Trial Sites for the HEALEY ALS Platform Trial
The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.
The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.
Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).
Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.
Map of Participating Sites
List of Participating Sites
Sites marked "Recruiting" are currently enrolling participants. Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.
|
Site |
State |
Enrollment |
Trial Contact Information |
| University of Arkansas | AR |
Active, Not Recruiting |
Shellah Rogers (501-398-8622) |
|
Barrow Neurological Institute |
AZ |
Recruiting |
Whitney Dailey |
|
Mayo Clinic Scottsdale |
AZ |
Recruiting |
Alissa Bojko (480-301-4902) |
|
Cedars-Sinai Medical Center |
CA |
Active, Not Recruiting | Viviana Valencia |
|
Forbes Norris MDA/ALS Research Center, |
CA |
Recruiting |
|
|
Kaiser Permanente, Los Angeles Medical Center |
CA |
Active, Not Recruiting |
Mary H. Berganza |
|
Loma Linda University Health |
CA |
Active, Not Recruiting |
David Borg (909-558-2037) |
|
University of California, Irvine |
CA |
Active, Not Recruiting | Siddhant Pratap (650-224-2637) |
|
University of California, San Francisco |
CA |
Active, Not Recruiting |
Zane Ashkar |
|
University of Southern California |
CA |
Recruiting |
Salma Akhter (323-442-6221) |
|
University of Colorado Anschutz |
CO |
Recruiting |
Recruitment Coordinator (303-724-4644) |
|
Hospital for Special Care |
CT | Recruiting | Cameron McLean (860-827-1958 ext. 5753) |
|
Yale University |
CT | Recruiting | Grace Bengyak (203-787-8931) |
|
Georgetown University Pasquerilla Health Center |
DC | Recruiting | |
|
George Washington University |
DC | Active, Not Recruiting | |
|
Mayo Clinic Florida |
FL |
Active, Not Recruiting |
Jany Paulett |
|
Nova Southeastern University |
FL | Recruiting | Donovan Mott (954-203-2829) |
|
University of Florida Gainesville |
FL | Active, Not Recruiting | Brandy Donahue-Quails (352-733-2425) |
|
University of Miami |
FL | Active, Not Recruiting | Jessica Hernandez |
|
University of South Florida College of Medicine |
FL |
Active, Not Recruiting |
Sruthi Kommi Reddy (813-974-3224) |
|
Augusta University |
GA |
Active, Not Recruiting |
Brandy Quarles (706-721-0390) (762-375-0390) |
|
Northwestern University |
IL |
Recruiting |
Candace James (312-503-4362) |
|
University of Chicago |
IL |
Active, Not Recruiting |
Deekshitha Turaka (773-702-4392) |
|
Saint Alphonsus Regional Medical Center |
ID |
Active, Not Recruiting |
Research Coordinator (208-367-7397) |
|
Indiana University |
IN |
Active, Not Recruiting |
Lisa Grinstead (317-963-7382) |
|
University of Iowa Health Care |
IA |
Recruiting |
Emily Anderson (319-356-8744) |
|
University of Kansas Medical Center |
KS |
Recruiting |
Ozzie Plascencia (913-945-9922) |
|
University of Kentucky |
KY |
Active, Not Recruiting |
|
|
Ochsner Health Systems |
LA |
Active, Not Recruiting |
N/A |
|
Johns Hopkins University |
MD |
Active, Not Recruiting |
Elizabeth 'Betsy' Mosmiller (410-502-0495) |
|
Beth Israel Deaconess Medical Center |
MA |
Recruiting |
Teresa Capella (617-667-3098) |
|
Massachusetts General Hospital |
MA | Recruiting | Mackenzie DeMello (617-643-2499) |
|
University of Massachusetts Medical School, Worcester |
MA |
Recruiting |
|
|
Henry Ford Health System |
MI |
Recruiting |
Maria Stotland (313-916-3359) |
|
University of Michigan |
MI |
Recruiting |
Jayna Duell (734-936-8776) |
|
Corewell Health Medical Group |
MI | Recruiting | Kate Shaneyfelt (616-486-0936) |
|
Essentia Health |
MN |
Recruiting |
|
|
Mayo Clinic Rochester |
MN |
Recruiting |
Isabelle (Izzie) Meunier (507-284-2131) |
|
University of Minnesota |
MN |
Active, Not Recruiting |
Valerie Ferment (612-301-1535) |
|
University of Missouri Health Care |
MO |
Active, Not Recruiting | Jaime Basnett (573-882-9109) |
|
Saint Louis University |
MO |
Recruiting |
Elizabeth 'Bitsy' Egan (314-977-4900) |
|
Washington University School of Medicine |
MO |
Recruiting |
Research Coordinator (1-844-ALS-CARE) |
|
Neurology Associates, P.C. |
NE |
Active, Not Recruiting |
Desirae Eschiti |
|
University of Nebraska Medical Center |
NE |
Recruiting |
|
|
Dartmouth Hitchcock Medical Center |
NH |
Recruiting |
Gina Kersey (603-650-5398) |
|
Hackensack University Medical Center |
NJ |
Active, Not Recruiting |
Michelle Williams Lauren Tedeschi |
|
Columbia University |
NY |
Active, Not Recruiting |
Oneika Blackman |
| Dent Neurologic Institute |
NY |
Recruiting |
Anna Mattle (716-961-9217) |
|
Stony Brook University |
NY |
Active, Not Recruiting |
Jas Kaur |
|
SUNY Upstate |
NY |
Recruiting |
Lena Deb |
|
Atrium Health |
NC |
Recruiting | Cynthia Lary (704-355-9434) or Meha Patel |
|
Duke University |
NC |
Active, Not Recruiting | Research Coordinator |
|
University of North Carolina |
NC |
Active, Not Recruiting |
or
|
|
Wake Forest University Health Sciences |
NC |
Recruiting | Mozhdeh Marandi (336-713-8577) |
|
Cleveland Clinic |
OH |
Recruiting | Emily Delettang (216-390-3676) |
|
Ohio State University |
OH | Recruiting | Kaneshia Hives (614-685-5661) or Atchayah Balakrishna |
| University of Cincinnati | OH | Recruiting | |
|
Providence Brain and Spine Institute |
OR |
Active, Not Recruiting |
Hugo Vilchis (503-216-1209) |
|
Jefferson Weinberg ALS Center, |
PA |
Recruiting |
Gemma Krautzel (267-582-6061) |
|
Lehigh Valley Health Network |
PA |
Recruiting |
Kevin Stanley (610-402-9543) |
|
Lewis Katz School of Medicine, |
PA |
Recruiting |
Kathleen Hatala (215-707-4171) or Christine Barr (215-707-5454) |
|
Penn State Hershey |
PA |
Active, Not Recruiting |
Research Coordinator (717-531-8257) |
|
University of Pennsylvania |
PA |
Recruiting | Matthew Burst (215-615-0550) |
|
University of Pittsburgh Medical Center |
PA |
Recruiting |
Research Coordinator (412-864-2873) |
|
Vanderbilt University Medical Center |
TN |
Recruiting |
Diana Davis (615-322-8957) |
|
Houston Methodist |
TX |
Active, Not Recruiting |
|
|
Texas Neurology |
TX | Recruiting | Amanda Pinal (214-827-3610 EXT: 309) |
|
University of Texas Health Science Center |
TX |
Active, Not Recruiting | Randee Kent-Baron (210-450-0524) |
|
University of Utah |
UT |
Recruiting |
Jazmine Danh (801-585-7405) |
|
University of Virginia |
VA |
Recruiting |
Mary Wagoner (434-924-5541) |
|
Virginia Commonwealth University |
VA |
Active, Not Recruiting |
Research Coordinator 804-360-4669 |
|
Swedish Medical Center |
WA |
Recruiting |
Lucy Gomez (206-320-2609) |
|
University of Washington |
WA |
Recruiting |
Kinsey Chapman 206-543-0454 or 206-543-0081 |
|
Medical College of Wisconsin |
WI |
Active, Not Recruiting | Katherine Kester (414-955-8117) |
HEALEY ALS Platform Trial Indirect Cost Policy
In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.
Reference Papers on Innovative Trial Design
Platform trials are trials where multiple drugs are tested at the same time, using specialized statistical tools.
Work With Us
If you're a researcher looking to collaborate with the Healey Center or a patient interested in participating in the Platform Trial, we want to hear from you!