Trial Sites for the HEALEY ALS Platform Trial

Sites Now Enrolling for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Sites marked "Recruiting" are currently enrolling participants in regimen E.

Sites marked "Active, Not recruiting" are active in the platform (for example, they are following participants in regimens A-D) but are not enrolling new participants at this time. Most active sites are expected to start enrolling in regimen E soon.

Site	State	Enrollment Status	Trial Contact Information
Barrow Neurological Institute	AZ	Recruiting	Annalee Boyle
University of Southern California	CA	Recruiting	Salma Akhter (323-442-6221)
Forbes Norris MDA/ALS Research Center, California Pacific Medical Center	CA	Recruiting	Henry Chen (415-600-5764)
University of California, San Francisco	CA	Recruiting	Neha Madugala (916-236-7172)
University of California, Irvine	CA	Active, Not recruiting	Jeanette Overton
Cedars-Sinai Medical Center	CA	Active, Not recruiting	Sophia Mostowy
Loma Linda University Health	CA	Recruiting	David Borg
University of Colorado Anschutz	CO	Recruiting	Brenna Baines
Hospital for Special Care	CT	Recruiting	Natalie Cartwright
Georgetown University Pasquerilla Health Center	DC	Recruiting	Sarai Bartlett 202-630-8445 (preferred)
Phil Smith Neuroscience Institute, Holy Cross Hospital	FL	Active, Not recruiting	Ashley Stepler
Mayo Clinic Florida	FL	Active, Not recruiting	Jany Paulett
University of Florida Gainesville	FL	Active, Not recruiting	Jennifer Steshyn
University of Miami	FL	Active, Not recruiting	Jessica Hernandez
University of South Florida College of Medicine	FL	Recruiting	Jessica Shaw
Emory University	GA	Active, Not recruiting	N/A
University of Chicago	IL	Active, Not recruiting	Sravya Aluri
Northwestern University	IL	Recruiting	Emma Schmidt (312-503-4362)
Saint Alphonsus Regional Medical Center	ID	Recruiting	Joshua Harrison
University of Iowa Hospitals and Clinics	IA	Recruiting	Emily McDonnell
University of Kansas Medical Center	KS	Recruiting	Katheryn Jennens
University of Kentucky	KY	Active, Not recruiting	Emma Hanley
Ochsner Health Systems	LA	Active, Not recruiting	Lisa Edmond (985-989-7182)
Johns Hopkins University	MD	Active, Not recruiting	Kristen Riley
University of Maryland	MD	Recruiting	Vikram Nambiar
Massachusetts General Hospital	MA	Recruiting	Danny Hevert
Beth Israel Deaconess Medical Center	MA	Recruiting	Hilda Guitierrez
University of Massachusetts Medical School, Worcester	MA	Recruiting	Catherine Douthwright
Henry Ford Health System	MI	Recruiting	Beverley Duthie (313-916-3359)
University of Michigan	MI	Active, Not recruiting	Jayna Duell
Spectrum Health	MI	Recruiting	Sehrish Khan
Essentia Health	MN	Recruiting	Brent Gavin (218-786-1220)
Mayo Clinic Rochester	MN	Recruiting	Megan Means (507-293-0545)
University of Minnesota Twin Cities ALS Research Consortium	MN	Recruiting	Valerie Ferment
University of Missouri Health Care	MO	Active, Not recruiting	Natalie Taylor
Saint Louis University	MO	Active, Not recruiting	Susan Brown
Washington University School of Medicine	MO	Recruiting	Rebecca Livigni
University of Nebraska Medical Center	NE	Recruiting	Rachel Harper (402-552-6233)
Neurology Associates, P.C. Somnos Clinical Research	NE	Active, Not recruiting	Desirae Eschiti
Dartmouth-Hitchcock Medical Center	NH	Active, Not recruiting	N/A
Columbia University	NY	Active, Not recruiting	Oneika Blackman
SUNY Upstate	NY	Recruiting	Lena Deb
Duke University	NC	Recruiting	Michelle Ward
Wake Forest University Health Sciences	NC	Recruiting	Mozhdeh Marandi
University of Cincinnati	OH	Recruiting	Ashley Smith
The Ohio State University	OH	Recruiting	MacKenzie Kaschalk
Providence Brain and Spine Institute ALS Center	OR	Recruiting	Ashley Adamo
University of Pennsylvania	PA	Active, Not recruiting	Adreeja Guharay
University of Pittsburgh Medical Center	PA	Recruiting	Melissa Ilnicki (412-864-0865)
Lewis Katz School of Medicine, Temple University	PA	Active, Not recruiting	Kathleen Hatala
Jefferson Weinberg ALS Center, Thomas Jefferson University	PA	Recruiting	Stephanie Hansen
Lehigh Valley Health Network	PA	Recruiting	Andrew Orzel (610-402-9543)
Penn State Hershey	PA	Active, Not recruiting	Heidi Runk
Vanderbilt University Medical Center	TN	Recruiting	Diana Davis
University of Texas Health Science Center at San Antonio (UTHSCSA)	TX	Active, Not recruiting	Charlotte Rhodes (210-450-8454)
Houston Methodist	TX	Active, Not recruiting	Rachel Applegate Patricia Mendoza
Texas Neurology	TX	Recruiting	Mohamad Asaad Nasri
University of Virginia	VA	Active, Not recruiting	Mary Wagoner
Virginia Commonwealth University	VA	Recruiting	LaVon Smith
Swedish Medical Center	WA	Recruiting	Janae Rahiman
University of Washington	WA	Recruiting	Laura Sissons-Ross
Medical College of Wisconsin	WI	Active, Not recruiting	Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.

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If you're a researcher looking to collaborate with the Healey Center or a patient interested in participating in the Platform Trial, we want to hear from you!

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