator |
|
Indiana University |
IND |
Active, |
Sandy Guingrich (317-963-7382) |
|
University of Iowa Hospitals and Clinics |
IA |
Recruiting |
Emily Anderson |
|
University of Kansas Medical Center |
KS |
Recruiting |
Katheryn Jennens Nick Staudenmier |
|
University of Kentucky |
KY |
Recruiting |
Sura Al Hilfi |
|
Ochsner Health Systems |
LA |
Active, |
|
|
Johns Hopkins University |
MD |
Recruiting |
Kristen Riley |
|
University of Maryland |
MD |
Recruiting |
Vikram Nambiar |
|
Beth Israel Deaconess Medical Center |
MA |
Recruiting |
Teresa Capella |
|
Massachusetts General Hospital |
MA | Recruiting | Suhina Patel (617-643-3902) |
|
University of Massachusetts Medical School, Worcester |
MA |
Recruiting |
|
|
Henry Ford Health System |
MI |
Recruiting |
Beverley Duthie Anne Vallis |
|
University of Michigan |
MI |
Recruiting |
Jayna Duell |
|
Spectrum Health |
MI | Active, Not recruiting |
Sehrish Khan |
|
Essentia Health |
MN |
Recruiting |
|
|
Mayo Clinic Rochester |
MN |
Recruiting |
Brenda Nelson |
|
University of Minnesota |
MN |
Recruiting |
Valerie Ferment |
|
University of Missouri Health Care |
MO |
Active, Not recruiting |
Natalie Taylor |
|
Saint Louis University |
MO |
Active, |
Susan Brown |
|
Washington University School of Medicine |
MO |
Recruiting |
Rebecca Livigni |
|
Neurology Associates, P.C. |
NE |
Active, |
Desirae Eschiti |
|
University of Nebraska Medical Center |
NE |
Recruiting |
|
|
Dartmouth-Hitchcock Medical Center |
NH |
Recruiting |
Jessica Kemmet |
|
Hackensack University Medical Center |
NJ |
Recruiting |
|
|
Columbia University |
NY |
Active, |
Oneika Blackman |
|
Stony Brook University |
NY |
Recruiting |
Christine Pol |
|
SUNY Upstate |
NY |
Recruiting |
Lena Deb |
|
Duke University |
NC |
Recruiting | Michelle Ward |
|
Wake Forest University Health Sciences |
NC |
Recruiting | Mozhdeh Marandi Lauren Prince Richmond |
|
Las Vegas Clinic |
NV |
Active, not recruiting | Richa Priya Jha (702-505-4230) |
|
Cleveland Clinic |
OH |
Recruiting | Matt Tainer or Irys Caristo |
|
Ohio State University |
OH | Recruiting | |
| University of Cincinnati | OH | Recruiting | |
|
Providence Brain and Spine Institute |
OR |
Recruiting |
Ashley Adamo |
|
Jefferson Weinberg ALS Center, |
PA |
Recruiting |
|
|
Lehigh Valley Health Network |
PA |
Recruiting |
Kevin Stanley (610-402-9379) |
|
Lewis Katz School of Medicine, |
PA |
Recruiting |
Kathleen Hatala |
|
Penn State Hershey |
PA |
Recruiting |
Michele Hare |
|
University of Pennsylvania |
PA |
Recruiting | Matthew Burst |
|
University of Pittsburgh Medical Center |
PA |
Recruiting |
Jaquelynn Jones (412-864-2873) |
|
Vanderbilt University Medical Center |
TN |
Recruiting |
Diana Davis |
|
Houston Methodist |
TX |
Recruiting |
|
|
Texas Neurology |
TX | Recruiting | Mohamad Asaad Nasri |
|
University of Texas Health Science Center |
TX |
Recruiting | Randee Kent-Baron (210-450-0524) |
|
University of Utah |
UT |
Recruiting |
Crystal Neate |
|
University of Virginia |
VA |
Recruiting |
Mary Wagoner |
|
Virginia Commonwealth University |
VA |
Recruiting |
LaVon Smith |
|
Swedish Medical Center |
WA |
Recruiting |
Janae Rahiman |
|
University of Washington |
WA |
Recruiting |
Kassie Chu |
|
Medical College of Wisconsin |
WI |
Recruiting | Marie Mejaki |
HEALEY ALS Platform Trial Indirect Cost Policy
In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.
Reference Papers on Innovative Trial Design
Platform trials are trials where multiple drugs are tested at the same time, using specialized statistical tools.
Work With Us
If you're a researcher looking to collaborate with the Healey Center or a patient interested in participating in the Platform Trial, we want to hear from you!