Congratulations to Lorrie Bertrand, social worker for the Sickle Cell Disease Program at Mass General, for being named WEEI Sports Radio Network' Everyday Amazing Healthcare Professional of this week's Boston Red Sox games.
Comprehensive Sickle Cell Disease Treatment Center
Explore the Comprehensive Sickle Cell Disease Treatment Center
Sickle cell disease touches so many aspects of life both in and out of the hospital. Our approach is to create a true medical home where patients and their families can feel seen and heard. We understand the complexities of the disease and our comprehensive team has the experience to care for you and your family. We are deeply committed to you and want to advocate for you within the healthcare system. We have the abundant resources of a general hospital to care for you and to help you manage your disease and its symptoms.
Our team is adept at the management of adults with sickle cell disease and are readily available to help you transition from pediatric to adult care. You are the most important member of the medical team and you’ll be joined by our group of experts to develop and coordinate a comprehensive treatment plan for you.
What is Sickle Cell Disease?
Sickle cell disease is an inherited, life-threatening blood disorder, affecting nearly approximately 100,000 Americans. In the United States alone, 4,000-5,000 pregnancies annually result in some variant of sickle cell disease. The disease is most commonly seen in the black and brown population where the gene frequency for sickle hemoglobin (HbS) is 4%. As a result of newborn screening, immunizations, treatment of infections, disease modifying agents like hydroxyurea, and improved supportive care, the survivability has markedly improved over the last ten years. The greatest impact on the management of sickle cell disease comes from the establishment of a multidisciplinary care team that can meet patients where they are and provide them with the resources needed to live healthy lives. With new therapies on the horizon, we have good reason to be hopeful about the future.
Innovative Treatment Options
Our Center has created a unique model where our patients are seen jointly by both hematologists with specialized expertise and primary care providers because we know that sickle cell disease touches all aspects of health. We are equipped with the latest disease modifying agents for sickle cell disease including voxelotor, L-Glutamine, and crizanlizumab. We have partnered with our colleagues in stem cell therapy to provide expertise in stem cell transplant. We strive to bring the latest medical treatments and clinical trials to our Center so that our patients can have access to the most innovative approach to treating their disease. In addition to medical therapies, all of our patients have access to integrative modalities including acupuncture, massage therapy, yoga, and medication. We have a dedicated sickle cell disease chaplain for spiritual care and if you need to be admitted to the hospital, our unique partnership with palliative care allows us to holistically treat your pain and symptoms.
The Mass General Difference
Sickle cell disease is best managed through a care model that integrates multiple disciplines to help patients tackle the many facets of an illness that spans a lifetime. Attention to the physical, psychosocial, and financial impacts of the disease are key to providing good care for patients and their families. At Mass General, we have the abundant resources to care for you and to help you manage your disease and its symptoms.
Meet the Team
Sickle cell disease can impact many aspects of your health, and we provide patients and their families with a multidisciplinary team of experts who are passionate about providing the best possible care from childhood to adulthood, including a dedicated social worker, a dedicated nurse navigator, infusion space for treatments, the latest treatments, and access to community resources.
Sharl Azar, MD
"We know that sickle cell can touch so many aspects of your life and we want the resources that you need to be only a phone call away. We want to be your advocates. We want to be here for you and your family."
Ellen Silvius, RN
Ellen Silvius is the dedicated Nurse Navigator for the Comprehensive Sickle Cell Disease Treatment Center, and she is the primary point of contact for all of our patients.
Lorrie Bertrand, LCSW
Lorrie Bertrand is the dedicated social worker for the Comprehensive Sickle Cell Disease Treatment Center. Lorrie is a key member of our team and she helps patients and their families with transitions of care, family support, and counseling.
Dedicated to advocating for & providing support services to patients and families.
A regional cooperative group of New England Pediatric Hematology programs devoted to SCD.
Learn about the Pediatric Blood Disorders Program at Mass General.
Building Bridges with the Greater Boston Community
In our effort to learn from and partner with the sickle cell disease community in Boston, we partner with the Greater Boston Sickle Cell Disease Association and the New England Sickle Cell Consortium. We work with our colleagues at other sickle cell programs throughout the commonwealth and transition pediatric patients from both the MassGeneral Hospital for Children and Boston Children’s Hospital.
- Jun | 4 | 2021
Across the nation, the medical community, long plagued by persistent health disparities, is acknowledging structural racism as a public health crisis...
Comprehensive Sickle Cell Disease Treatment Center
Our approach is to create a true medical home where patients and their families can feel seen and heard. We understand the complexities of the disease and our comprehensive team has the experience to care for you and your family.