Community Resources

ALS Association (ALSA)

Leading the global effort to fight and cure ALS.

ALS Charitable Foundation

Raising funds for ALS research and treatment.

ALS ONE Research Partnership

Mass General, UMass Medical School, Harvard Medical School, ALS Therapy Development Institute, and Compassionate Care ALS partnership.

Compassionate Care ALS

Supporting ALS and their families through direct services, education, and equipment.

Muscular Dystrophy Association (MDA)

Advocacy, clinical trials, support groups, research news, and more.

ALS Finding a Cure® Foundation

Funding ALS research with cutting-edge development tools and an open platform for neurological research materials.

ALS Information at the NIH

Provided by MedlinePlus, a service of the U.S. National Library of Medicine. Disponible en Español.

ALS Therapy Alliance

Patient portion of the ALS Therapy Alliance's website focusing on their expertise and funding to advance their studies of ALS.


News and information for researchers working on neurodegenerative diseases like Alzheimer's and ALS.


A patient-focused nonprofit supporting efforts to care for ALS patients and work to find a cure.

Research Sites is a website that provides patients, family members, health care professionals, and other members of the public easy access to information on clinical studies on a wide range of diseases and conditions. Information is provided and updated by the sponsor or principal investigator of the clinical study and the website is maintained by the U.S. National Library of Medicine (NLM) at the National Institutes of Health (NIH).

Northeast ALS Consortium (NEALS)
Comprehensive ALS clinical trial database, clinical trials 101 information, and blog to keep patient and caregiver communities well-informed about clinical research, trial opportunities, and scientific advancements world-wide.

The National Institute of Neurological Disorders and Stroke is the primary NIH organization for research on Amyotrophic Lateral Sclerosis.

National ALS Registry
The Center for Disease Control’s (CDC) growing registry of ALS patients to help improve understanding of who gets ALS and factors that affect disease.

Project ALS
Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and a cure for ALS. We recruit the world’s best scientists and doctors to work together—rationally and aggressively—to develop a better understanding of the ALS disease process and, in parallel, better therapeutic strategies.

Target ALS
Target ALS provides a framework for the world's leading ALS researchers to coordinate their findings so that we can make progress toward therapies and a cure.

The Robert Packard Center for ALS Research at John Hopkins
The Packard Center's aim is to provide innovative, promising, focused projects with researchers who understand that collaboration is a powerful catalyst in ending the disease.

Patient Communities

ALS Therapy Development Institute (TDI)
The ALS TDI’s community page includes events, an online forum, and social networking opportunities.

ALS Untangled
Scientific effort investigating alternative and off-label ALS treatments, while bringing together patients, clinicians, and scientists via Twitter, a social networking tool. 

PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real world and accelerate the discovery of new, more effective treatments.