Sites Now Enrolling for HEALEY ALS Platform Trial

The Sean M. Healey & AMG Center at Massachusetts General Hospital, in collaboration with the Northeast ALS Consortium (NEALS), Barrow Neurological Institute, the University of Rochester, and Berry Consultants, has launched the first platform trial for amyotrophic lateral sclerosis (ALS). The goals of this groundbreaking project are to greatly accelerate the timelines towards effective ALS treatments and provide greater trial access for all those affected by this disease. Visit the trial page on ClinicalTrials.gov for more information about sites and trial participation criteria.

The HEALEY ALS Platform Trial is a collaborative effort and enrollment in the trial is available at several sites across the U.S. to bring the trial close to people who want to participate. All sites are part of the NEALS Consortium. See below for a list of participating sites and their contact details.

Patients: For information about participating in the trial, please email HEALEYALSPlatform@mgh.harvard.edu or call 833-425-8257 (HALT ALS).

Researchers and industry: To collaborate with us on new treatments or trial sites, please email HealeyCenterforALS@mgh.harvard.edu.

Map of Participating Sites

List of Participating Sites

Sites marked "Recruiting" are currently enrolling participants. Sites marked "Active, Not recruiting" are active in the Platform Trial (for example, they are following participants in ongoing regimens that have already completed enrollment) but are not enrolling new participants at this time.

Site

State

Enrollment
Status

Trial Contact Information
University of Arkansas AR

Recruiting

Shellah Rogers or 
501-398-8622

Barrow Neurological Institute

AZ

Recruiting

Whitney Dailey

Mayo Clinic Scottsdale 

AZ

Recruiting

Alissa Bojko
Ph. 480-301-4902

Cedars-Sinai Medical Center

CA

Recruiting Sophia Mostowy

Forbes Norris MDA/ALS Research Center,
California Pacific Medical Center

CA

Recruiting

Daniela Sanchez

Kaiser Permanente, Los Angeles Medical Center

CA

Recruiting

Mary H. Berganza

Loma Linda University Health

CA

Recruiting 

David Borg

University of California, Irvine

CA

Recruiting  Pola Gaid

University of California, San Francisco

CA

Recruiting

Reshma Kolala 
(415-501-0671)

University of Southern California

CA

Recruiting

Salma Akhter
(323-442-6221)

University of Colorado Anschutz

CO

Recruiting

Recruitment Coordinator

Hospital for Special Care

CT Recruiting Zanib Iqbal

Yale University 

CT Recruiting  Erika Renkl
(
475-254-9169)

Georgetown University Pasquerilla Health Center

DC Recruiting

Gabby Law

(202-417-8678)

George Washington University 

DC Recruiting 

Grace Johnson
(202-741-2181)

Mayo Clinic Florida

FL

Recruiting

Jany Paulett

Nova Southeastern University

FL Recruiting Donovan Mott

Phil Smith Neuroscience Institute,
Holy Cross Hospital

FL Active, Not Recruiting  Ashley Stepler

University of Florida Gainesville

FL Recruiting Jessica Spana

University of Miami

FL Recruiting Jessica Hernandez

University of South Florida College of Medicine

FL

Recruiting

Jessica Shaw

Sruthi Kommi Reddy

Augusta University 

GA

Recruiting 

Brandy Quarles
(706-721-0390)

Northwestern University

IL

Recruiting

Emma Schmidt
(312-503-4362)

University of Chicago

IL

Recruiting

Deekshitha Turaka
(773-702-4392
)

Saint Alphonsus Regional Medical Center

ID

Recruiting 

Research Coordinator

Indiana University 

IN

Recruiting 

Sandy Guingrich
(317-963-7382)

University of Iowa Hospitals and Clinics

IA

Recruiting 

Emily Anderson

University of Kansas Medical Center

KS

Recruiting 

Katheryn Jennens

Nick Staudenmier

University of Kentucky

KY

Recruiting 

Sura Al Hilfi 

Ochsner Health Systems

LA

Active,
Not recruiting

Lisa Edmond
(985-989-7182)

Johns Hopkins University

MD

Recruiting 

Kristen Riley

University of Maryland

MD

Recruiting

Vikram Nambiar

Beth Israel Deaconess Medical Center

MA

Recruiting 

Teresa  Capella

Massachusetts General Hospital

MA Recruiting   Ludjie Jean Pierre
617-643-3902

University of Massachusetts Medical School, Worcester

MA

Recruiting 

Catherine Douthwright

Reylyn Tanchiatco

Henry Ford Health System

MI

Recruiting 

Beverley Duthie 

Anne Vallis

University of Michigan

MI

Recruiting 

Jayna Duell

Spectrum Health/ Corewell Health

MI Recruiting  Kate Shaneyfelt

Essentia Health

MN

Recruiting 

Brent Gavin
(218-786-1220)

Mayo Clinic Rochester

MN

Recruiting

Brenda Nelson

University of Minnesota
Twin Cities ALS Research Consortium

MN

Recruiting

Valerie Ferment

University of Missouri Health Care

MO

Active,
Not recruiting
N/A

Saint Louis University

MO

Recruiting

Elizabeth 'Bitsy' Egan

Washington University School of Medicine

MO

Recruiting

Rebecca Livigni

Neurology Associates, P.C.
Somnos Clinical Research

NE

Recruiting

Desirae Eschiti

University of Nebraska Medical Center

NE

Recruiting

Katelyn Hilz

Dartmouth-Hitchcock Medical Center

NH

Recruiting

Gina Kersey

Hackensack University Medical Center

NJ

Recruiting

Michelle Williams

Rebecca Phillip

Columbia University

NY

Recruiting

Oneika Blackman
Dent Neurologic Institute

NY

Recruiting

Anna Mattle
716-961-9217

Stony Brook University 

NY

Recruiting 

Christine Pol

SUNY Upstate

NY

Recruiting

Lena Deb

Duke University

NC

Recruiting Michelle Ward

Wake Forest University Health Sciences

NC

Recruiting Mozhdeh Marandi

Lauren Prince Richmond

Las Vegas Clinic

NV

Active, not recruiting  Richa Priya Jha
(702-505-4230)

Cleveland Clinic 

OH

Recruiting Matt Tainer or
Irys Caristo

Ohio State University

OH Recruiting

Cheyenne Grove

University of Cincinnati OH Recruiting

Ashley Smith

Providence Brain and Spine Institute
ALS Center

OR

Recruiting

Ashley Adamo

Jefferson Weinberg ALS Center,
Thomas Jefferson University

PA

Recruiting

Amir Ahmadi

Lehigh Valley Health Network

PA

Recruiting 

Kevin Stanley
(610-402-9379)

Lewis Katz School of Medicine,
Temple University

PA

Recruiting

Kathleen Hatala

Penn State Hershey

PA

Recruiting 

Michele Hare

University of Pennsylvania

PA

Recruiting  Matthew Burst 

University of Pittsburgh Medical Center

PA

Recruiting 

Research Coordinator

Vanderbilt University Medical Center

TN

Recruiting 

Diana Davis

Houston Methodist

TX

Recruiting 

Aramide Balogun

Texas Neurology

TX Recruiting  Mohamad Asaad Nasri

University of Texas Health Science Center
at San Antonio (UTHSCSA)

TX

Recruiting Randee Kent-Baron
(210-450-0524)

University of Utah

UT

Recruiting 

Crystal Neate

University of Virginia

VA

Recruiting

Mary Wagoner

Virginia Commonwealth University

VA

Recruiting 

LaVon Smith

Swedish Medical Center

WA

Recruiting 

Will Rowles

University of Washington

WA

Recruiting 

Gage Sibik or 

206-543-0454

Medical College of Wisconsin

WI

Recruiting  Marie Mejaki

HEALEY ALS Platform Trial Indirect Cost Policy

In executing the Master Clinical Trial Agreement (MCTA) to participate in the HEALEY ALS Platform Trial, Sites agree they will be paid indirect costs (IDC) at the rate at which the originating funding organization reimburses MGH. For payments made from internal MGH philanthropic funds, the IDC will be capped at 15% of total direct costs.