Sites Now Enrolling for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Many sites are expected to start enrolling for Regimen F soon. Sites marked "Recruiting" are currently enrolling participants.  

Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.

Site

State

Enrollment
Status

Trial Contact Information

Barrow Neurological Institute

AZ

Active,
Not recruiting

Annalee Boyle

Cedars-Sinai Medical Center

CA

Recruiting Sophia Mostowy

Forbes Norris MDA/ALS Research Center,
California Pacific Medical Center

CA

Active,
Not recruiting

Teji Dulai

Kaiser, Los Angeles Medical Center

CA

Active,
Not recruiting

Mary H. Berganza

Loma Linda University Health

CA

Recruiting 

David Borg

University of California, Irvine

CA

Active,
Not recruiting 
Jeanette Overton

University of California, San Francisco

CA

Active,
Not recruiting

Neha Madugala
(916-236-7172)

University of Southern California

CA

Active,
Not recruiting

Salma Akhter
(323-442-6221)

University of Colorado Anschutz

CO

Recruiting

Paige Brinzo

Hospital for Special Care

CT Recruiting Natalie Cartwright

Georgetown University Pasquerilla Health Center

DC Active,
Not recruiting

Eli Wolfgang

Mayo Clinic Florida

FL

Active,
Not recruiting

Jany Paulett

Nova Southeastern University

FL Recruiting Donovan Mott

Phil Smith Neuroscience Institute,
Holy Cross Hospital

FL Active,
Not recruiting 
Ashley Stepler

University of Florida Gainesville

FL Active,
Not recruiting
Jennifer Steshyn

University of Miami

FL Active,
Not recruiting
Jessica Hernandez

University of South Florida College of Medicine

FL

Active,
Not recruiting

Jessica Shaw

Augusta University 

GA

Recruiting 

Brandy Quarles
(706-721-0390)

Emory University

GA Active,
Not recruiting
N/A

Northwestern University

IL

Active,
Not recruiting

Emma Schmidt
(312-503-4362)

University of Chicago

IL

Active,
Not recruiting

Sravya Aluri

Saint Alphonsus Regional Medical Center

ID

Recruiting 

Joshua Harrison

Indiana University 

IND

Active,
Not recruiting 

Sandy Guingrich
(317-963-7382)

University of Iowa Hospitals and Clinics

IA

Active,
Not recruiting 

Emily McDonnell

University of Kansas Medical Center

KS

Active,
Not recruiting 

Katheryn Jennens

University of Kentucky

KY

Active,
Not recruiting 

Sura Al Hilfi 

Ochsner Health Systems

LA

Active,
Not recruiting

Lisa Edmond
(985-989-7182)

Johns Hopkins University

MD

Active,
Not recruiting 

Kristen Riley

University of Maryland

MD

Active,
Not recruiting

Vikram Nambiar

Beth Israel Deaconess Medical Center

MA

Recruiting 

Hilda Gutierrez

Massachusetts General Hospital

MA Recruiting  Mia Resendes
(617-643-3902)

University of Massachusetts Medical School, Worcester

MA

Active,
Not recruiting 

Catherine Douthwright

Henry Ford Health System

MI

Recruiting 

Beverley Duthie 
(313-916-3359)

University of Michigan

MI

Active,
Not recruiting 

Jayna Duell

Spectrum Health

MI Active,
Not recruiting 
Sehrish Khan

Essentia Health

MN

Recruiting 

Brent Gavin
(218-786-1220)

Mayo Clinic Rochester

MN

Active,
Not recruiting

Megan Means
(507-293-0545)

University of Minnesota
Twin Cities ALS Research Consortium

MN

Active,
Not recruiting

Valerie Ferment

University of Missouri Health Care

MO

Active,
Not recruiting
Natalie Taylor

Saint Louis University

MO

Active,
Not recruiting

Susan Brown

Washington University School of Medicine

MO

Active,
Not recruiting

Rebecca Livigni

Neurology Associates, P.C.
Somnos Clinical Research

NE

Active,
Not recruiting

Desirae Eschiti

University of Nebraska Medical Center

NE

Recruiting

Rachel Harper 
(402-552-6233)

Dartmouth-Hitchcock Medical Center

NH

Active,
Not recruiting

N/A

Hackensack University Medical Center

NJ

Active,
Not recruiting

Michelle Williams

Rebecca Phillip

Columbia University

NY

Active,
Not recruiting

Oneika Blackman

Stony Brook University 

NY

Active,
Not recruiting 

Christine Pol

SUNY Upstate

NY

Active,
Not recruiting

Lena Deb

Duke University

NC

Recruiting Michelle Ward

Wake Forest University Health Sciences

NC

Recruiting Mozhdeh Marandi

Ohio State University

OH Recruiting

Elizabeth Wiley

University of Cincinnati OH Active,
Not recruiting

Ashley Smith

Providence Brain and Spine Institute
ALS Center

OR

Active,
Not recruiting

Ashley Adamo

Jefferson Weinberg ALS Center,
Thomas Jefferson University

PA

Active,
Not recruiting

Mattison Worthy

Lehigh Valley Health Network

PA

Active,
Not recruiting 

Andrew Orzel
(610-402-9543)

Lewis Katz School of Medicine,
Temple University

PA

Active,
Not recruiting

Kathleen Hatala

Penn State Hershey

PA

Active,
Not recruiting 

Heidi Runk

University of Pennsylvania

PA

Active,
Not recruiting 
Adreeja Guharay

University of Pittsburgh Medical Center

PA

Active,
Not recruiting 

Cathy Van Every
(412-648-1242)

Vanderbilt University Medical Center

TN

Active,
Not recruiting 

Diana Davis

Houston Methodist

TX

Active,
Not recruiting 

Anjana Singh

Texas Neurology

TX Recruiting  Mohamad Asaad Nasri

University of Texas Health Science Center
at San Antonio (UTHSCSA)

TX

Recruiting Randee Kent-Baron
(210-450-0524)

University of Utah

UT

Active,
Not recruiting 

Crystal Neate

University of Virginia

VA

Active,
Not recruiting

Mary Wagoner

Virginia Commonwealth University

VA

Active,
Not recruiting 

LaVon Smith

Swedish Medical Center

WA

Active,
Not recruiting 

Janae Rahiman

University of Washington

WA

Active,
Not recruiting 

Amos Sahu

Medical College of Wisconsin

WI

Active,
Not recruiting 
Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.