Learn about what members of our community are doing to help find a cure for ALS.
Pete Frates 5K 2022 The annual Pete Frates 5k was hosted by the AMG Charitable Foundation in November 2022. Faculty and staff from the Healey & AMG Center as well as hundreds from across the state joined together for the race in Pete's hometown, Beverly MA. Over $70,000 was raised to support the addition of psychologist / psychiatric mental-health nurse practitioner to the ALS multidisciplinary care team at the Healey & AMG Center for ALS, addressing an enormous need for people with ALS. Click here for more information on the race and start getting ready for 2023!
The Bourque Family Foundation Captains Ball
The first annual Captain's Ball in memory of Pete Frates helped to raise a gift of $125,000 for the Healey & AMG Center. Mass General and the Healey & AMG Center are grateful for the Bourque Family Foundation’s support that will help further our progress in pursuit of a cure for ALS. Mark your calendars for the second annual Bourque Family Foundation Captain’s Ball on Thursday, September 21, 2023!
TechVs. ALS (Online Fundraising Campaign) Focusing on the innovative and forward-looking "Tech" community, "TechVs. ALS" is working with companies, foundations, organizations, and individuals by raising funds to launch Expanded Access Protocol (EAP) programs at exisiting HEALEY ALS Platform Trial sites nationwide, bringing access therapies and clinical trials close to those living with ALS. Click here for more information about sponsorship details or to make a gift.
PREVENT ALS participant Daniel Barvin with his wife Kaori and their son Kai
Supporting Efforts to PREVENT ALS The Smith Family Foundation offers a fundraising challenge to advance research to stop ALS before it starts. Research participant Daniel Barvin (right) says he hopes to be "the last generation ravaged by ALS.” Learn more here.
PalmePalooza Honors Aversion Drummer Mick Palmesano In memory of drummer Mick Palmesano, his sister has started a new charity to fund research and care for people with ALS. Their first fundraiser featured tributes to his life and music from friends and family this month in his hometown of Hornell, NY.
Martha Olson-Fernandez Family Foundation Golf Tournament On October 2, 2021 The Martha Olson-Fernandez Family Foundation hosted their 9th annual golf tournament in Arroyo Grande, CA. Through this annual event and the incredible support of the Brenner Family, MOFF made a gift of $30,000 in support of the Expanded Access Protocol Program at the Healey Center. This gift was made in honor of Ken Brenner and made possible by the Brenner family network.
Presenting the check from the Martha Olson-Fernandez Family Foundation
ALS ONE Polar Plunge ALS ONE held their annual Polar Plunge at Rexhame Beach in Marshfield, MA on April 2. The "coolest event of the year" raised over $100,000 for ALS research, a new record!
Bid Group’s Inaugural Golf Tournament On March 5, 2022 Bid Group hosted their inaugural golf tournament in South Carolina. They raised $25,000 for the Healey Center in honor of their colleague Rick Wilson. Jen Scalia, NP was in attendance to accept the check and provided remarks about the work that the Healey Center is doing.
Never Surrender presented a check for $500,000 at a special event
Never Surrender Backwoods Blizzard Snowmobile Tour Raises Funds for Platform Trial Never Surrender’s 2022 Black Woods Blizzard Tour began in Proctor, MN on Thursday February 3 with 250 riders, and raised over $500,000 to support ALS research. Those wishing to support Tour riders and their efforts to raise money to fight ALS can visit Never Surrender.
Final Season: Tackle ALS founder Tim Green, a New York Times bestselling author and former NFL player, has written a new book based on his personal experiences and will be donating proceeds to Tackle ALS. Final Season follows Benjamin Redd, a star quarterback with football in his blood, whose father receives heartbreaking news. The book is published by Harper Collins.
Lori's Shoes "Hope Is In the Bag" Chicago-based fashion retailer Lori's contributed 10% of December handbag sales to the Healey Center's Expanded Access Protocols. Learn more and shop here.
Frates Memorial 5K: On Sunday, November 7, 2021 the Pete Frates Memorial 5K in Beverly, MA, organized by the AMG Charitable Foundation, raised almost $40,000 in support of the ALS House Call Program at the Healey Center for ALS.
Gwen Petersen and her family raised nearly $2,000 to support the EAP
Kim Hoffman Runs the Boston Marathon for Team MGH: On Monday, October 11, Kim participated in the virtual Boston Marathon, raising funds for genetic ALS research at the Healey Center in memory of her sister Shell. Read more about Kim’s story and support her run here.
sALSa For A Cure Walk: On October 3, friends and family of Margot Vaughan walked virtually and in-person to raise funds for the Expanded Access Protocol (EAP) Program at the Healey Center for ALS through the sALSa For a Cure fundraising initiative founded by her daughter and co-workers at Mastercard. They raised over $17,000 with this event, and have raised over $270,000 since their inception in 2017.
The sALSa For a Cure team raised $17,000 to support the Healey Center EAP
Martha Olson-Fernandez Family Foundation Golf Tournament: On October 2nd The Martha Olson-Fernandez Family Foundation hosted their 9th annual golf tournament in Arroyo Grande, CA. Through this annual event, MOFF made a gift of $30,000 in support of the Expanded Access Protocol Program at the Healey Center.
Voice for ALS Golf Tournament: Thank you to Voice for ALS who hosted their first golf tournament on September 18 raising over $19,000 Expanded Access Protocol (EAP) Program at the Healey Center for ALS!
ALS ONE and Franey Family Fund Gifts: Thanks to Jen DiMartino, Executive Director of ALS ONE, for presenting us with two large gifts to drive new advances in ALS research and treatment. This latest gift, with an additional substantial contribution from the Mark Franey Family Fund, will support the HEALEY ALS Platform Trial, PREVENT-ALS, and other significant research initiatives.
Jimmer Szatkowski Offers Matching Gifts for Tackle ALS: Jimmer and his family matched $51,000 of gifts to Tackle ALS. We are inspired by people like Jimmer, who despite a devastating diagnosis, find the strength to fundraise to find new treatments and cures for ALS. We are so grateful for your support, Jimmer!
Summer Shopping at J. McLaughlin: Martha's Vineyard retailer J. McLaughlin hosted an ALS fundraiser on August 14, donating 15% of sales to sALSa for a Cure in support of ALS research led by the Healey Center for ALS at Mass General. Download event flyer.
Lou Gehrig NFT Auction: Major League Baseball and digital collectible company Candy.com held an NFT auction to benefit ALS charities including the Healey Center. They offered a unique NFT of the iconic Lou Gehrig “Luckiest Man” speech and a limited edition series of images of the bronze bust of Gehrig. Learn more at candy.com.
4 You I Will Fight: The group started by Tara O'Brien presented James Berry, MD with a check for $25,000 at a recent fundraising event, bringing their total donations to $60,000.
Tackle ALS: Ongoing fundraising competition making a revolutionary new phase of research possible. Tackle ALS is dedicated to the critically important global initiative to accelerate bringing science discoveries to our patients through innovative trial approaches. Increasing access to effective treatments for people with ALS is a primary shared goal. Let’s beat this!
Earlier Events
Lou Gehrig Day:
Major League Baseball honored Lou Gehrig’s legacy by establishing an annual “Lou Gehrig Day” on June 2nd to raise awareness and funds for ALS. Gehrig joins Baseball Legends Jackie Robinson and Roberto Clemente as the only players whose legacies are celebrated annually with dedicated, league-wide days. Lou Gehrig Day will aim to remember the legacy of Gehrig, raise awareness and funds for research of ALS and celebrate the groups and individuals who have led the pursuit for cures. Lou Gehrig Day includes special moments at Major League ballparks and a series of fundraising efforts aimed at supporting charitable organizations. The MLB and the Lou Gehrig Day Committee have selected the Expanded Access Protocol (EAP) Program at the Healey Center for ALS as the beneficiary for all charitable fundraising efforts centralized out of the Commissioner’s Office. You can support the EAP with a donation or by purchasing a Lou Gehrig Day Shirt from the MLB Shop (Navy or Gray).
Shop JoJo Rings: JoJo Rings offers unique handcrafted rings and wraps from recycled keys. $5 from every product purchased during May and June 2021 supported the Tackle ALS campaign benefiting the Healey Center.
sALSa For a Cure and Mastercard Present a Priceless Experience for Lou Gehrig Day: The New York Yankees, sALSa for a Cure and Major League Baseball conducted an auction of memorabilia and a one-of-a-kind private meal with a former Yankees player complete with tickets to a Yankees game that evening. sALSa for A Cure was created in 2016 by Mastercard employees after learning that long-time Mastercard employee Margot Vaughan, had been diagnosed with ALS.
Patty’s Pals for ALS Awareness: Mastry's Brewery in St. Pete Beach, FL hosted a fundraiser with "Patty's Pale Ale" in the fight to find a cure for ALS on May 14, 2021. Donations and proceeds raised with the purchase of Patty’s Pale Ale were sentdirectly to the ALS research at the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital.
Rooting for Rick: Consider pledging gifts when celebrating a milestone like a birthday, wedding or anniversary. Hannah Wilson set a goal to raise $22,000 for her 22nd birthday in honor of her father, Rick.
#WipeOutALS: Carlsbad, CA surfer Tyler Decker was diagnosed with ALS at just 26 years old, and his friends and family are raising money for care and research.
Ring My Belle for ALS: Help to raise funds and spread ALS awareness with an act of kindness in your neighborhood. Participate in Ring My Belle for ALS by ringing your neighbor's doorbell and leaving a Ring My Belle for ALS flyer along with a small gift or gesture. For additional details, download a flyer here.
Shop Art Julie Treasures: One of a kind watercolor and acrylic paintings for sale by an artist who passed away from ALS in May 2020. For each painting sold, 100% of proceeds will benefit the HEALEY Platform Trial. Visit Art Julie Treasure’s Etsy shop here.
Inspired by reading Tim Green’s books, a book club of 13-year-olds started "Touchdowns for Tim Green" and raised $5,676 in support of his Healey Center fundraising initiative, Tackle ALS.
During their Hope is “In the Bag” campaign, Lori’s raised $11K in support of the Expanded Access Protocol (EAP) Program at the Healey Center. Read more about Lori’s inspiration to support the Healey Center on her blog.
Lori and her husband Brian
Jacksonville Cardiologist Mark Litt and yoga instructor Sheila Johnstone hosted a livestream virtual yoga class to benefit the Healey Center for ALS on Sunday, April 19, 2020.
The Walpole, MA high school girl's hockey team has raised over $25,000 for ALS research by selling t-shirts in support of Tara Pacella, the mother of the team captain. Their efforts have been covered by WHDH Channel 7 News and the Boston Herald.
With Ice Bucket Challenge II, Brian Wallach and his friends have raised over $62,000, nearly half their total goal. To celebrate the work they’ve done so far, and to publicize their campaign even more, Brian has gotten a commemorative tattoo, a process he streamed live on Twitter.
Ashely Corbin and Jennifer DiMartino of ALS ONE presented a $100,000 gift to support our research and clinical care.
The annual fall flag football game run by Moms of Brielle (MOB) in Brielle, NJ on November 3 raised $6,735 for ALS research
sALSa for a Cure teams participated in the 2019 ALSA Walk to Defeat ALS and a New York City Marathon fundraiser. To date, the group has raised nearly $200,000 in funding for ALS research at Mass General.
Team Kathleen crossing the Ragnar Relay finish line
Find out about the innovative new HEALEY ALS Platform Trial, which is accelerating efforts to bring new ALS treatments to patients.
Make a Difference for the Healey Center for ALS
Fundraisers like you are part of the dedication and excellence that supports and inspires Mass General and our community. Every penny you raise will go directly to the research and discovery of new treatments and cures for ALS. Your fundraising efforts drive discoveries and breakthroughs in clinical research that translate into new treatments that transform patient care.
Foundation’s support that will help further our progress in pursuit of a cure for ALS. Mark your calendars for the second annual Bourque Family Foundation Captain’s Ball on Thursday, September 21, 2023!
