Sites Begin Enrollment for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, is launching the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Sites marked with * are completing site activation procedures and are expected to start enrolling soon.

Site

State

Enrollment
Status

Contact Information

Barrow Neurological Institute

AZ

Enrolling

Jessie Duncan

Forbes Norris MDA/ALS Research Center,
California Pacific Medical Center

CA

Enrolling

Marguerite Engel

University of California, Irvine

CA

*

Vivian Li

Cedars-Sinai Medical Center

CA

*

Carolyn Prina

Loma Linda University Health

CA

Enrolling

Imran Qasim

University of Colorado Anschutz

CO

*

Brianna Blume

Hospital for Special Care

CT Enrolling Natalie Schmitt

Phil Smith Neuroscience Institute,
Holy Cross Hospital

FL

Enrolling

Donovan Mott

Mayo Clinic Florida

FL

*

Lisa Thuro

University of Florida Gainesville

FL

*

Jennifer Steshyn

University of Miami

FL

*

Wendy Levy

University of South Florida College of Medicine

FL

*

Jessica Shaw

Emory University

GA

*

Meraida Polak

University of Chicago

IL

*

Shail Bhatnagar

Northwestern University

IL

Enrolling

Ben Joslin

University of Iowa Hospitals and Clinics

IA

Enrolling

Jeri Sieren

University of Kansas Medical Center

KY

*

Andrew Heim

University of Kentucky

KY

*

Meg Bruno

Ochsner Health Systems

LA

*

Kristina Brown

Johns Hopkins University

MD

*

Kristen Riley

University of Maryland

MD

*

Vikram Nambiar

Massachusetts General Hospital

MA Enrolling Danny Hevert

Beth Israel Deaconess Medical Center

MA

*

Hilda Guitierrez

University of Massachusetts Medical School, Worcester

MA

Enrolling

Diane McKenna-Yasek

Henry Ford Health System

MI

Enrolling

Anne Vallis

University of Michigan

MI

Enrolling

Jayna Duell

Spectrum Health

MI

*

Nichole Roderique

Mayo Clinic Rochester

MN

*

Carol Denny

University of Minnesota
Twin Cities ALS Research Consortium

MN

*

Valerie Ferment

University of Missouri Health Care

MO

*

Natalie Taylor

Saint Louis University

MO

*

Susan Brown

Washington University School of Medicine

MO

Enrolling

Elizabeth Karanja

University of Nebraska Medical Center

NB

Enrolling

Renee Hogue

Neurology Associates, P.C.
Somnos Clinical Research

NB

*

Desirae Eschiti

Dartmouth-Hitchcock Medical Center

NH

*

Caren Saunders

Columbia University

NY

*

Jessica Singleton

SUNY Upstate

NY

*

Jacob Pusey

Duke University

NC

*

Lisa Harrison

Wake Forest University Health Sciences

NC

*

Mozhdeh Marandi

The Ohio State University

OH Enrolling Erin Cohen

Providence Brain and Spine Institute
ALS Center

OR

*

Arlena Cummings

University of Pennsylvania

PA

Enrolling

Adreeja Guharay

Lewis Katz School of Medicine,
Temple University

PA

*

Kathleen Hatala

Jefferson Weinberg ALS Center,
Thomas Jefferson University

PA

Enrolling

Laura Oakley

Penn State Hershey

PA

*

Anne Haulman

Medical University of South Carolina

SC

*

Katrina Madden

Vanderbilt University Medical Center

TN

*

Diana Davis

Wesley Neurology Clinic

TN

*

Cindy Benzel

University of Texas Health Science Center
at San Antonio (UTHSCSA)

TX

Enrolling

Pamela Kittrell

Houston Methodist

TX

Enrolling

Sharon Halton

Texas Neurology

TX Enrolling Todd Morgan

University of Virginia

VA

*

Mary Wagoner

University of Washington

WA

Enrolling

Laura Sissons-Ross

Medical College of Wisconsin

WI

*

Marie Mejaki
* These sites are completing site activation procedures and are expected to start enrolling soon.

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.