Patient and Caregiver Resources
Mass General Guides
Huntington's Disease and SSDI: It is now easier for patients with Huntington's to apply for Social Security Disability Insurance. Learn more about the application process.
Nutrition Tips for People with HD: HD can make it hard to get enough calories, especially if it interferes with swallowing. These nutritious smoothie recipes can help.
HD Support Groups: Listings for support groups and social workers in New England.
Exercise can help improve fitness and mobility in people with Huntington's Disease. We recommend the following series of exercises from the UK's ActiveHD:
- Warm up
- Resistance training
- Strengthening - must be able to get on/off floor
- Cool down and relaxation
Resources for Professionals and Caregivers
Huntington’s Disease Society of America
The HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington’s Disease through community services, education, advocacy, research and more.
Huntington Study Group
The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.
Huntington’s Disease Youth Organization
The Huntington’s Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington’s disease.
Huntington’s Disease research news in simple language.
Huntington’s Disease Drug Works
Huntington’s Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington’s disease.
Help 4 HD International
Incorporated and tax exempt in 2013, Help4HD’s mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD) through its multimedia communications platform
Philanthropic support for the Mass General Huntington's Disease Unit is critical to patient care, research and education. Please consider a gift to support research and clinical care today.