Sites Now Enrolling for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Sites marked "Recruiting" are currently enrolling participants in regimen E.

Sites marked "Active, Not recruiting" are active in the platform (for example, they are following participants in regimens A-D) but are not enrolling new participants at this time. Most active sites are expected to start enrolling in regimen E soon.

Site

State

Enrollment
Status

Trial Contact Information

Barrow Neurological Institute

AZ

Recruiting

Annalee Boyle

University of Southern California

CA

Recruiting

Salma Akhter
(323-442-6221)

Forbes Norris MDA/ALS Research Center,
California Pacific Medical Center

CA

Recruiting

Henry Chen
(415-600-5764)

University of California, San Francisco

CA

Recruiting

Neha Madugala
(916-236-7172)

University of California, Irvine

CA

Active,
Not recruiting
Jeanette Overton

Cedars-Sinai Medical Center

CA

Active,
Not recruiting
Sophia Mostowy

Loma Linda University Health

CA

Recruiting

David Borg

University of Colorado Anschutz

CO

Recruiting

Brenna Baines

Hospital for Special Care

CT Recruiting Natalie Cartwright

Georgetown University Pasquerilla Health Center

DC Recruiting

Sarai Bartlett

202-630-8445 (preferred)

Phil Smith Neuroscience Institute,
Holy Cross Hospital

FL Active,
Not recruiting
Ashley Stepler

Mayo Clinic Florida

FL

Active,
Not recruiting

Jany Paulett

University of Florida Gainesville

FL Active,
Not recruiting
Jennifer Steshyn

University of Miami

FL Active,
Not recruiting
Jessica Hernandez

University of South Florida College of Medicine

FL

Recruiting

Jessica Shaw

Emory University

GA Active,
Not recruiting
N/A

University of Chicago

IL

Active,
Not recruiting

Sravya Aluri

Northwestern University

IL

Recruiting

Emma Schmidt
(312-503-4362)

Saint Alphonsus Regional Medical Center

ID

Recruiting

Joshua Harrison

University of Iowa Hospitals and Clinics

IA

Recruiting

Emily McDonnell

University of Kansas Medical Center

KS

Recruiting

Katheryn Jennens

University of Kentucky

KY

Active,
Not recruiting

Emma Hanley

Ochsner Health Systems

LA

Active,
Not recruiting

Lisa Edmond
(985-989-7182)

Johns Hopkins University

MD

Active,
Not recruiting

Kristen Riley

University of Maryland

MD

Recruiting

Vikram Nambiar

Massachusetts General Hospital

MA Recruiting Danny Hevert

Beth Israel Deaconess Medical Center

MA

Recruiting

Hilda Guitierrez

University of Massachusetts Medical School, Worcester

MA

Recruiting

Catherine Douthwright

Henry Ford Health System

MI

Recruiting

Beverley Duthie 
(313-916-3359)

University of Michigan

MI

Active,
Not recruiting

Jayna Duell

Spectrum Health

MI Recruiting Sehrish Khan

Essentia Health

MN

Recruiting

Brent Gavin
(218-786-1220)

Mayo Clinic Rochester

MN

Recruiting

Megan Means
(507-293-0545)

University of Minnesota
Twin Cities ALS Research Consortium

MN

Recruiting

Valerie Ferment

University of Missouri Health Care

MO

Active,
Not recruiting
Natalie Taylor

Saint Louis University

MO

Active,
Not recruiting

Susan Brown

Washington University School of Medicine

MO

Recruiting

Rebecca Livigni

University of Nebraska Medical Center

NE

Recruiting

Rachel Harper 
(402-552-6233)

Neurology Associates, P.C.
Somnos Clinical Research

NE

Active,
Not recruiting

Desirae Eschiti

Dartmouth-Hitchcock Medical Center

NH

Active,
Not recruiting

N/A

Columbia University

NY

Active,
Not recruiting

Oneika Blackman

SUNY Upstate

NY

Recruiting

Lena Deb

Duke University

NC

Recruiting Michelle Ward

Wake Forest University Health Sciences

NC

Recruiting Mozhdeh Marandi
University of Cincinnati OH
Recruiting

Ashley Smith

The Ohio State University

OH Recruiting

MacKenzie Kaschalk

Providence Brain and Spine Institute
ALS Center

OR

Recruiting

Ashley Adamo

University of Pennsylvania

PA

Active,
Not recruiting
Adreeja Guharay

University of Pittsburgh Medical Center

PA

Recruiting

Melissa Ilnicki
(412-864-0865)

Lewis Katz School of Medicine,
Temple University

PA

Active,
Not recruiting

Kathleen Hatala

Jefferson Weinberg ALS Center,
Thomas Jefferson University

PA

Recruiting

Stephanie Hansen

Lehigh Valley Health Network

PA

Recruiting

Andrew Orzel
(610-402-9543)

Penn State Hershey

PA

Active,
Not recruiting

Heidi Runk

Vanderbilt University Medical Center

TN

Recruiting

Diana Davis

University of Texas Health Science Center
at San Antonio (UTHSCSA)

TX

Active,
Not recruiting
Charlotte Rhodes
(210-450-8454)

Houston Methodist

TX

Active,
Not recruiting

Rachel Applegate

Patricia Mendoza

Texas Neurology

TX Recruiting Mohamad Asaad Nasri

University of Virginia

VA

Active,
Not recruiting

Mary Wagoner

Virginia Commonwealth University

VA

Recruiting

LaVon Smith

Swedish Medical Center

WA

Recruiting

Janae Rahiman

University of Washington

WA

Recruiting

Laura Sissons-Ross

Medical College of Wisconsin

WI

Active,
Not recruiting
Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.