Pediatric Neurofibromatosis Surgery
MGfC Pediatric Neurofibromatosis Surgery
To schedule an appointment with a MassGeneral for Children pediatric specialist, please call 888-644-3248 or complete our online appointment form to request an appointment.
Physicians may call 888-644-3211 or use the online referral form and the Access & New Appointment Center will call your patient within one business day.
Care During COVID-19
Our dedicated physicians, nurses and staff are committed to providing the best possible care for children. We have taken unprecedented steps to ensure office visits and procedures are welcoming and safe. Your child’s health and safety is our top priority. Learn more.
The Neurofibromatosis Surgery team at MassGeneral Hospital for Children manages neurofibromatosis type I and type II as well as variants, such as schwannomatosis. NF I, classic or peripheral neurofibromatosis, is commonly apparent in infancy and early childhood and can include manifestations such as:
- Facial and orbital plexiform neurofibromas
- Spinal neurofibromas
- Brain tumors — optic gliomas, as well as other gliomas
- Peripheral nerve tumors, including sarcomas
- Cranial dysgenesis with pulsating exophthalmos
NF II, central neurofibromatosis, is much less common in childhood and adolescence than NF I and is usually not apparent until the teenage years. A hallmark of NF II is the presence of bilateral acoustic neuromas (now more accurately termed vestibular schwannomas). Other central nervous system tumors such as meningiomas can occur. NF I and NF II are relatively rare disorders that can cause a number of neurological and medical consequences.
At Massachusetts General Hospital, these patients are followed by a focused multidisciplinary team led by neurologists and neurosurgeons. These physicians are some of the most experienced in NF I and NF II management, for both children and adults.
Schedule a Virtual or Telephone Visit
Care teams across Mass General for Children are available to provide care via phone or online video visits. Call 888-644-3248 to learn more.
COVID-19 Resources for Families
Articles and Q&As from providers across MGfC on how to take care of your children and yourself during the COVID-19 pandemic.