The Huntington's Disease Society of America coordinates numerous support groups that can help you and your family face the challenges of HD. For more information and other local resources you can also contact these social workers from the HDSA and regional HDSA Centers of Excellence:

New England Support Group Information

All support groups are meeting virtually at this time to keep everyone safe. Please email the group facilitator who will send you a secure link to the group each month it meets. The address listed is where the group will meet in person when it is safe to resume to in person meetings.


Last Thursday of each month (adjusted for holidays) 7:00 pm – 8:30 pm
Mary Dunleavy, MSW or 203-216-6266
Operation Hope, 636 Old Post Rd, Fairfield CT 06824


Mixed support group: Fourth Wednesday of each month, 6:00 pm – 7:15 pm
St. Joseph's Hospital
Chapman Conference Room, 2nd floor
360 Broadway Bangor, Maine 04402
Nancy Patterson: or 207-669-5212


Caregiver support group: First Saturday, every other month, 11:00 am – 12:30 pm
February, April, June, August, October, and December
The Falls 
​2300 Washington Street Newton, MA 02462
Cheryl Sullivan: or 603-809-4555

Mixed support Group: 3rd Saturday of each month, 10:30 am – 12:00 pm
Beverly Hospital Garden Conference Room
85 Herrick Street Beverly, MA 01915
Mirta Uliva: or 978-317-2391

Mixed support group meets one evening per month 6:30 pm – 8:00 pm. Email coordinator for dates.
Tewksbury Library, 2nd floor study room #1
300 Chandler Street Tewksbury, MA 01876
Cheryl Sullivan: or 603-809-4555

New Hampshire

Fourth Saturday of each month, 10:00 am – 11:30 am
Derry Library
64 E Broadway, Derry, NH
Wendy Landry:

Rhode Island

Mixed group meets first Tuesday of each month, 6:30 pm – 8:00 pm
Tockwotton on the Waterfront, 4th floor pub
500 Waterfront Drive, East Providence, RI
Alexis Derdarian:


Vermont meetings have been suspended due to COVID-19. We will send an announcement and update this site when they resume.