Trial Sites for the HEALEY ALS Platform Trial

Sites Now Enrolling for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Many sites are expected to start enrolling for Regimen F soon. Sites marked "Recruiting" are currently enrolling participants.

Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.

Site	State	Enrollment Status	Trial Contact Information
Barrow Neurological Institute	AZ	Active, Not recruiting	Annalee Boyle
Cedars-Sinai Medical Center	CA	Recruiting	Sophia Mostowy
Forbes Norris MDA/ALS Research Center, California Pacific Medical Center	CA	Active, Not recruiting	Teji Dulai
Kaiser, Los Angeles Medical Center	CA	Active, Not recruiting	Mary H. Berganza
Loma Linda University Health	CA	Recruiting	David Borg
University of California, Irvine	CA	Active, Not recruiting	Jeanette Overton
University of California, San Francisco	CA	Active, Not recruiting	Neha Madugala (916-236-7172)
University of Southern California	CA	Active, Not recruiting	Salma Akhter (323-442-6221)
University of Colorado Anschutz	CO	Recruiting	Paige Brinzo
Hospital for Special Care	CT	Recruiting	Natalie Cartwright
Georgetown University Pasquerilla Health Center	DC	Active, Not recruiting	Eli Wolfgang
Mayo Clinic Florida	FL	Active, Not recruiting	Jany Paulett
Nova Southeastern University	FL	Recruiting	Donovan Mott
Phil Smith Neuroscience Institute, Holy Cross Hospital	FL	Active, Not recruiting	Ashley Stepler
University of Florida Gainesville	FL	Active, Not recruiting	Jennifer Steshyn
University of Miami	FL	Active, Not recruiting	Jessica Hernandez
University of South Florida College of Medicine	FL	Active, Not recruiting	Jessica Shaw
Augusta University	GA	Recruiting	Brandy Quarles (706-721-0390)
Emory University	GA	Active, Not recruiting	N/A
Northwestern University	IL	Active, Not recruiting	Emma Schmidt (312-503-4362)
University of Chicago	IL	Active, Not recruiting	Sravya Aluri
Saint Alphonsus Regional Medical Center	ID	Recruiting	Joshua Harrison
Indiana University	IND	Active, Not recruiting	Sandy Guingrich (317-963-7382)
University of Iowa Hospitals and Clinics	IA	Active, Not recruiting	Emily McDonnell
University of Kansas Medical Center	KS	Active, Not recruiting	Katheryn Jennens
University of Kentucky	KY	Active, Not recruiting	Sura Al Hilfi
Ochsner Health Systems	LA	Active, Not recruiting	Lisa Edmond (985-989-7182)
Johns Hopkins University	MD	Active, Not recruiting	Kristen Riley
University of Maryland	MD	Active, Not recruiting	Vikram Na mbiar
Beth Israel Deaconess Medical Center	MA	Recruiting	Hilda Gutierrez
Massachusetts General Hospital	MA	Recruiting	Mia Resendes (617-643-3902)
University of Massachusetts Medical School, Worcester	MA	Active, Not recruiting	Catherine Douthwright
Henry Ford Health System	MI	Recruiting	Beverley Duthie (313-916-3359)
University of Michigan	MI	Active, Not recruiting	Jayna Duell
Spectrum Health	MI	Active, Not recruiting	Sehrish Khan
Essentia Health	MN	Recruiting	Brent Gavin (218-786-1220)
Mayo Clinic Rochester	MN	Active, Not recruiting	Megan Means (507-293-0545)
University of Minnesota Twin Cities ALS Research Consortium	MN	Active, Not recruiting	Valerie Ferment
University of Missouri Health Care	MO	Active, Not recruiting	Natalie Taylor
Saint Louis University	MO	Active, Not recruiting	Susan Brown
Washington University School of Medicine	MO	Active, Not recruiting	Rebecca Livigni
Neurology Associates, P.C. Somnos Clinical Research	NE	Active, Not recruiting	Desirae Eschiti
University of Nebraska Medical Center	NE	Recruiting	Rachel Harper (402-552-6233)
Dartmouth-Hitchcock Medical Center	NH	Active, Not recruiting	N/A
Hackensack University Medical Center	NJ	Active, Not recruiting	Michelle Williams Rebecca Phillip
Columbia University	NY	Active, Not recruiting	Oneika Blackman
Stony Brook University	NY	Active, Not recruiting	Christine Pol
SUNY Upstate	NY	Active, Not recruiting	Lena Deb
Duke University	NC	Recruiting	Michelle Ward
Wake Forest University Health Sciences	NC	Recruiting	Mozhdeh Marandi
Ohio State University	OH	Recruiting	Elizabeth Wiley
University of Cincinnati	OH	Active, Not recruiting	Ashley Smith
Providence Brain and Spine Institute ALS Center	OR	Active, Not recruiting	Ashley Adamo
Jefferson Weinberg ALS Center, Thomas Jefferson University	PA	Active, Not recruiting	Mattison Worthy
Lehigh Valley Health Network	PA	Active, Not recruiting	Andrew Orzel (610-402-9543)
Lewis Katz School of Medicine, Temple University	PA	Active, Not recruiting	Kathleen Hatala
Penn State Hershey	PA	Active, Not recruiting	Heidi Runk
University of Pennsylvania	PA	Active, Not recruiting	Adreeja Guharay
University of Pittsburgh Medical Center	PA	Active, Not recruiting	Cathy Van Every (412-648-1242)
Vanderbilt University Medical Center	TN	Active, Not recruiting	Diana Davis
Houston Methodist	TX	Active, Not recruiting	Anjana Singh
Texas Neurology	TX	Recruiting	Mohamad Asaad Nasri
University of Texas Health Science Center at San Antonio (UTHSCSA)	TX	Recruiting	Randee Kent-Baron (210-450-0524)
University of Utah	UT	Active, Not recruiting	Crystal Neate
University of Virginia	VA	Active, Not recruiting	Mary Wagoner
Virginia Commonwealth University	VA	Active, Not recruiting	LaVon Smith
Swedish Medical Center	WA	Active, Not recruiting	Janae Rahiman
University of Washington	WA	Active, Not recruiting	Amos Sahu
Medical College of Wisconsin	WI	Active, Not recruiting	Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.

Work With Us

If you're a researcher looking to collaborate with the Healey Center or a patient interested in participating in the Platform Trial, we want to hear from you!

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