Fetal Care Program

The pediatric surgery team at MGHfC works closely with maternal-fetal and neonatal specialists to provide state-of-the-art care for babies and children with a wide spectrum of congenital anomalies, including congenital diaphragmatic hernia (CDH), abdominal wall defects (gastroschisis, omphalocele), bowel diseases including atresias and duplications, tumors, lung diseases and other rare diseases of the newborn. For babies with heart and lung disease, the surgical team provides newborn life support [extracorporeal membrane oxygenation (ECMO)]. Our pediatric surgeons employ the latest surgical knowledge and techniques in the care of their pediatric patients.

Our pediatric orthopaedic doctors provide advanced treatment for conditions like clubfoot, hip dysplasia and congenital musculoskeletal deformities. They collaborate closely with the pediatric surgery service and the pediatric medicine service to provide coordinated, high-quality care for our youngest patients.

The pediatric neurosurgery service at MGHfC diagnoses and treats all neurosurgical conditions of infants, children and adolescents, with special expertise in the management of congenital anomalies of the spine and brain such as Chiari malformations, myelomeningocele, tethered spinal cord, hydrocephalus, spinal cord disorders, ventriculomegaly and craniosynostosis.

Our pediatric neurologists are trained in the diagnosis and treatment of pediatric neurological disorders and diseases from the common to the complex. Each one of our pediatric neurologist specialized in certain conditions and diseases, so each pediatric patient is referred to their perfect match. They work closely with the pediatric services at MGHfC to provide coordinated high quality care that best serves each child’s needs.

The pediatric cardiology program at MGHfC provides expert diagnostic, treatment and long-term follow-up care for infants, children and adolescents with all types of congenital and acquired cardiac conditions including atrial septal defect (ASD), Tetralogy of Fallot (TOF), and ventricular septal defect (VSD). We have particular expertise in fetal and postnatal echocardiography, prenatal diagnosis of congenital heart disease and minimally invasive procedures including percutaneous transcatheter procedures. In partnership with specialists at Mass General, we provide seamless continuing care of congenital heart diseases into adulthood.

Specialty surgical care of congenital urologic conditions at MGHfC is provided by pediatric urologists who have extensive experience in the care of babies and children with a broad scope of urologic conditions including hydronephrosis, ureteropelvic junction obstruction, hypospadias and ambiguous genitalia.

Pediatric nephrologists offer consultation and care for congenital anomalies of kidneys and urinary tract (CAKUT) as well as protean kidney problems like cystic disease, fetal multicystic dysplastic kidney (MCDK), obstructive uropathy, and hydronephrosis.

The Cleft Lip and Craniofacial Clinic at MGHfC along with Shriners Hospital for Children provides a comprehensive, multidisciplinary approach to care for children with a cleft or craniofacial disorder. Specialists from plastic surgery; ear, nose and throat surgery; oral and maxillofacial surgery; speech pathology; dentistry and others work to create a custom treatment plan individualized to provide each child the best chance for optimal appearance, speech, hearing, vision and dentition, and a positive self-image.

Our radiologists have subspecialty expertise in pediatric imaging and perform advanced fetal magnetic resonance imaging (MRI) when needed to provide highly accurate diagnoses of congenital anomalies without any radiation exposure to mother or child. In addition, pediatric imaging is an integral part of the ongoing medical care that MGHfC provides for babies after they are born, through state-of-the-art technologies including ultrasound, computed tomography (CT) and MRI to visualize pediatric diseases and assess response to treatment.

As one of the most advanced and family-focused neonatal intensive care units (NICU) in New England, we provide expert care to critically ill babies born at Mass General and across the region. It is designated a Level III nursery by the Commonwealth of Massachusetts, providing the highest level of care for premature and critically ill infants using the most advanced technological and therapeutic resources available. The neonatology team is led by neonatologists and includes experienced neonatal nurses, nurse practitioners, pediatricians, respiratory therapists, lactation consultants, nutritionists and specially trained social workers. The MGHfC NICU prioritizes family-centered care. Parents are welcome in the unit at any time and a dedicated parent space at each infant’s bedside allows parents to remain with their infant throughout treatment. We believe parents are a crucial element of their baby’s care team and encourage them to participate in medical rounds.

A dedicated group of obstetric and surgical nurses provides one-on-one assistance with navigating the health care setting from diagnosis through birth and ongoing treatment. Our nurses and nurse coordinator are available throughout pregnancy to assist in consolidating appointments, meeting the appropriate providers and organizing facility tours. After delivery, they will help to provide a seamless transition to pediatric care.

Genetic counselors are providers who are trained in both genetics and counseling. When an ultrasound shows that your baby has an anomaly, our genetic counselors will help guide the family through the process of learning about the possible reasons for the anomaly and review any testing options that might be available to learn more information about the health of your pregnancy, as well as the severity of the problem. The genetic counseling team works to ensure each family has a good understanding of the diagnosis, including its cause, its symptoms, and what the chances are that other family members of future children might have the same condition. We also offer families emotional support and can introduce families to additional resources such as support groups or other families who have dealt with a similar diagnosis in pregnancy.

Obstetric social workers assist new mothers and their families from the beginning of pregnancy until after delivery. Your family’s care then can be transferred to a pediatric social worker for continued support throughout your baby’s life. Our social workers are master’s level-prepared mental health clinicians who help with the transition to parenthood and identify resources at MGHfC, Mass General and within the community to support our patients.

The Newborn Developmental Follow-Up Clinic at MGHfC provides comprehensive evaluation and follow-up services for at-risk infants and toddlers from birth to two years. Infants cared for at this clinic include babies who were born premature, had serious medical problems or were born with congenital anomalies. The clinic provides important services to help families and community-based pediatricians address issues of growth and development of high-risk patients. Neonatal specialists at the clinic aid in the early identification of potential medical, neurological, developmental and nutritional issues, and guide families and primary care providers to specific services as needed.

Pediatric palliative care is an interdisciplinary service that provides an additional layer of healing and support for children and families when a child faces a serious disease or lifespan-limiting condition. We focus on maximizing a child’s quality of life, providing relief from pain, symptoms and stress, smoothing transitions of care, coordinating communication and improving a family’s experience of care.