Resources for Children and Families with Epilepsy
View a list of resources for children who have epilepsy and their families. Resources include organizations for information, advocacy, life skills and recreational activities.
Many people associate seizures with shaking, twitching, and loss of awareness. These symptoms describe one specific seizure type known as a tonic-clonic seizure. However, seizures come in many types, each with their own symptoms.
As a Level 4 Epilepsy Center, certified by the National Association of Epilepsy Centers, Massachusetts General Hospital provides the highest level of epilepsy care available. Our team provides advanced neurodiagnostic monitoring, along with comprehensive medical, neuropsychological, and psychosocial treatment for even the most complex cases. We also offer full evaluations for epilepsy surgery, including intracranial monitoring and specialized surgical procedures that are not widely available at other institutions.
As researchers and clinicians have learned more about seizures, they have updated the terms used to describe them. Today, experts group seizures into three major types, based on where they start in the brain and what symptoms they cause. This modern classification system helps doctors describe seizures more accurately. It also allows patients to better understand their type of seizure and begin the right treatment as early as possible.
Doctors classify seizures into three main types based on where they begin in the brain: focal, generalized, and unknown. These terms describe the type of seizure and where it began in the brain, which can help determine the best treatment.
Focal seizures begin in one specific area on one side of the brain. This type of seizure used to be called partial seizures. Focal seizures can be further divided into two subtypes:
Generalized seizures begin on both sides of the brain at once. They always affect awareness, often leading to loss of consciousness or unresponsiveness.
Doctors classify a seizure as unknown onset when they can’t determine where it began in the brain. This can happen if no one sees what happened. If doctors later gather enough information, they may reclassify the seizure as focal or generalized.
Modern seizure classification also considers the type of symptoms a person experiences during a seizure. Doctors group seizures into two categories based on whether the symptoms involve movement:
Focal seizures can include tonic, atonic, clonic, myoclonic, and spasm-like symptoms. In some cases, a focal seizure may spread across the brain and evolve into a tonic-clonic seizure.
Generalized seizures with non-motor symptoms most often appear as absence seizures. During an absence seizure, the person briefly becomes unresponsive and may stare into space. They may also make small, repetitive movements like smacking their lips or rubbing their fingers together.
Focal seizures can also appear as absence seizures, but they tend to involve a wider range of symptoms. During a non-motor focal seizure, a person may experience:
These seizure types can look similar, and you may have a hard time telling them apart. Myoclonic seizures are typically brief, sudden muscle jerks that last just a second or two. Clonic seizures involve longer-lasting, rhythmic jerking movements that are more sustained and repetitive.
Tonic-clonic seizures, the most widely recognized type of seizure, cause a complete loss of consciousness. Some focal seizures may also also cause changes in awareness or responsiveness.
Learn the right steps to help keep someone safe and comfortable during and after a seizure.
A seizure that affects both sides of the brain is called a generalized seizure.
Seizures are classified into three main groups, based on where they start in the brain:
"Partial seizure" is an older term to describe what is now called a "focal seizure." They were once called "partial" because they only involved part of the brain. Today, we use “focal” to describe seizures that begin in one area, regardless of severity.
Seizures that cause a person to go limp are called "atonic seizures."
Absence seizures are often called "staring spells.” During this type of seizure, a person may briefly stop responding and stare into space. Absence seizures can be focal or generalized, and may include small repetitive movements like lip smacking or finger rubbing.
There’s no official diagnosis of a “mild seizure,” but people often use the term to describe focal aware seizures. In these seizures, the person maintains awareness of their surroundings and may experience subtle symptoms like unusual sensations, small repetitive movements, or brief hallucinations.
Tonic-clonic seizures are typically the most dramatic in appearance, involving a loss of consciousness and full-body muscle contractions. Seizures that don’t respond to treatment are associated with more serious long-term risks.
While most seizures are not life-threatening, a rare condition called Sudden Unexpected Death in Epilepsy (SUDEP) can occur in some individuals. It is most commonly associated with tonic-clonic seizures.
There are many rare forms of epilepsy. Some of the rarest are Angelman syndrome, Doose syndrome, Dravet syndrome, and Lennox-Gastaut Syndrome.
View a list of resources for children who have epilepsy and their families. Resources include organizations for information, advocacy, life skills and recreational activities.
Neuroscience team is first in New England to offer patients new implant blending personal technology and standardized care
Learn about seizures, including the different types and triggers, and how doctors treat seizures. You will also learn what to do if your child has a seizure.
A new Mass General for Children (MGfC) initiative aims to teach school-age children to develop a better way to think about and prevent bullying through the 'No More Bullying' program.
Teens and young adults in the THRIVE Program and newly adopted rescue dogs from Last Hope K9 Rescue are helping each other learn essential life skills as part of the Doggonit: Epilepsy is Ruff program in Pediatric Neurology.
If you have symptoms of epilepsy, contact a neurologist at Massachusetts General Hospital, where our experts can diagnose and treat epilepsy.