Mass General Guides

Huntington's Disease and SSDI: It is now easier for patients with Huntington's to apply for Social Security Disability Insurance. Learn how to apply here.

External Resources

Huntington’s Disease Society of America
The HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington’s Disease through community services, education, advocacy, research and more.

Huntington Study Group
The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.

Huntington’s Disease Youth Organization
The Huntington’s Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington’s disease.

HD Buzz
Huntington’s Disease research news in simple language.

Huntington’s Disease Drug Works
Huntington’s Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington’s disease.

Help 4 HD International
Incorporated and tax exempt in 2013, Help4HD’s mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD) through its multimedia communications platform