Care During COVID-19

Our dedicated physicians, nurses and staff are committed to providing the best possible care for children. We have taken unprecedented steps to ensure office visits and procedures are welcoming and safe. Your child’s health and safety is our top priority. Learn more.


The Neurofibromatosis Surgery team at MassGeneral Hospital for Children manages neurofibromatosis type I and type II as well as variants, such as schwannomatosis. NF I, classic or peripheral neurofibromatosis, is commonly apparent in infancy and early childhood and can include manifestations such as:

  • Facial and orbital plexiform neurofibromas
  • Spinal neurofibromas
  • Brain tumors — optic gliomas, as well as other gliomas
  • Hydrocephalus
  • Peripheral nerve tumors, including sarcomas
  • Cranial dysgenesis with pulsating exophthalmos

NF II, central neurofibromatosis, is much less common in childhood and adolescence than NF I and is usually not apparent until the teenage years. A hallmark of NF II is the presence of bilateral acoustic neuromas (now more accurately termed vestibular schwannomas). Other central nervous system tumors such as meningiomas can occur. NF I and NF II are relatively rare disorders that can cause a number of neurological and medical consequences.

At Massachusetts General Hospital, these patients are followed by a focused multidisciplinary team led by neurologists and neurosurgeons. These physicians are some of the most experienced in NF I and NF II management, for both children and adults.