Huntington's Disease Support Groups

The Huntington's Disease Society of America coordinates numerous support groups that can help you and your family face the challenges of HD. For more information and other local resources you can also contact these social workers from the HDSA and regional HDSA Centers of Excellence:

• CT: Mary Dunleavy, MSW: marydun@att.net or 203-216-6266
• MA, NH, or RI: Kara Keegan, MSW: kkeegan@hdsa.org or 508-4467705
• ME: Virginia Goolkasian: vgoolkasian@hdsa.org or 978-905-5588
  
• VT: Lori McKenna, LICSW: Lori.McKenna@uvmhealth.org
  

New England Support Group Information

All support groups are meeting virtually at this time to keep everyone safe. Please email the group facilitator who will send you a secure link to the group each month it meets. The address listed is where the group will meet in person when it is safe to resume to in person meetings.

Connecticut

Fairfield
Last Thursday of each month (adjusted for holidays) 7:00 pm – 8:30 pm
Mary Dunleavy, MSW marydun@att.net or 203-216-6266
Operation Hope, 636 Old Post Rd, Fairfield CT 06824

Maine

Bangor
Mixed support group: Fourth Wednesday of each month, 6:00 pm – 7:15 pm
St. Joseph's Hospital
Chapman Conference Room, 2nd floor
360 Broadway Bangor, Maine 04402
Nancy Patterson: pattersonnancy68@gmail.com or 207-669-5212

Massachusetts

Newton
Caregiver support group: First Saturday, every other month, 11:00 am – 12:30 pm
February, April, June, August, October, and December
The Falls 
​2300 Washington Street Newton, MA 02462
Cheryl Sullivan: csull22@comcast.net or 603-809-4555

Beverly
Mixed support Group: 3rd Saturday of each month, 10:30 am – 12:00 pm
Beverly Hospital Garden Conference Room
85 Herrick Street Beverly, MA 01915
Mirta Uliva: mirtas.ulivi@gmail.com or 978-317-2391

Tewksbury
Mixed support group meets one evening per month 6:30 pm – 8:00 pm. Email coordinator for dates.
Tewksbury Library, 2nd floor study room #1
300 Chandler Street Tewksbury, MA 01876
Cheryl Sullivan: csull22@comcast.net or 603-809-4555

New Hampshire

Derry
Fourth Saturday of each month, 10:00 am – 11:30 am
Derry Library
64 E Broadway, Derry, NH
Wendy Landry: waglandry@aol.com

Rhode Island

Providence
Mixed group meets first Tuesday of each month, 6:30 pm – 8:00 pm
Tockwotton on the Waterfront, 4th floor pub
500 Waterfront Drive, East Providence, RI
Alexis Derdarian: Alexisderderian@gmail.com

Vermont 

Vermont meetings have been suspended due to COVID-19. We will send an announcement and update this site when they resume.