Patient Resources from the Myhre Syndrome Clinic at MGfC and Mass General

About Myhre Syndrome

• Myhre Syndrome: About the Genetic Cause

Preparing for Your Appointment

• About Your First Appointment at the Myhre Syndrome Clinic
• About Your Home Care Team
• When to Schedule a Follow-Up Visit at the Myhre Syndrome Clinic

International Patients

• CPT Codes for International Patients
• What to Consider Before Visiting the Clinic From Abroad

Common Conditions in Myhre Syndrome

Breathing Problems

• Breathing Problems in People with Myhre Syndrome

Constipation

• Understanding Constipation in People with Myhre Syndrome

Ear Problems

• Ear Problems in People with Myhre Syndrome: What You Need to Know

Other Resources

• Genetics Home Reference: Myhre syndrome
• Myhre Syndrome Foundation (MSF) Hosts Inaugural Conference

Resources for Providers

• Tips for Primary Care Providers (PCP)

Tests and Procedures

Imaging

• Brain and Spine Imaging: What You Need to Know