Books with Palliative Care Themes
Pediatric Palliative Care Service
We focus on maximizing a child's quality of life, providing relief from pain, symptoms, and stress, smoothing transitions of care, coordinating communication and improving a family's experience of care. Our aim is to help families navigate difficult choices and find a way forward together.
- Silvie's Life, by Marianne Rogoff (1995) - parental views on the NICU and a disabled infant
- Holding on to Hope, by Nancy Guthrie (2002) - Zellweger's in infancy
- Walking Taylor Home, by Brian Schrauger (2001) - preteen with osteosarcoma & father's grief, written in sometimes near allegorical Christian prose.
- Mrs. Hunter's Happy Death, by John Fanestil (2006) - stories and questions addressing why some die peacefully
- The Last Lecture, by Randy Pausch (2008) - adult facing terminal illness
- Tuesday's With Morrie, by Mitch Albom (2002) - being present
- The Five People You Meet in Heaven, by Mitch Albom (2003) - living life and attending to the meaning of relationships and interactions
- Hannah's Gift, by Maria Housden (2003) – a mother’s story of her young daughter who died of cancer.
- Shadows in the Sun, by Betty Davies (1998) - sibling bereavement
- The Fall of Freddie the Leaf, by Leo Buscaglia (1982) - A child's experience of seasons changing (leaves) and learning death is part of life
- Final Gifts by Maggie Callanan and Patricia Kelley- written by hospice nurses
- Changed by a Child: Companion Notes for Parents of a Child with a Disability by Barbara Gill
- Finding Hope When a Child Dies by Sukie Miller – discusses other cultures’ approaches to dealing with grief after loss of a child.
- Alex: The life of a Child. by Frank DeFord.- a father’s story of losing his daughter at age 8 to CF.
- The Spirit Catches You and You Fall Down by Anne Fadiman- story of a hmong child’s illness and the cultural issues involving his medical care.
- Sick Girl by Amy Silverstein- patient account of heart transplant as a young adult.
- Death be Not Proud by John Gunther – a father’s memoir of his teenage son who died of a brain tumor.
- A Book of James by Jeanne P. Beggins – journal by parents of an infant who died.
- Sick Girl Speaks:Lessons and Ponderings Along the Road to Acceptance by Tiffany Christensen – patient’s autobiography of living with CF and multiple lung transplant.
- Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life by Amy Kubelbeck- family account of infant death.
- The Power of the Powerless by Chris De Vinck- family account of having a disabled family member.
- If I Get to Five by Fred Epstein – physician’s view of pediatric illness
- Losing Malcolm: A Mother’s Journey Through Grief by Carol Henderson