Movement disorder & dystonia related organizations for patients & families

General Dystonia/Movement Disorders

Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2810
Chicago, Illinois 60601-1905
Phone: 800-377-3978
Fax: 312-803-0138
Email: dystonia@dystonia-foundation.org

The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.
Fred French Building
551 Fifth Ave (at 45th St.), Suite 520
New York, NY 10176
Phone: 212-682-9900
Email: Bachmann.Strauss@mssm.edu

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

Blepharospasm

Benign Essential Blepharospasm Research Foundation, Inc.
PO Box 12468
Beaumont, Texas 77726-2468
Tel: 409-832-0788
Fax: 409-832-0890
Email: bebrf@blepharospasm.org

Spasmodic Dysphonia/Laryngeal Dystonia

National Spasmodic Dysphonia Association
300 Park Boulevard, Suite 415
Itasca, IL 60143
Phone: 800-795-6732
Fax: 630-250-4505
Email: NSDA@dysphonia.org

American Speech Language and Hearing Association (ASHA)
2200 Research Boulevard
Rockville, MD 20850-3289
Tel: 800-638-8255
Fax: 301-296-8580
Email: actioncenter@asha.org

Spasmodic Torticollis/Cervical Dystonia

National Spasmodic Torticollis Association 
9920 Talbert Avenue #233
Fountain Valley, CA 92708
Phone: 800-487-8385
Email: nstamail@aol.com

Dopa-Responsive Dystonia

Pediatric Neurotransmitter Disease Association
Email: pnd@pndassoc.org

Manufacturer Information Websites

Botox® A:  botoxmedical.com, from Allergan Pharmaceuticals.

Myobloc® B: myobloc.com, from Solstice Neurosciences, Inc.

Activa Deep Brain Stimulation: Medtronic Medical Technology dystonia site.